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EVERYBODY PLEASE READ
I have been toying with the idea of starting a registry among us so that in the event that one of our "sisters" needs someone to be with them IRL we will have a list of people we can call in their city. Most of us remember our little friend in CA who could have used a lot of support and at the last minute we were scambling around trying to find someone to help her. Now there are other women who are having to face this alone or pretty much alone and that should not be the case. We are so loving and supportive on this forum, I don't see why we should not carry that over into RL. I have thought of several good and safe ways this could be done so now I just want to know if you all would be willing to participate. If the response is enough I will post my ideas on how it could be done and I would like your input as well. I am an organizer by nature and usually pretty good at getting people to come together for a good cause. We are always looking for ways to help the cause of OVCA and being there for one of our own is a great way to start. Thanks
Love,
Jan
Love,
Jan
I am so glad he is in remission. Going to the hospital for treatments together does not constitute a date:) I am sure he will get his #'s down and I am equally sure that with your grit you are taking care of him as best you can.
There are a lot of cracks about churches here but EVERYBODY goes. Or at least they say they do!!
Okay, so now we're talking. I thought it was your standard meat and 3 church lady food. Which is always good food, but you can't beat gourmet either. Food prep is a problem for me because of this bad chemo brain stuff and I almost set the house on fire twice in 18 hours. The smoke was so thick even firemen wouldn't have come in without masks. I am just dangerous. Also with the low platelets I have gotten kind of afraid to cook with knives and such. Sometimes i can eat but can't stand the smell of the food cooking so I do understand your cooking issues. Man it really sucks cause I LOVE to cook.
Yes, we all pretty much feel that way with chemo. Some more than others and with some the effects depend on the type of chemo. It IS harder as it accumulates in your system. My first go round I was in the hospital after my 3rd treatment for dehydration and and after 5th. I still have stuff in me my from my first go round with Carbo/Taxol and now the Gemzar. My chemo nurse even said that she can tell a first time chemo patient all of the possible side effects of the C/T drugs, but after that she doesn't know. There haven't been enough studies done on the side effects of second and third line drugs when there has been a short remission.
You are darn tooting it is worth it. We will not only endure we will THRIVE!!!!!!!
Please read my lastest post. It is really from my husband and this man that has a really hard time communicating had me in tears. It is a must read.
Have a good day (by time you get this)
Jan
There are a lot of cracks about churches here but EVERYBODY goes. Or at least they say they do!!
Okay, so now we're talking. I thought it was your standard meat and 3 church lady food. Which is always good food, but you can't beat gourmet either. Food prep is a problem for me because of this bad chemo brain stuff and I almost set the house on fire twice in 18 hours. The smoke was so thick even firemen wouldn't have come in without masks. I am just dangerous. Also with the low platelets I have gotten kind of afraid to cook with knives and such. Sometimes i can eat but can't stand the smell of the food cooking so I do understand your cooking issues. Man it really sucks cause I LOVE to cook.
Yes, we all pretty much feel that way with chemo. Some more than others and with some the effects depend on the type of chemo. It IS harder as it accumulates in your system. My first go round I was in the hospital after my 3rd treatment for dehydration and and after 5th. I still have stuff in me my from my first go round with Carbo/Taxol and now the Gemzar. My chemo nurse even said that she can tell a first time chemo patient all of the possible side effects of the C/T drugs, but after that she doesn't know. There haven't been enough studies done on the side effects of second and third line drugs when there has been a short remission.
You are darn tooting it is worth it. We will not only endure we will THRIVE!!!!!!!
Please read my lastest post. It is really from my husband and this man that has a really hard time communicating had me in tears. It is a must read.
Have a good day (by time you get this)
Jan
My husband is still in remission. However, his IGG counts. (comparable to CA125), have been slowly rising. I keep asking God to help me get my strength back so that if his health changes, I will be able to take care of him. He is taking care of me right now.
