272338 tn?1252280404


  Hi! I just wanted you all to know that I haven't forgotten you. I have been sick the last week or so. Not real sure what is wrong, it may just be the chemo. But my CA125 has jumped sky high for some reason, from 1344 to up over 3000 in just 2 weeks. Don't know whats up with that. But my Dr is with holding chemo and I go in for a CT scan tomorrow so maybe we can find out what is going on. I will try to get some of my notes and messages answered this evening as it is hard telling what I will feel like tomorrow. Hopefully this will all pass.
  Anyway, I am not just letting things go. I am still recieving bids for our hotel plus I have been in touch with the American Cancer Society who was so much help for us last year
   For those of you who want to come but are worried about hotel finances, many of the hotels I have seen will let you have up to 4 per room. Even if they will only allow 2, I am sure that we can get around that. And those of you either flying in or taking the train, please do not worry as we will make sure that you will have a ride. I am trying my best to make this as inexpensive as I possibly can for everyone.
   I want you all to know how very excited I am that so many are planning on coming. I just hope that everyone who wants to will be able. I will try my best on the financial end of things and as I said, those of us driving will make sure that cabs and such are not needed. I will probably wait until the middle of next month before I actually decide on and try to get the rooms reserved for the hotel so that will help give everyone a little time to figure out if they can come. When I decide for sure I will post the price per night and all of the info that you will need.
   Well I just wanted to update you all and let you know that I am still working on things even though I have not been on this week. I just have not felt up to it. But this will happen no matter what, you can count on that!
     Love you all,
9 Responses
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107366 tn?1305680375
If you're planning to go, please read my latest journal.


Helpful - 0
329994 tn?1301663248
HI Chris,
Just got back from CA. I didn't know you had all this going on. Do you have the results of your CT yet? Let me know, I am concerned for you. Always in my prayers, Colleen
Helpful - 0
398758 tn?1248220291
Did you get your CT scan results? Please keep us posted, OK?  You are such a positive voice on this forum.  We all care about you so much.  How  can we help you?
Helpful - 0
155056 tn?1333638688
Chris - please take care of yourself and let us know what the CT Scan shows.
Keeping everything crossed that all is okay!!!
Helpful - 0
801514 tn?1273676786
Hope you get to feeling better, and the CT scan results are good.  I'm sure they're going to check for inflammation and infection as well.  They both wreck havoc with the CA-125.

Looking forward to Chicago.

Helpful - 0
408448 tn?1286883821
Thanks for the update.  Sorry you have been feeling sick.  I am really looking forward to this.  Marie
Helpful - 0
523728 tn?1264621521
Thinking of you, hoping you feel better in a day or two.  
Helpful - 0
Avatar universal
Dear Chris,
I'm sorry to hear that you haven't been feeling well, I hope that whatever is causing the problem is discovered and treated quickly.

I think about you and feel concern when I don't see you posting for a while.

Feel better,
Helpful - 0
167426 tn?1254086235
So sorry you are feeling poorly, I wanted to let you know that I will come to Chicago, if just to meet you, and of course the others, I remember one nurses convention I went to, years ago, there were 7 of us in one room, I slept in the bathtub,  2 sleeping bags  , a pillow  and some wine and I slept well.   LOL
Helpful - 0
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