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194838 tn?1303432144

Follow up

Hi Dr Goodman,

I was dx with stage 1A Clear cell carcinoma in April 05, after surgery my ca125 was 10 and has been between 7 and 10 since my 6 cycles of chemo. My cancer was from Endometriosis that had turned malignant , I also had several very large Fibroids and Ovarian cysts.
I have now been discharged from my Oncologist who has written to my GP so that I can carry on having a ca125 blood test every 6 months (I had to insist on that). My question is, do you think that this is enough ? what are the chances of reccurance after 5 1/2 years  ?  and although my ca125 was 500 at diagnosis could that have just been from the Endo,Fibroids and Cysts?  .D o you think the ca125 would pick up a reccurance in my case?.
Thankyou so much in advance.

Best wishes

Regards
Angie
5 Responses
242604 tn?1328124825
MEDICAL PROFESSIONAL
Dear Angie
thank you for your excellent question. Medical folks have been debating the role and frequency of follow up after a cancer diagnosis for a long time.
The standard answer is that
75% of recurrences happen in the first 2 years; 90% occurr by 5 years
so follow up is fashioned as follows:

exams and CA 125 tests every 3-4 months for the first three years
exama and CA125 every 6 months for the next 2 years

at 5 years exams and testing could be yearly
however for women with ovarian cancer, I usually recommend continued every six month surveillance

there is not alot of data one way or the other to support this recommendation

CA 125 is thought to be a good test for evaluation of recurrence.  I think it is also important to be sure you are getting screening for other cancers such as breast and colon

best wishes and please stay in touch
194838 tn?1303432144
Dear Dr Goodman,

Thankyou so much for answering my question, you are very generous with your time and it is very much appreciated.

Thanks again
Best wishes
Angie
136849 tn?1327325110
Hello there.  I too was diagnosed in 2006, Stage 1A Clear Cell, had excellent surgery (complete TAH/BSO) only positive cancer was found on inside of one cyst on right ovary, six cycles of chemo, CA 125 has always hovered between 3 and 7.  Have PET/CT scans routinely, routine physician visits, CA125, etc, but I was a bit disturbed to see that you say that there is a 90% chance of re-occurence at 5 years? 75% before that?  I know there isn't a crystal ball, but I've never seen those type of stats before and it was a bit unnerving.  I know to keep monitoring on breast (get routine mammos) and I know I should be getting a colonoscopy sooner (I am 44), but should I be doing something else? Thanks for any additional information you can provide.  Jane
242604 tn?1328124825
MEDICAL PROFESSIONAL
Hi Jane
thank youso much  for your question. You are right to ask for a clarification

statistics can be very confusing and misleading.

actually: for the people with cancer who EXPERIENCE a recurrence,
75% will have their recurrence by two years and 90 % will have a recurrences by 5 years.

that is different than saying: of everyone who has a cancer, 75% will  recur in 2 years etc
clearly, that is not the case.

I do not think wrote this very clearly in my last post and I apologize for the confusion!!  Thank you for speaking up!
take care
136849 tn?1327325110
No apologizes necessary, Angie automatically knew what you were talking about, I was being thickheaded or mis-interrupting what I was reading.  Well I am 4 1/2 years out, keeping my fingers crossed and slowing sneaking up on that 5 year magic marker.  Hope and pray it stays behind me forever.  Thank you so much for responding.
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