Alla
All of us have carcinoma. These reports are complicated. Few doctors translate them word for word. I thought I had germ cell because a study I was in said germ cell like which turns out is different than germ cell. I asked an my doctor explained I do not have germ cell.
Alex
Thanks, Alex.
I looked again at my biopsy report and googled for "carcinoma" definition. It means specifically "epithelian" and I thought it meant any cancer cell. Stupid me! One have to keep learning, that is the lesson. Thanks again, Alla
They found the clear cell when they put the cells under a microscope during my surgery and then again when they did the Pathology. They would have found it with your original biopsy. The cells look clear. Only 5% of the 2% of women who get ovarian have clear cell. It usually does not respond to chemo but thank God in my case chemo has worked well. I do not think you have to worry.
Keep me posted as to how it goes.
Alex
Thanks, Alex. I went to my infusion today, hauling a cooler with ice packs. It went well, swelling and redness as usual but not getting worse so far. I have another question for you. In an earlier post, you mentioned that you have a rare form of OC, germ or clear cell. What test did they do to determine that? I read my biopsy reports (one from my ascites fluid, another -postoperative) and there is no mentioning of the type of cells. I wonder if such tests are available in a university based clinics but not in the run-of-the-mill regional hospitals (as you mentioned you are with Duke). I really admire your strength and positiveness in going through life with this illness and wish you all the best.
I had the worst case scenario with Doxil. It was like a sunburn all over. Blisters that popped. I was on vacation and did not tell my doctors in time.They reduced the dosage and I took oral steroids starting the day of my infusion and no more issues. I did the steroids from then on with no more issues. I was on Doxil for over a year. Yes the issues go away with in weeks or a month and never come back. It is not permanent. You can also put ice packs on your hands and feet during chemo.
Alex