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Ovarian Cancer Community
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136849 tn?1327321510

Gail

Gail, my old friend, I see you posting, how are you?  How have you been?  I just don't see too many of the "old gang" on here for many reasons.  Good to see you post.

Jane
3 Responses
107366 tn?1305680375
COMMUNITY LEADER
Hi Jane! I'm doing pretty well. Still fighting the beast 7 1/2 years later, but it's better than the alternative. I lurk in the forum, but rarely post. I should get back into it, however.

I'm almost a year out from my last surgery and so far, no more tumors have formed. I still have cells floating around but since I'm low grade, it takes a while for them to show up.

I have exhausted the hormone rout and now all that's left is clinical tria and now all that's left is clinical trials.
107366 tn?1305680375
COMMUNITY LEADER
Sorry, hit post too soon.

My Onc sent tissue samples from surgery to be genetically tested. We found out I have 2 gene abnormalities, but only 1 is significant as far as OvCa goes. There is a clinical trial out there...MEK Inhibitor... but it requires lots of time spent at MD Anderson. I simply can't afford the time away from work so he's looking to see if anyone closer to home is doing it.

I was just in Houston last week, and although scans are clear, my CA 125 is more than 300. It's always been a good indicator for me, so I'm hoping a trial works out.

How are you? Are you in treatment now? Good to hear from you!

Gail
136849 tn?1327321510
I too lurk around.  I am working on myself, wow what approaching 7 years at the end of this month.  I am getting ready to have another PET/CT scan in a couple weeks and I pray that it is clear, but it's not quite 2 1/2 years since surgery and 12 cycles of additional chemo since the re-occurence.  I always have the "ole gals" in the back of my mind and wonder how they are doing.  Sadly I know we have lost a few.  I am glad to know you are still fighting this beast, and bless your heart, still working full time, as I do the same, work about 50-60 hour week.  Weebles Wobble but we Don't Fall Down!!
I keep you in my thoughts and Prayers!!

Jane
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