How fast can an Endometrioma grow??

[crazyladi99]

Just wondering if anyone can shed some light on how fast an endometrioma cyst can grow.  I have surgery in May and the cyst as of Jan 21st was 10.20cm can it grow alot more?

[nickahaley]

i have endometrioma right now..its less than 3cm but im kinda worried b/c i want to have children...i want to know if its safe to get pregnant while having endo...

[happysnapper]

Hi Claire

Yours sounds about the same size as mine (15x13x8cms) - also on my R ovary.  Unluckily for me I am in the UK so I am w.a.i.t.i.n.g. for a op date having been diagnosed in early February this year.  I have a max of 16 more weeks to wait for my op but will hopefully not have to wait that long!

I am 30 by the way and have no children, so I don't want to have a hysterectomy.  Perhaps it would be unwise for you to have one if its not needed because of losing those valuable hormones and having to go on HRT at such a young age.  maybe some of the other ladies can advise you.  have you spoken to the doctor about the liklihood of recurrance?  If the liklihood is very low then would you still want a full hysterectomy?

Can I ask you what kinds of symptoms you have?  I created a post here http://www.medhelp.org/posts/show/461615 but no one has replied yet :o(  I just want to know if some of my symptoms might be caused by other things?

Hope this helps!

G

[frosty1608]

just found this site as a couple of weeks ago i was diognosed with endometioma, i had my scan done and they said it was 10-15 cm x 4-7cm. I've had my appointment today and they've said that they won't be able to save my right ovary, but i'm in two minds whether to ask for a full hysterectomy as although i'm quite young i definately won't be having anymore children, i'm quite scared to be honest, we was supposed to be going on holiday in july and i said couldn't i wait till i come back but they said definately not as a probably be rushed in as an emergency case if i left it for much longer.

Thanks for listening and if you have any afvice or something i'd be very grateful.

Claire

[DesperateEndo]

I was diagnosed with Endometriosis at age 17 when I stopped having my period for 4 months.  At the time I had a 5CM endometrioma that consumed my left ovary and they removed it.  Afterwards I was on BC pills until age 32 which kept any more cysts from forming.  I stopped taking the pill after I got married because my husband and I are trying to have a baby.  We tried unsuccessfully for over a year and I have been recently diagnosed as having an 11 cm endometrial mass with 4 independent cysts growing inside it.  The mass is attached to my remaining right ovary and is behind my uterus.  401 MRI images later they still can not tell how involved my uterus is.  Additionally, I have 3 small endometioma in my cervix and a 4 cm endomitrioma growing at the site of where my left ovary was removed.  Since April 24 the pain has been so excruciating that most days I am unable to walk, and I sit and cry and cry.  Obviously, I have been unable to work and I am out of sick days, and vacaton days.  I've already been told that to stimulate my right ovary prior to surgery is too risky as they don't think I'll make the next 4 weeks, and because they think there is a chance that the endometriosis could be cancer and stimulation would only accelerate and spread cancer should it be there.  I'm devasted knowing that there is now almost no chance of me ever having children.  I'm going to a new Oncology Gyno on Monday, as the current Oncologist I was referred to doesn't even return my calls.  I appreciate reading all your posts and knowing that I am not alone.  

[CrystalLL]

I'm happy to hear any of your stories, some make me feel better, others make me worry more!  I'm a chronic worrier as it is....
I stopped nursing my daughter in August 2006, and that's when my periods started becoming weird.  I had my period while nursing, so it was strange to me that they suddenly would be different, but i just chocked it up to crazy hormones.  About 2 months ago, i had sudden abdominal pain, and thought my IUD was misplaced or something.  The doctor took me that day, did an ultrasound and thought i had a ruptured cyst.  The next day i had a more formal u/s, and they revealed an endometrioma with "fluid" on the u/s as well.  They thought it was a bleeding cyst, the blood would reabsorb after a few days and i would feel better.  i did feel better.  After 6 weeks i went for a f/u u/s, and the stuff remains the same.  The cyst is only 2.5 cm, small compared to some i'm reading about!  I go see the MD again on Monday to have my yearly exam and to discuss options.  I think i may go ahead and get a laparoscopy, I'm not concerned about saving the ovary, we're done having kids.  I just worry about this "fluid" they see, is the the endometriosis?  I have been reading tons of stuff on the internet, but for some reason it isn't all clear to me!    I'm terrified that it's cancer.  I've had some other medical issues lately, poor circulation in my toes, GERD (which i've had for years), and just constant worry.  Any encouragine words would be appreciated!  BTW, i'm 33 and have 2 kids.

[nntanya]

I just had my endometrioma removed last week. You have to be proactive about watching your symptoms. I had noticed mine around Christmas. It felt to me like a bladder infection, and we had been tryign to get pregnant. This wasn't working, so I became suspicious. I went into the doctor on Jan.11th because of lower abdominal pain. He said it felt like my uterus was enlarged, but pregnancy tests came back negative. He just sent me home with an antibiotic. i took it for two weeksand the pain subsided. But it gradually came back. The pain increased, and I started to feel the mass in my lower abdomin. By the first week in march when i went back in because I knew somethign wasn't right..... it had grown to 16cm x 15cm. And could be seen and pushed on. It was found on a Friday and I saw a specialist on Tuesday and had laparoscopy preformed wednesday morning. It had grownso fast that it had crushed  my left ovary and falopian tube and attached itself to multiple places. it had also parcially crushed my right side. They had to reconstruct and shoot dy through to see if it was still open, and then wrap my ovary in a protective coating. Thank goodness, as I am only 28 years old, and was just married 6 months ago. We really want more children, and by waiting so long letting it grow, I almost ruined my chances. They said that the mass was the size of large cantalope. My best advice is to stay on top of your symptoms!!!! they can cause other problems!