I am a 31 year old female recently diagnosed with Dissacharidase Deficiency, otherwise known as carbohydrate malabsorption. According to my gastro, a bad viral infection I acquired almost 18 months ago knocked out only my lactase enzymes, but also the enzymes neccessary to break down sugars, most carbs and all starches. I also became seriously sensitive to fructose, the sugar found in fruit. Symptoms include extreme reactions to eating carbohydrates (except certain veggies and particular legumes) such as nausea, diarrhea (especially the kind that smells like sugar - if you have it you know what I am talking about), undigested food, ever changing appearance of bowel movements, acne within about 8 hours of consumption (must hit a critical mass) and rashes in response to simple sugars.
I've had a number of very serious health ramifications as a result of this condition, most of which were caused by severe nutritional/vitamin deficiencies. I tell you, this stuff can get really scary if you let it progress.
To make matters worse, I am a vegetarian and have been for 20 years. Currently, my diet is restricted to eggs, certain nuts, avacado, most vegetables and some legumes. I can't have any dairy, fruit, grains or starches. Basically, I can't eat much and it's very frustrating and becoming a bit isolating. I love going out to eat. I was a huge 'foodie' before this all started....girl with an iron stomach if you will!
I am coping and doing my best, but I was wondering if anyone knows of support groups for adults with either CSID or carbohydrate malabsorption. I can find groups for parents with kids who have these disorders, but nothing for adults. Just want share stories, make some friends who understand and perhaps swap some recipes.
Also looking for a good nutritionist/dietitian referral in the southern california area if any one can pass along a recommendation. I really, really need someone to work with to create balanced diet and menu plans.