Hello...I feel that you will get lots of suggestions and thoughts on this question, and you are right, this beast does tend to return at some stage, but then one can go for years with it being treated as a chronic disease, so never give up even if it does return in the near future. Your Mum could be one of the lucky people, who can go for years before is shows any sign of returning. With diet etc... personally I don't take any extra vitamins or supplements, but just opt to eat healthy. I know some ladies don't advocate sugar, dairy or red meat, but I just think that once we are dx with this disease, what we eat doesn't seem to make much difference with the outcome, but maybe the extras help in staying well enough to deal with the chemo and side affects of it. I know ladies down here who have all sorts of vitamins and supplements, organic food etc.. and have been strict with that intake, but still the beast has returned, so I don't know. I guess we all have our own ideas on how to deal with it. I eat red meat... on the advice of my Oncol. I also eat icecream, have milk in my tea and coffee, and I eat sweets....especially dark chocolate... and I seem to be going o.k. Dx Stage 4 Feb'04.
I think as long as your Mum eat lots of fruit and veggies, (I do).. and has a good 'across the board' diet, and if she feels that by taking some 'extras' that will help, then that's the way to go. It's a personal choice on how we combat this disease, and we do what we feel is right for us, as we are individuals.
I just want to wish your Mum all the best, and I hope she continues to do well. The low CA.125 after only two treatments is very encouraging, and hopefully will go onto a long remission for her.
All the best...hugs...Helen...
Well I am one that takes alot of supplements and am currently once a week havein 75 grams of vit c intravenous. I take E B comple 90 Co Q10, 4,000 ginger, 1 gram c, myatake mushrooms, Who knows but I want to stay strong and healthy. good luck.
I'm working on an article that actually addresses your questions, but for now:
1) Maitake D-Fraction: Get the Grifron Pro version from www.maitake.com. It's the one used for and applied for IND status in the FDA Phase II trials. Because it's not FDA approved yet, no cancer cures can be made. Boosts immune system which is believed to relate to anti-tumor activity. It's one of the safest ones you can take if you don't have an autoimmune disorder. Large cancer treatment centers allow it above anything else. In addition it's the only beta-glucan you can take orally *effectively*. Other medicinal mushrooms must be injected for optimum 'anticancer' activity (which is done in Japan)
2) Vitamin C: Especially helpful with Maitake D-Fraction, the 1000mg range is correct. Synergetic Effect.
3) CoQ10: Perfect...you are looking towards 390mg per day. Some people split it up. You can build yourself up to that level, say 100mg a day and progressing upwards to the 390mg. I have an article on it here:
Genistien & I3C
Omega 3 (Fish Oil)
Now, when she goes into remission...you can lay off quite a bit...for example Grifron Pro Maitake D-Fraction can be replaced by the standard Maitake D-Fraction at non-therapudic dosage. CoQ10 can be scaled down to about 90mg/day instead of 390.
The fact she is in 'remission' with a ca125 of '4' after treatment 3 is a good indicator of success. Many oncologists want to see remission by cycle 3...my mom never has been in remission nor a few other people in this forum.
Keep the cancer at bay (yes, it's still there). She may want to look into the vaccine trials or other trials aimed at keeping the cancer at bay (they are out there). But it's great you are looking into the natural methods as well...as wonderful as chemotherapy drugs are, they are still toxic and take a toll on the body and we are seeing more and more 'natural' based chemo's by the pharms (for example Soy Genestein which has activity in ovarian cancer was modified into a drug called Phenoxodiol that is in Phase III trials right now for ovca).
Hi Alan... I'm just curious...nothing else, but wondering is your Mum on the above? If she is taking these 'extras' how are they working for her? I've not taken any 'extras' at all, but wondering if any of that stuff that you seem to promote, does actually work? :-) I hope your Mum is doing well, and things are going good for her now. hugs...Helen...
Hi! Actually mom has only rarely been able to take them and even then she is pretty traditional and only wants chemo (she doesn't like to do pills). However when I introduced her to some stuff her symptoms improve. For example she takes Melatonin (3mg) and that finally helped her sleep so she didn't need the prescription one. She does Maitake D-Fraction (MDF), but not as much as I would like. When she had her J-Tube, I could put it directly ino\to her Jejunum and we had good results. However after that was taken out, it was tougher with her constant vomitting and such, so it was unknown how much was reaching the intestines where it needs to go to get absorbed. So it's tough to determine if they work on her, although the one month we routinely used MDF via J-Tube was enouraging.
Basically it's tough for her to take any of the above because of her gut; she's on TPN and PCA right now because of it.