Hi nativecutie
Unfortunately I do not live in America, so I don't know how helpful I can be in helping you find a doctor. But I do understand your frustration. The hardest thing for me was that I go a lot of conflicting opinions. But in my case there were a couple of doctors (and a second radiologist) who seemed genuinely concerned that the tumor might not be an enchondroma, but a chondrosarcoma.They said something to me about the tumor affecting the surrounding bone in a way that an enchondroma does not. (You'll have to excuse me, I cannot recall all the medical jargon they used.)
I really do hope you can find someone to help you.
Regards
I have been dealing with excruciating pain in my left hip from an enchondroma and several large bone cysts. I have been to a few doctors who are blowing off my pain and saying that enchondromas do not hurt. Now I am at a pain clinic and on opioids to dull the pain. What kind of doctor did your surgery? Are you able to tell us the name? I am in the tristate DC area. I would love for a doctor to validate this pain and remove this tumor so I can get off medication! I hate it! And what if it is a cancerous lesion. Was your tumor well defined? Did it change the bone around it? Any indication that it was a chondrosarcoma rather than an enchondroma? Mine is located in my uppermost femur. Thank you for any information! God bless!
Hi tinytina1253
A couple of weeks after the op the test results came back and it turned out that I did not have an enchondroma but a chondrosarcoma. So I am being treated by an orthopedic surgeon who specialises and does research in condrosarcomas. He really knows what he is doing.
I cannot imagine the pain you must be in, and I can just imagine that it is even harder for you having to run around after 7 year old triplets. Unfortunately I do not have much advice, except don't ignore the pain. Consult someone who specialises in the field and whom you can trust so that he/she can help you as soon as possible. In my case the hard part was just finding a doctor who really cared and believed me when I said I was in so much pain.
I really do hope you get referred to a doctor who will be able to help you. Please let me know if you could find a surgeon and how you are holding up.
Regards
what type of dr. did your surgery? i just found out that I have several enchondromas and the pain is HORRIBLE. I have 7 yr old triplets and a 19 yr old and can not do much with them. I am 46 yrs old and can't take this pain anymore. Any advice you have will be helpful. Glad to hear your feeling better. God Bless
Hi!
I have followed your advice. The third doctor was of the opinion that the enchondroma in my femur could be the major cause of my pain. After some deliberation, I decided to have the tumor in my femur removed surgically (the tumor in my humerus will just be observed) and follow an alternative treatment plan for the arthritis. I am almost completely mobile now and the pain is almost gone.
Thank you!
Hi there!
Well, this would be a difficult question to answer without a clinical evaluation. Either could be correct or both. Well, if I were in a situation like this I would rather seek a third opinion, preferably from an orthopedician ‘and’ a rheumatologist at a university/ teaching hospital, before deciding on a management plan.
Hope this is helpful.
Take care!