Missed opportunity to diagnose early with CA 125

[inmemoryofmymom]

Has anyone had a doctor who did not do something when their internish failed to follow-up on a large increase in theri ca 125 (rpior to diagnosis)?

[somethingroyal]

I am sorry to read your situation. I was lucky that my gynecologist wanted to do surgery right away after he found two cysts on my right ovary and my Ca-125 was elevated at 36 and I lost my mom to ovarian cancer when she was 62.  It turned out to be a borderline endometrioid tumor.  

I have come to know so many horror stories about women whose doctors did not take them seriously or didn't investigate an elevated reading etc.  I was very lucky.

[hopeshell]

That is terrible!  I was reading your past post and that is a shame that your doctor didn't follow-up sooner.  With your family history, that doesn't seem wise.  I do think doctors dismiss this test and unreliable so much of the time.  But, it really is a good indicator for those of us who get an increase with our tumors.  I have recently gone from a 4 to a 13 and my doctor didn't seem concerned.  But, now a couple of months later, I am having urinary urgency very much like I did when I was diagnosed.  I think your post has sparked me to insist on another CA-125 just to be sure.