The problem might be with the type of test.
Please consider asking for a urinary MMA (methylmelonic acid) to rule out a conversion issue to the active type of B12
Methylocobalamin. If your MMA test shows low Methylocobalamin, your body is likely holding on the stores of inactive B12. Blood tests are not helpful in such cases.
Should my suggestion not help clear this up, please post again, as there are other less common possibilities, albeit much more complex.
Oh, consider also a Homocysteine test (tests also for Methylocobalamin, Methyl-folate and B6), specially if your MMA comes back positive for low Methylocobalamin.
High Homosysteine is an independent heart disease risk factor (among many other diseases)!
common in patients with low Methylation.
Methylation is involved in numerous biochemical processes, including detoxification, converting homocysteine into methionine and much more and for this you need the methylated forms of the aforementioned vitamins B12, folate and B6.
Some genetic mutations, specially in the MTHFR gene
may be the main factor in low methylation.
Do not let the haematologist convince you that this is nothing! Please insist that anything serious, as I mentioned here, is totally ruled-out!
I hope this helps,
I have similar diagnosis and a second blood test now showed folate deficiency, I am so scared because I am a single father, shamrock56, how are you now.
Please can you
be of any assistance.
I have had a huge amount of blood tests for many serious conditions. They have all come back essentially normal except the B12 which is still over the highest normal range. They said that some people are just good absorbers of B12. I still have to go back to the Haematologist, (although I've got the results from GP as they were also copied to her). I am a Christian and I went forward for prayer and the anointing with oil. I give thanks to God for my good results. He is faithful, and His mercy is new every morning.
Likewise. I would like to follow this. I had gastric bypass 2 years ago. I was placed on supplemental vitamin b12. Ever since taking it my levels have been sky high which is unusual because gastric bypass patients tend to be low hence the need for supplements. I was told to back off on the amount I take which I have and my levels are still remarkably high. The MD states it is because I still make it. I'm not convinced
Thank you for your thoughts on this. I did ask the Haemotologist about an MMA urine test, but she said she doesn't normally do this. She has given me a referral for a lot of other blood tests. She said she has seen this before and has had people go as far as a Bone marrow test with nothing showing up. I have had a normal abdominal ultrasound, a normal recent colonoscopy, among other tests. All other blood tests were normal. I told her it is causing me some anxiety and she told me not to be anxious because I am well. She doesn't want to see me for another 5 or so weeks. So I guess that's a good sign.