As you know Leslee has MPSC also and her trial did not work, Mayo told her that in her case they might have to try many drugs before they find the right one. You never mention if you take any of the suppliments , not sure if they really work or not , but at least we know we are trying all the avenues open. They said if they could get her into remission for 1 year they would do the carbo/platinum again and perhaps the secondary surgery to remove the lesions if the Doxil does not destroy them. I think that with your kidney problems that might just be the thing that pulls you down, Leslee had the Asthma problem and they worked on it and have it controlled. Take care kiddo, I think of you every day and am hoping something starts to work for you very soon.
Hi Becky,
Just wanted to say hello and let you know that I am thinking of you and your family.
Love,
Mary
I did a search in the medical journals and could not find anything on MPSC. I wish I could have found you a great new article on it. As far as the second opinion, it is your choice, some place else might have another suggestion, you never know. Thinking of you.
Marie