Complex Cyst with Papillary Excrescences ?????

[Cagney2712]

My most recent ultrasound report states " Complex right ovarian cyst with Papillary Excrescences" ; also, "doppler indicates vascular flow within the excrescences."  The cyst measures 5.2x5.0x4.9 cm. At my appointment last week with my gyn. oncologist, she didn't seem to feel this was anything indicating an "urgent" need for surgery.  She even said I could, if I wanted, wait and repeat the ultrasound again in a month. After further discussion, I decided I didn't want to just wait, I wanted that sucker out of there! But I suppose I felt a little "reassured" that she didn't indicate those finding necessarily meant something "bad."

Long story short- My surgery is not yet scheduled; I meet with another gyn on 1/8 to see if laparoscopic surgery is an option and, if so, he and my onc. would do the surgery together. I'm honestly not sure yet whether laparoscopy or laparotomy is the best way to go. But, my big question for today is -  Has anyone had similar US findings (ie. a complex cyst with papillary excrescences), and it still turned out to be benign???

I couldn't help it- I did some web searches, and the stuff I read all seemed to say that papillary excrescences are alot more indicative of a malignant than a benign cyst. So, I've gone from feeling a little reassured, to big time scared again!!
And if what I read said it was suggestive of malignancy, why the heck does my gyn onc not seem more concerned, and not recommending surgery quickly??

Karen

[toadster]

Hi cyster!   THree weeks ago I was in EXACTLY the same position you are going through now.  Complex cyst 7.2 cms, with papilliary growth, fluid, blood, you name it.   I did not like my gyn/oncs face that much he was just non committal period as you know thats all these specialists do and see ..I went onthe internet and scared the ******* out of myself to the point I had literally had myself diagnosed with the worst   - long story short, had full radical hysterectomy on my docs advice as I am 52 and just abut menopausal, he still gave me the option of a laporatomy, but I went the best way for myself personally.,
Dec 9th had it ALL taken out and that huge honkin alien was ONE HUNDRED per cent benign.   If I can give you any advice from my own sily lesson I learned is stay away from all those articles with that ugly papillary word  - it obviousy can mean NOTHING!!!!  Im so glad you are going ahead with it you will feel so MUCH BETTER once that thing is GONE!!!!!    Post anytime you wish, I only wantto help gals  like yourself as I had so much love prayers and support and I shall be ever greatful.   Remember the stats are ON YOUR SIDE IN YOUR FAVOUR.
Just tell yourself that over and over.
Blessing and Mery Christmas, try.......to enjoy the holidays!!!Best wishes,, Kathy

[toadster]

Hi cyster!   THree weeks ago I was in EXACTLY the same position you are going through now.  Complex cyst 7.2 cms, with papilliary growth, fluid, blood, you name it.   I did not like my gyn/oncs face that much he was just non committal period as you know thats all these specialists do and see ..I went onthe internet and scared the ******* out of myself to the point I had literally had myself diagnosed with the worst   - long story short, had full radical hysterectomy on my docs advice as I am 52 and just abut menopausal, he still gave me the option of a laporatomy, but I went the best way for myself personally.,
Dec 9th had it ALL taken out and that huge honkin alien was ONE HUNDRED per cent benign.   If I can give you any advice from my own sily lesson I learned is stay away from all those articles with that ugly papillary word  - it obviousy can mean NOTHING!!!!  Im so glad you are going ahead with it you will feel so MUCH BETTER once that thing is GONE!!!!!    Post anytime you wish, I only wantto help gals  like yourself as I had so much love prayers and support and I shall be ever greatful.   Remember the stats are ON YOUR SIDE IN YOUR FAVOUR.
Just tell yourself that over and over.
Blessing and Mery Christmas, try.......to enjoy the holidays!!!Best wishes,, Kathy

[Cagney2712]

Thanks Toadster; Your message did make me feel a bit more relieved. I should just stop looking stuff up on-line :-) I swear they must just put the worst case scenarios on there!!
It's so good to hear you had what sounds like the same thing as me, and that big alien was totally benign.

At 52, I made the decision to also just get everything out. I'm not looking forward to being suddenly in menopause, and ther "issues" related to that, but I don't want to just keep waiting and wondering. I am going to meet with the gyn re: possible laparoscopic surgery, but right now I think I'm more inclined to tell them to just do the laparotomy- take a GOOD look around in there, and be done with it.

Sooo, since you got everything out, have you now been having hot flashes, night sweats, mood swings, etc.?? I just wondering what I have to look forward to.

Karen

[Cagney2712]

Thanks for sharing. I'm being seen by a gyn oncologist who specializes in ovarian cancer at the UPMC Magee Hospital Gyn Cancer Center. I know this is one of the top places, and from everything I've researched about my onc., she's certainly well qualified and no doubt has seen it all. But man, when you read that US Report, and then start "googling" things like "papillary excrescences," it's so hard not to get scared, and to question why the onc. doesn't seem as concerned as I am.
I know that most of the time it ends up being benign, but when you know you have an "alien thing" inside, you wonder if every day spent waiting is just another day for the "thing" to spread.

I'm so glad your's was benign. I'm trying to stay as objective and positive as I can,  but the next 2 weeks until I'm seen by the laparoscopic surgeon are going to seem soooooooo long!

Karen

[MickeyVicki]

I don't blame you for wanting to get that 'thing' out of there!  I was in a similar position in December 2004.  My ovarian mass description had "cancer" written all over it.  Still, my doctor, a  very reputable gyn specialist, did not feel any need to rush my surgery.  She also recommended starting with a laparoscopic procedure, with a shift to the larger laparotomy only if cancer cells were found at surgery.

Despite my fears, the mass was not malignant, and was nothing more than a very  large endometrioma.   That was exactly what my doctor predicted it would be after her review of my ultrasound report.   You have to remember that the specialists have seen so much, and do not have the emotional aspect of the patient, that they often have a better feel for these things.  Still... if there is no reason to wait, then you might find the situation less mentally taxing if you go ahead and get it out of there.