Just wanted to update you right quick on her. They finally discharged her from the hospital and so far nothing has grown in the pathology lab. But they are pretty sure that what she has is chronic recurrent multifocal osteomyelitis. They told me that is a rare condition that mainly affects girls between the ages of 4-14. Odds of getting this condition is one in a million. They still aren't sure how she got it, or what bacteria caused it but since she is responding well to the clindamycin (or however it is spelled) they think it might be a staph like bacteria.
I actually was told to take her to the local children's hospital from my pediatrician, because they weren't able to get her into the orthopedic doctor. They immediately admitted her to the hospital and we have been here since the 27th. They did a bone scan yesterday and found pockets of fluid in both her knee and ankle as well as another lesion in the ankle. So, yesterday they did surgery to aspirate the fluid and made two small incisions to take a piece of the bone. We will remain in our children's hospital until the test come back from pathology. They are pretty sure what we are dealing with is osteomyelitis. So hopefully the pathology report will tell us what's growing in her bone and how it go there:/ they already told me to expect to stay for at least five more days. Thank you for your quick response, and any info you can give me on that condition would be great.
I am sorry to hear that your daughter is in so much pain. The diagnosis of a lytic bone lesion depends on its size, location within the bone, margins and general appearance. A lytic bone lesion could be an aneurysmal bone cyst, solitary bone cysts, Ewing’s sarcoma or a non-ossifying fibroma. Since there is overlying swelling in the ankle joint, it could be stretching the skin which could be generating an itching sensation. Since there is swelling, may be there is an underlying fracture due to the lytic lesion. The other possibility is a sarcoma. Please take your daughter to her doctor for another X-ray and an urgent referral to an orthopedic specialist. Take care!
The medical advice given should not be considered a substitute for medical care provided by a doctor who can examine you. The advice may not be completely correct for you as the doctor cannot examine you and does not know your complete medical history. Hence this reply to your post should only be considered as a guiding line and you must consult your doctor at the earliest for your medical problem.