Ovarian Cysts after COMPLETE hysterectory

[keyholes]

Hello.  I am a 46 year old female.  I had a total hysterectomy in 1998.  In 2000 I had surgery to remove an "ovarian cyst" that was attached to my bladder.  I had my gallbladder out 3 weeks ago and 1 week ago developed severe abdominal pain.  The surgeon said it wasn't related to the gallbladder surgery and sent me for a CT scan which revealed "possible ovarian cyst." I reminded him I have no ovaries.  Went to my gyn next day and ultrasound confirmed a cyst inbedded in a loop of bowel about 1 inch in diameter.  But I still have no ovaries.  Has anyone experienced this?  I dread it, but it looks as if I'll have to have surgery once again to correct this...just curious if anyone else has had this experience and if so, what is causing ovarian cysts without ovaries?  Any help is appreciated.

[ksidhpura]

I am also suffering from the remnant cysts. I am b control pills and doing good, but the discomfort in the lower abdomen is still there. The stretchy feeling is nightmare. What could be causing the pain?

[elmarieb]

I had a historecomy 10 years ago. I still have my overies. 4 days ago I had a laproscopy done because the dokter saw a 3.7cm sist. when he operated he removed not a sist but he said he loosend grouths. I had severe pain in my right side with vomiting. He said my right overie is bigger than my left. It feels like I am pregnant because I feel movement in my right side. What could that be?Is it bad to have a big overie? what should i do.
I do not trust my gynie now. He said there is no reason why i should have pain. He wants me to go for a colonoscopy. please email me ***@****

[gaile66]

sorry I posted before I was done.
my other questions are:
should I insist on a biopsy if they tell me it is "just cyst" or "scar tissue" can they know that just from an US?
Also my pelvic and back pain has gone from infrequent and mild to common and painful. Is that a common progression with cancer? I have never had this back/ flank pain with a cyst before that only hurts with position changes for the most part. It is weird.
Thank you for your help. I would also like to hear what happens in your experience with ORS.
Thank you.
G

[gaile66]

Christina I so understand how you feel. I went to the drs last month for my yearly and b/c I thought I might have a cyst on R ovary ( L removed along with tube due to reoccurring cyst). I haven't really had a period in about 4 months and I have had heartburn, nausea, fatigue ( so tired), I feel like I am pregnant, really bad back pain, constant urination, crabby. Very slight pelvic pain but it was on the L side so I figured that was something else like gas. When I went in he did an US and he became strange. After I got dressed he called me to his office and I figured he had not seen anything cuz he did not show me as he usually does. I was shocked when he told me he there was a 4cm cyst on my R ovary. Left his office worried by his demeanor, confronted this in email, after a couple e-mails back and forth it comes out that I have what could be " cysts" where my L ovary and tube used to be. We are now waiting for the formal US. It is killing me that it is almost 3 weeks away still.
I am concerned because I have almost every symptom of OVCA and I feel crappy. I don't feel the way I have felt in the past when I have gotten ovarian cyst. I feel that I may really have cancer this time.
My questions are to anyone out there are:
When you have cancer do you think you kind of just know youre sick?

[Chrisrob76]

I am a 30 year old woman who had a complete hysterectomy in July for a combination of severe fibroid tumors causing mentrual issues and pre-cancerous cell in the cervix. I decided to have this procedure due to the possiblity of the fibroids coming back and the abnormal cell removal not being removed completely. I didn't want to risk having to deal with a possbily worse situation down the line. Everything seems to have been going well until recently I started to develop pain in the area where the incision is (from the insde); it feels as if something is pulling. I was convinced that during the healing process, some scar tissue had grown onto something that it should not have; especially since the exact same thing happened to my mom some 20 years ago during as a result of a very similar procedure she had. I have gone to my GYN and she did a vaginal ultrasound and discovered I had a cyst. She advised me to wait it out for a month to see if it will shrink in a month. honestly though, I am quite uncomfortable, as this thing is really painful at times and is starting to affect my day to day range of motion. When I move certain ways, it hurts quite badly. Should schedule another appointment with my Doctor, get a second opinion now, or wait the whole month to see if the problem corrects itself. maybe I'm crazy, but I feel like this pain I am having is being caused by more than the cysts. Any advice.

Thanks,
Christina
(Houston, TX)

[keyholes]

Thanks again for all your support.  Went for f/u ultrasound today.  The "cyst" is still there and hasn't changed.  Since it appears smooth and not growing quickly, I have opted to wait another 8 weeks to see if it "goes away on it's own."  The pain has lessened and I have so much going at work right now. I am thankful for the delay.  Let me know if any of you have additional comments, otherwise I will update again on 10/26.
Thanks to all!

[keyholes]

Thank you all for your quick responses!  What a great site.  I have had a second opinion with my Gyn and we have opted to treat with birth control pills for 21 days and then do another U/S.  I will keep you posted.
THanks!

[Gatsby]

It sounds like Ovarian Remnant Syndrome (ORS).  This happens when microscopic bits of ovarian tissue are left behind and cysts form on the tissue.  It can only be dx with pathology. You should seek a 2nd opinion with a gyn/onc, not because of cancer, but they are specialists and have seen it all.
~Tascha

[Mary 53]

Just wanted to make a quick comment on your response. I read it yesterday and I have to say that I smiled and thought, "gee, that is so true." I am refering to your comment about how helpful this forum is in that we actually have a lot of information to share and can tell it like it is since as you said, "We live it." How true.

I wish the best to both you and the origional poster, Keyholes.

Take care, Mary

[pjet]

Does an oncologist do your surgeries and are your ovarian cysts biopsied?  It actually is possible to get ovarian cancer even with previous total hysterectomy when the ovaries have been removed.  I hope things work out well for you.

[Mommacar]

I just had the same issue.They told me that there was still a small amount of ovary adhered to the lining of my inside. When they pulled blood and took hormone levels it showed still producing enough to cause a regrowth. This produced enough hormone to generate a new cyst, being the size of a walnut between my kidney and intestine causing severe pain and nausea. I just came home from the hospital yesterday and am awaiting results from the biopsy.This is the second surgery to remove large painful growths as well as a total hysterectomy to remove a 5lb fibroid growth as well. I just hope this is all good and it won't grow another. I do know I have to go in for u/s for the next few months to see if something starts to grow back. Good luck with your issues!!!
A positive outlook is always great and these forums are sooooo helpful, people here answer honestly and don't hide things. They give you more info at times than the Doctors can, and the doctors will confirm this because they have rules to follow and we just say it like it is. We live it!!
Sue