LOL of course a Church of Christ is fine with me. My husband is from here, but I am orignally from Georgia. I had never heard of C of C until I moved here. I love all the jokes about this church vs. that church that I hear in Tennessee. I also attend church, so I could take the food there. There is no need for you to have to come do that for me. Thank you anyway. I just felt that this type food would be better used if it is taken directly to a family in need. It's enough for four main dishes for two to four people. Do you need any food? I'm not kidding. I could bring it to you, or my daughter could. It's not run-of-the-meal Southern food. It's dishes like manicotti, quiche, etc. This friend of mine who prepared it used to own a catering biz. I believe I told you in an email, that food prep is a major problem for me and I bet it is for others in the same situation.
I'm about to go through the few days a month that I feel ok. Do any of you find that as the treatments progress, the recovery time is longer? It's been this way for me. I'm fine the day of and the day following the treatment. Then it hits and I am bedridden for about four days. Then another four days or so is spent trying to get my strength back up. My legs feel like rubber for about eight days or so. I will have to end this topic with: It's WORTH IT though. I want to live as long as I can. Therefore, I know I have to endure these treatments and make the best of it.
Teresa
LOL of course a Church of Christ is fine with me. My husband is from here, but I am orignally from Georgia. I had never heard of C of C until I moved here. I love all the jokes about this church vs. that church that I hear in Tennessee. I also attend church, so I could take the food there. There is no need for you to have to come do that for me. Thank you anyway. I just felt that this type food would be better used if it is taken directly to a family in need. It's enough for four main dishes for two to four people. Do you need any food? I'm not kidding. I could bring it to you, or my daughter could. It's not run-of-the-meal Southern food. It's dishes like manicotti, quiche, etc. This friend of mine who prepared it used to own a catering biz. I believe I told you in an email, that food prep is a major problem for me and I bet it is for others in the same situation.
I'm about to go through the few days a month that I feel ok. Do any of you find that as the treatments progress, the recovery time is longer? It's been this way for me. I'm fine the day of and the day following the treatment. Then it hits and I am bedridden for about four days. Then another four days or so is spent trying to get my strength back up. My legs feel like rubber for about eight days or so. I will have to end this topic with: It's WORTH IT though. I want to live as long as I can. Therefore, I know I have to endure these treatments and make the best of it.
Teresa
I am so glad to see that you are feeling better. You were out of touch for awhile and it is good to have you back.
We have a benevolence center at our church that provides meals for individuals and families and if you want to give the extras to that you are only 10 minutes away from me. I'll come pick it up and take it to the church. It is a Church of Christ if that is alright. Hey, some people are picky, but you know Tn, if it isn't CofC it is Baptist. :) :) Okay one or two Methodists
I really am glad that you are feeling more like your old self. I know how tough your life is right now. Yes, it will get better. How's your husband?
Jan
We have a benevolence center at our church that provides meals for individuals and families and if you want to give the extras to that you are only 10 minutes away from me. I'll come pick it up and take it to the church. It is a Church of Christ if that is alright. Hey, some people are picky, but you know Tn, if it isn't CofC it is Baptist. :) :) Okay one or two Methodists
I really am glad that you are feeling more like your old self. I know how tough your life is right now. Yes, it will get better. How's your husband?
Jan
Jan,
Count me in too! I would love to be involved in helping anyone. In fact, I have a strong NEED to help others right now.
As an example: I recently had a dear friend who is a gourmet cook, send over oodles of food. She sent so much for my husband and me we will never be able to eat all portions of each dish. She froze it, so it could easily be given to another family in need. All I would have to do, is divide it and take it to the person (s) in need. Believe it or not, I have no one that I know of in my area who is in need of meals due to the inability to cook. The preparation of meals has been a major problem for me since my diagnosis and surgery.
I have been very puny since beginning chemo treatments. I barely get my strength back and it's time for another one. But, I am half way through now and will be willing and able to help anyone I can in the near future. I think some of you gals are Wonder Woman or close to it to be able to go to work while having these treatments!!! I admire anyone who can function physically during these things. I want to help anyone I can and I want to get started ASAP.
