Aa
anyone had complex cyst that was cancerous
Hi All, thanks in advance for any answers. I had hyst 3 years ago(polyps in uterus) not cancer, 8 months after that i had U/S for consistent abdominal pain, U/S showed multipl folicies with the largest 18mm and right ovary twice the size of the left. Dr left it and said pain is caused from ovulation. Ended up in the ER 18 months later with servere pelvic pain , diagnosed with complex cyst 31mm. U/S report stated Abnormal 31mm heterogeneous ? complex cystic mass within ovary. vascularity seen within normal ovarian tissue with a trace of fluid in pouch of Douglas.
Is this of concern as i havnt had anyone explain results to me, due for U/S in 6 weeks. Should i seek a second opinion as there is no-one managing me at the moment or will it be ok. Wondering if anyone here had similar experience or am i just over reacting.
Thank you for reading :) (ps anyone no what the question marks after comments mean)
Is this of concern as i havnt had anyone explain results to me, due for U/S in 6 weeks. Should i seek a second opinion as there is no-one managing me at the moment or will it be ok. Wondering if anyone here had similar experience or am i just over reacting.
Thank you for reading :) (ps anyone no what the question marks after comments mean)
Hi, I also agree it's better to be safe than sorry. My complex cyst was believed by my primary physcian and my gyn to not be cancer. They were wrong. I knew something wasn't right and insisted on a frozen section biopsy during my surgery to remove the orange size complex cyst. I was diagnosed with LMP stage 1 serous ovarian cancer. Remember it's your body and your life so you need to be your own advocate. Complex cysts are more likely than a regular cyst to be cancerous.
Do what's right for you.
Take care, and let us know how you make out.
Do what's right for you.
Take care, and let us know how you make out.
Thankyou for your comments, in my report it sais it is suggestive of hemorrhagic cyst ? with a quesiton mark so I want sure if i was making to much of it . I thought i would go and get my u/s report from 18 months ago which suggested follow up in 12 weeks due to alot of follicies with the largest measuring 18mm. Mr Dr said the results were noraml and i didnt need a follow up, so when i read the report from 18 months ago i realised that it had grown from 18mm to 31mm and now complex abnormal mass, and i still get pelvic pain though not as severe as last time. this got me thinking whether or not i should make sure i have all these test i have been reading about, MRI, CT and CA125. . I will post back when i have the next u/s and wait and see if they refer me on
As I am learning, we need to be our own advocates and follow our intuition. Luckily I had a gynecologist who was very thorough and wanted to do things "just in case." Even he was shocked when the cyst he removed came back borderline cancerous.
Get copies of all of the relevant tests/dr visit notes and start your own file. Make a list of questions for your doctor. Don't think you're making a big deal out of nothing. It is something, so keep asking until you are sure. I am going through this now. I was sort of tongue-tied at my first appointment with the gyn-oncologist, but after a week I did some thinking (and posted here and also at Inspire) and everyone suggested a get a second opinion because I was not 100% sure about things and still felt uneasy.
Good luck! Keep us posted.
Get copies of all of the relevant tests/dr visit notes and start your own file. Make a list of questions for your doctor. Don't think you're making a big deal out of nothing. It is something, so keep asking until you are sure. I am going through this now. I was sort of tongue-tied at my first appointment with the gyn-oncologist, but after a week I did some thinking (and posted here and also at Inspire) and everyone suggested a get a second opinion because I was not 100% sure about things and still felt uneasy.
Good luck! Keep us posted.
No wories, I am glad to help with the information I have educated myself with. I know how it feels to not know what the next step is or what test should/might be done.
I dont know how things work down in Perth but I personally would be all over my Dr to get the results of the sonogram and have a cat scan and or MRI done as soon as possible. This will definitely aide in narrowing down cysts versus complex mass.
I dont know how things work down in Perth but I personally would be all over my Dr to get the results of the sonogram and have a cat scan and or MRI done as soon as possible. This will definitely aide in narrowing down cysts versus complex mass.
