I am a 51 year old, mid- menapausal - I had surgery in April 2, 2008 - a basket ball size tumor, with 9 liters of fluid was removed from my left ovary through a 14 inch incision. While in surgery the removed "mucinous neoplasm", was sent it to path and upon receiving the results, they then did a total historectomy, leaving nothing. My CA-125 prior to surgery was within normal limits, which from what I have been able to find is not unusual for this type of tumor.
The Final Diagnosis Path report verified Mucinous Borderline Nuclear Grade 1 tumor - with a Pathologic Staging of pT1aNxMx (I have figured out the T1a means Limited to overies - one ovary - capsule intact - no idea what NxMx means but would like to know - can you tell me, please) No malignant cells in ascites or peritoneal washings.
I feel very lucky that while it was cancer, that it was caught early and was still encapsuled. I am however concerned about the Staging, I am told that it's not unusal for Borderline Stage 1 to be mis-staged. It has been suggested that I have the samples, and slides sent somewhere else for a second opinion.
I am told that I will be meeting with an GYN/OC in the next couple weeks (as soon as they get the appointment set up) for follow up, but that this particular GYN/OC does not do chemo for boderline tumors. I have done alot of reading on the web and found many stories just like mine, who find out in another 4 to 6 months they have to go in for more surgery and chemo.
Where do I go from here?
Thank you for your expertise.