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272338 tn?1252280404

I am at a place that I never wanted to be.......

  For right now, I have to make this short and sweet as it is hard to type through the tears. I saw my Dr today ad got the results of Mondays CT scan. Things do not look good. My counts went from 1334 to over 3000 in two weeks and the scan shows rapidly progressing disease. I go in next Mon to have a pic line put in and Wed to start navelbine. He figures that there is only about a 15 to 20 percent chance that chemo will make any significant difference. But I am to keep my hopes up because we just never know.
  
   I promise that we will have our get together in Chicago, if it is the last thing that I ever do.  That is going to happen and I will be there no matter what.
   When I calm down a little bit later on, I will be back on and get my butt in gear. I just wanted to let you all know what was going on. I love each and every one of you.
                  Chris
  
39 Responses
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Avatar universal
Dear Chris,
God love you, and and be with you.

I can't express how sad I am over your news. We all love you and will always be here for you.
Jane
Helpful - 0
822194 tn?1263689103
Hi Chris-
I'm so sorry. thank you for thinking of us and letting us know what's up. when you are ready we are here for you too.
love,
christina
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360216 tn?1218743000
I'm also very sorry to hear about this - you take the time you need to get everything sorted out and you are right - we never know so it's good to hope.  You are in my prayers as always and I'm sending you a cyber hug and a shoulder for your tears.  We all love you too.  Big hugs, the other Chris - Chris P
Helpful - 0
187666 tn?1331173345
Wow, it just knocks the wind out of me. Not sure what to say. Love, hugs and prayers.
irene
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146692 tn?1314331773
I am so sorry I was not home when you called Chris..I am devasted with your news..perhaps you should not worry so much  about Chicago? and concentrate on getting well instead. I know it is important for you to have and attend the get togethers, but am worried it may be too much for you to handle right now. Will talk to you soon,

always
  Tc
Helpful - 0
Avatar universal
Oh Chris,
What can I say. I am just devastated to hear this news. I wish you comfort and please don't stress over the Chicago meeting. Just take care of yourself and ensure you get the rest you need for the next round.
Bron
Helpful - 0
408448 tn?1286883821
Chris,  I have to agree with Tc on this.  It is important that you to take care of you right now.  I cannot think of a person on this forum more loved than you, my dear.  I am sorry that this has happened.  I also feel that you may beat the odds and this navelbine will work.  Do whatever it takes to make you better. If that means resting, rest.  If that means come to Chicago and drink Margaritas with us then do that.  Whatever is the case please know that you are amazing.  Marie
Helpful - 0
483733 tn?1326798446
Chris, my heart is hurting for you.  You have always been one of the strongest ladies here and now it is time for you to receive the support.  Please don't stress about Chicago.  I will do what I can to help you in the planning.  Feel free to email me with anything you need and I'll be on it.

Hugs, Trudie
Helpful - 0
167426 tn?1254086235
My dear Chris,  I am so sorry that you have to face this downturn, I know how important  the Chicago gathering is to you also,  what can some of us do to help you?  let us know ,   If only I had three magic wishes  or a Magic wand, I would use them wisely and you would be the first on my mind.  My thoughts and prayers are with you always,  and will hope that the new chemo kicks some butt with those numbers,   Love  marty
Helpful - 0
194838 tn?1303428544
Dear Chris, I am devastated to read this, I am praying that the navelbine will work. I don,t know what to say other than you are loved and respected by all because you have time for everybody and are one of  a few Ladies that are special to me here.
Sending you lots and lots of love and hugs Chris.

Love Angie
Helpful - 0
415684 tn?1257329318
Oh, Chris, how terribly sorry I am to hear your news.  I will pray that the Navelbine works for you ... 15 to 20% .. and you will be one of them!  There are no words to take away your fear and  pain ... just know we are all here for you.  

Love,
Judy
Helpful - 0
378425 tn?1305628294
I am so sorry to hear this news, I was ever hopeful.  I am praying for you....Be strong I wish I could do more....I hope the Navelbine will work.....I am here for you.....I want to give you a big hug....I love you, you are a very special lady........

Love, Dawnlyn
Helpful - 0
329994 tn?1301663248
Can I be the one to say that this *****! I hope that MH doesn't erase that. I am so sorry to hear this news but I will remain ever hopeful that you will pull through this too. You are such a strong woman, well loved and all the prayers will be with you girl! Don't worry about Chicago. Whatever we can do, we will do and you just plan on being there to celebrate. I love you! Colleen
Helpful - 0
107366 tn?1305680375
COMMUNITY LEADER
Well ****! That's about the most profound thing I can think to say at the moment.  I am so sorry this disease is rearing it's ugly head in such a way, but even more sorry that it is hurting you like this.  I agree with the other ladies about Chicago. I will do everything I can to take that burden off you so you can do your part...which is to rest and heal.  I will call you sometime this weekend and we'll talk about things...whatever you want.  You have so many people who love you and are right there with you.  I may not be able to give you a physical hug, but I am sending all the virtual ones I can muster.  

