Yes i'll let you know I am going to see my consultant on Thursday so only 2 days to go.
I am 33.
It is a gyn onc that i am seeing and was that did the op too.I had not heard of MPSC, so if chemo dosen't work on that is there nothing they can do for that type?
Hi Jo33, you should see if you can get a copy of your pathology report. Casey is right the borderline pathology is a tough one - make sure to get a second opinion from a gyn-pathologist. There are two kinds of Borderline ovca - one is LMP and the other is MPSC. LMP rarely if ever returns and doesn't require chemo. MPSC is more agressive and rarely responds to chemo.
You should also get a referral to a gyn-oncologist.
I was diag. with LMP borderline ovarian cancer stage 1 in 2002 at age 33. Drs did't think it was cancer but I had a frozen section pathology and it indicated borderline ovarian cancer. It was recommended when I was ready to have a hysterectomy. I opted for it a year and a half later. Now a days for LMP drs don't often recommend a hysterectomy. I thought better safe than sorry.
I hope everything goes well for you and know how confusing this is for you.
Take care and let us know how you make out.
Debbie
Yes, I had complete hysterectomy (TAH/BSO/LND) on Aug. 13 '07. They did frozen path during surgery and determined tumor was LMP. So gyn onc did pretty much complete sampling of omentum, lymph nodes, pelvic wash, to determine if tumor cells had spread, which they have not (thank God!). This is recommended surgery, unless you want t preserve fertility, then they can remove only the diseased ovary.
Are you seeing a Gyn Onc?
Cisplatin and Taxatere are chemo drugs given via a pump. Yes I did have the hysterectomy and one of the ovaries was removed at that time.
Did a Gyn Onc do your first surgery? If not you need to get to one ASAP and have one review your surgical and pathology reports. You should request these from the hospital where the original surgery was done. This is very important.
Do you know how to find a gynecologic oncologist? They are experts at diagnosing and treating tumors and cancers of gynecologic nature. You need to make sure it is not full malignant and that it has not spread.
Thanks for all the info. I have looked on the websites and found them really interesting.
I just want to know what my results are now, you try and diagnose yourself don't you but I suppose until you know what stage you are you can't. At the moment I am expecting the worse but suppose thats natural.
I haven't had my CA 125 done since my op but before it was 232.
Jlyer what is Cisplatin and Taxatere, are these tablets or is it a form of Chemo? Also have you both had hysterectomies?