Let me know what you need from me. I'd be happy to provide the information needed for you to get a list started. It seems there are quite a few of us here who are from Tennessee. Surely, there are needs you gals might have that I can provide assistance.
Oh! and thank you Jan for continuing to ask folks to provide some information on their profiles. There is no way to even remember who a person is posting if there is no information provided to jog our memories of who that person might be. I'm going to update my information right now too!
Teresa
Count me in too! I would love to be involved in helping anyone. In fact, I have a strong NEED to help others right now.
As an example: I recently had a dear friend who is a gourmet cook, send over oodles of food. She sent so much for my husband and me we will never be able to eat all portions of each dish. She froze it, so it could easily be given to another family in need. All I would have to do, is divide it and take it to the person (s) in need. Believe it or not, I have no one that I know of in my area who is in need of meals due to the inability to cook. The preparation of meals has been a major problem for me since my diagnosis and surgery.
I have been very puny since beginning chemo treatments. I barely get my strength back and it's time for another one. But, I am half way through now and will be willing and able to help anyone I can in the near future. I think some of you gals are Wonder Woman or close to it to be able to go to work while having these treatments!!! I admire anyone who can function physically during these things. I want to help anyone I can and I want to get started ASAP.
Let me know what you need from me. I'd be happy to provide the information needed for you to get a list started. It seems there are quite a few of us here who are from Tennessee. Surely, there are needs you gals might have that I can provide assistance.
Oh! and thank you Jan for continuing to ask folks to provide some information on their profiles. There is no way to even remember who a person is posting if there is no information provided to jog our memories of who that person might be. I'm going to update my information right now too!
Teresa
Again I am just overwhelmed. THIS is what this forum is. I would have gone crazy without the supportive, loving, strong, courageous, exceptionally decent women on here.
Thank you all so much for putting profiles and making it easier for me to contact you.
I am going to work on the list tomorrow. I was thinking that we could divide the country/world into areas and each area would be responsible for keeping up with each other and arranging visits, phone calls, or other help as agreed to. It is impossible for any one of us to keep up with everybody as there are just so many. So, for those of you who are bored out of their minds I would like to have a few regional/area leaders who could be responsible for keeping up with the folks in your area. Your job would be to keep a list of those in your area who want a phone call and or a visit and try to set the recipient up with someone they know on here or seem comfortable with. Or to just send out the call to all of those in your area. Most people don't like asking for help, or don't want to admit that they are afraid so we have to ask them and than try to make it happen.
But to keep us all connected, I would also like the area leader to post a Greeting Card to the person going in the hospital or whatever and after we all post our well wishes, one person will call or visit and read them their card. It only makes sense to do things in reasonable areas, but everyone can "sign" the card.
To those bored people and IT guys :) and all those who offered help, I will be sending you an email after I see how the areas divide up.
Y'all have a good evening/day depending on where you are.
Jan
Thank you all so much for putting profiles and making it easier for me to contact you.
I am going to work on the list tomorrow. I was thinking that we could divide the country/world into areas and each area would be responsible for keeping up with each other and arranging visits, phone calls, or other help as agreed to. It is impossible for any one of us to keep up with everybody as there are just so many. So, for those of you who are bored out of their minds I would like to have a few regional/area leaders who could be responsible for keeping up with the folks in your area. Your job would be to keep a list of those in your area who want a phone call and or a visit and try to set the recipient up with someone they know on here or seem comfortable with. Or to just send out the call to all of those in your area. Most people don't like asking for help, or don't want to admit that they are afraid so we have to ask them and than try to make it happen.
But to keep us all connected, I would also like the area leader to post a Greeting Card to the person going in the hospital or whatever and after we all post our well wishes, one person will call or visit and read them their card. It only makes sense to do things in reasonable areas, but everyone can "sign" the card.
To those bored people and IT guys :) and all those who offered help, I will be sending you an email after I see how the areas divide up.
Y'all have a good evening/day depending on where you are.
Jan
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