My goodness thank you Kevin for your reply, that was lovely of you to post so much information for me. I just wasnt sure if i should stay on top of it as I thought it was all in my head(making to much of it) as most cysts seem benign seem from what i have read, i have been doing alot of reading due to no-one explaining the results to me. I am not worried but i will now make sure I am heard by the next DR that sees me. I have to wait two weeks for my nxt U/S to see whats hapening with it, if you like I will keep you posted as to what happens, 18/6 is my scan but the gyn has booked to see me 2 weeks after the scan(u/s)no idea why i have to wait two weeks after the u/s. I would have thought a few days after the scan. I may give them a call now and see what the reasoning is. Thank you again for your reply, you did not worry me but just helped me realise i wasnt going off in my mind that perhaps I need to be on top of this. Thank you again
Have an Answer?
You are reading content posted in the Ovarian Cancer Community
Learn how to spot the warning signs of this “silent killer.”
Diet and digestion have more to do with cancer prevention than you may realize
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
My wife was recently Dx with granulosa Cell cancer( GCT) Jan 2010. Tests like sonograms, Cat scans and MRI's along with blood tests like CA125, Inhibin A&B, MIS and CEA are just used as a guides for the Dr's to help assist in making a diagnoses(Dx). A transvaginal ultrasound (TV) is the most valuable diagnostic study in the evaluation of an adnexal or pelvic mass/suspicious cysts. Cysts, hemorrhagic cysts, endometriomas, and dermoids have a high predictive diagnosis via TV ultrasound.
The blood test CA-125 is a test used by Dr's as a guide to determine if you have the most common form of ovarian cancer, approximately 80% of all ovarian cancers are epitheal ovarian cancer which is cancer of the cells on the surface of your ovary. Please keep in mind that CA-125 can be elevated if your menstruating and some other cuases of inflamation..
There are other types of ovarian cancer that are hormone driven and depending which form a person has there will be excess symptoms of that specific hormone. This is the type my wife was Dx with granulosa cell ca. These group type are called sex cord -stromal tumors. These type of tumors have specific markes that the Dr's use just like ca-125 to aide in their dx of epitheal ovarian ca. They are Inhibin A&B and MIS. Please keep in mind if and only if you have a dx of these form of tumors there is a missconception that these tumors are always benign, which is completely false> They are just slow growing tumors as opposed to epitheal.
Unfortunately with any type of suspected ovarian mass/tumor/ suspicious cyst(s) surgery will be the only way for the Dr's too make a definitive Dx. It is NOT recommended to biopsy any ovarian mass/tumor/suspicious cyst as it can rupture and seed the pelvis with cancer cells if that what it turns out to be. Please make sure you have your blood drawn for the following blood tests,Inhibin A&B, CA125 and CEA so at the very least you have baseline blood work.
Since there is some suspicion based on your TV-sonogram I would immediately find a good GYN/Oncologist surgeon. I am not suggesting what you have is cancer but studies have shown that treatment of ovarian cancer by nongynecologic oncologists and by low volume surgeons is associated with suboptimal surgical management. I would reccomend going to a large tiertiary hopsital where they see large volumes of patients. This is not to make you worry even more but to make sure that the Dr who treats you has vast experience with diagnosing and treating various types of GYN / Onc issues if that is what it turns out to be. If the Dr wants to remove the cyst/mass via laprascopic procedure PLEASE make sure they have much experience with removing these INTACT! All too often I read posts from patients who say their Dr thought it was a cyst and removed it haphazardly causing a rupture and seeding of the pelvis with cancer cells, only to be found on pathology post removal.
Next: From experience I would be asking for an MRI of the abdomen/pelvis ,MRI's are very precise when read by a Radiologist that specializes in GYN/ONC, My wife went to a radiology practice that does all types of MRI's and the Radiologist read her MRI as a fibroid. I then took her to Sloan Kettering in NYC to see a GYN/ONC surgeon Dr Carol Brown who had the MRI repeated by a GYN/ONC Radiologist who called her DX to the tee which was confirmed after surgery.
The best advice you see all over these posts is you have to be your own advocate, be aggresive and stay on top of your phycicians. Get copies of all your tests/results. Post with any other questions you have this site has some very knowledgeable people on it. I wish you all the best
Kevin
.