Love,
Gail
Helpful - 0
272338 tn?1252280404
  Once again I type through tears, but they are a different kind of tears. I do not know what I would do without any of you. I was so very upset when I posted earlier. My Dr did say that he was my biggest fan and would do anything and everything he could for me. He is still optimistic that we can find something that will help some. And told me not to give up hope, he wasn't. I did ask if I had reached the point where it was going to start taking over and he said that was possible. He also said that as I was still basically in good health, still felt good, still had a good appetite, that it was possible it could work. But that it was a conversation that we needed to have. He is going to confer with another Dr in St Louis to see if there are any different drugs that he is excited about that we could possibly try.
  I promise i will not stress myself out but this trip to Chicago means more to me now than ever. You humble me with your kind words. I have only tried to give back what was given to me when I first found this forum. I have never felt so much a part of something in all of my life. The care, love and support from so many people, gives me a strength that is hard to describe. I thank you all for that. I will not go down without a fight, and knowing you are all right there with me makes me that much more determined. Virtual hugs and lots of love to all of you.
     Chris
Helpful - 0
225036 tn?1294509400
OH MY GOODNESS!!!  I am so sorry Chris.  I am just devistated at what you found out.  I too will do ANYTHING I can to help you with the Chicago trip.  You know I am only 2 hours away if you need me for anything.  You are a true fighter Chris, I know the kind of willpower you have.  REST and do what YOU need to do to fight this damn disease.  You have a whole group of people here behind you to support you.  Lean on us when you need to.  I'm glad you have such a great doctor.  I PRAY that he and the Dr. in St.Louis can come up with something.  Try to look on the positive side, and know I will be praying my heart out for you.  I love you Chris, and will do anything I can for you.  Hugs, Kasie
Helpful - 0
Avatar universal
God bless you Chris. You are tough! I will keep you in my prayers. Conners
Helpful - 0
155056 tn?1333638688
If the doctor in St Louis has no other thoughts, maybe there is one at MD Anderson, Johns Hopkins, or somewhere else that might have an idea of what will work or help.......keep fighting as long as you have the fight in you and miracles can happen.  You have a huge army behind you!!!!
Whatever you need, we are here for you.
Love,
Pam
Helpful - 0
398758 tn?1248220291
Chris,
I don't know what I can add at this point.  Everyone has so eloquently said what I feel.  We all love you and support you.  Through our tears we are all fighting for you. You are such a beautifully strong woman.  
I vote that each of us donates one year of our lives to you.  
Here.  Here are 12 months of my life that I'll gladly share with you.
I hope that works.
Love and support and tears,
Kathy
Helpful - 0
801514 tn?1273676786
Chris,

I am more sorry than words can say, and I pray that the doctors come up with an option that will work for you.  Hang on to the fact that you are physically strong, and you have a doctor who is willing to fight for you.  You should be a prime candidate for treatment that some women might not be able to tolerate.

Minnie
Helpful - 0
Avatar universal
I haven't been on in quite a while.  But, it broke my heart to read your post.  I will be praying for you that you will be in that 15 to 20% group.  Keep the faith!  You are strong and you can make it!  

Love, Shelly
Helpful - 0
386450 tn?1263733624
You are an inspiration to everyone here.   I am praying that the Navelbine will work and that the doctor in St. Louis will have some answers and that you get good news soon.  

Linda
Helpful - 0
178345 tn?1242536246
Chris, I have not been on the forum but do check in and see how you all are doing.  Please know that my prayers and thoughts are with you. From the day I met you I know how much of a fighter you are...FIGHT and DONT GIVE UP!!! I am sending positive prayers your way with love, support and anything else that will help you to fight this nasty disease...Take Care of yourself and I know you will beat this horrific disease!!! xoxo Gia
Helpful - 0
653618 tn?1260603643
There were going to be a lot of asterisks here on my comment with the medhelp powers that be censoring me....so to thwart that I'll be adding my own *bleeps* and so be it!  I read your post the day you posted but I was so *bleeping* *bleeped* off that I just couldn't compose myself to post a response to you.  I've had to stop and think a while.  Not to say that my response will be any wiser because of that but that I've had to think about things, you, me the *bleeping* cancer and all of us here on this wonderful forum.

I got the 18 to 20% chance talk from my Austin Oncologist a few months ago.  He basically gave me two chemo choices but said that they (and any thing else) only gave me that small percentage of working.  My CA125 was, according to the local lab, over 4000 after 4 months of doxil and a trial drug.  

I got my *bleep* to MDAnderson and am doing another trial.  I was mad as *Bleep* at Dr. T here in Austin....but now I realize that HE had done the best for me.  He just didn't have the trials available here to help me as much as he wanted.  That's why he pretty much pushed me out the door.  I realized this last week when I saw him for a check up.  He asked lots of questions about what I was doing and then said "I Really hope that this works for you and I believe that trials are the way to go for you".  So it wasn't that he was the big meanie I thought he was (yes, he is a bit full of himself *bleep* hole but he IS a good doctor and we learned to rub along) he but realized that I needed to go to MDA and check out the trials offered there.

I'm glad your doctor is talking to other doctors about your case but girl...please think about going to a major center just to check out what they have to offer.  These centers have things that are just not available elsewhere.

We didn't join this club willingly, you or I or anyone else here!  I certainly didn't join the 20% club either and refuse to accept that!  You are a fighter and I've learned so much from you!

Hugs and keep *bleeping* fighting!

Teresa
Helpful - 0
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