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Post Hysterectomy/Oophorectomy patient mass in abdomen/torso and bladder prolap
63 yr. old woman post menopausal and had hysterectomy/oophorectomy five yrs. ago experiencing fast growing mass/masses in abdomin and feeling of prolapsed bladder. No tests are showing anything (e.g. blood/urine, CATScan, xrays,colonoscopy,upper/lower GI series, ultrasound) but started natural estrogen two months ago and mass started to grow. Stopped estrogen after 1 wk but things have progressed rapidly and appear not to be stopping.Could this be remnant cells left dormant after past surgery and now being refed and growing (past surgery removed ten huge fibroids which destroyed rt. ureter)..growth and pain started on rt. side. My last PAP could not get enough cells for examination due to atrophy and dryness in the vagina (that is why I started on Vagifem). One doctor/surgeon said she thought I had a severe muscle strain and should wait a month to see what happens. This is NOT that and waiting could be lethal. I am really worried and in tremendous pain. Sitting, standing, riding in a car, walking are all painful. No fever or infection noted and all blood and tests look really healthy. Never-the-less, the medical problem is I believe dangerous.
Five doctors later and I am no closer to finding out what is wrong then when I started. I can pray this goes away as abruptly as it came. I am going to get an MRI and possibly find an answer for what is growing in my abdomen. The GYN/Oncologist
does not think it is ORS but does not know what it is. He thinks it is possible for it to be a collection of fluid pooled between my Adhesions. Who knows! I think it is changing and hopefully very very slowly growing less painful and maybe a little smaller. MRI here I come.
does not think it is ORS but does not know what it is. He thinks it is possible for it to be a collection of fluid pooled between my Adhesions. Who knows! I think it is changing and hopefully very very slowly growing less painful and maybe a little smaller. MRI here I come.
Well,it looks like we are coming full circle. I am on my fifth doctor and heading for how many more tests I have no idea!
I am more convinced then every that what I am experiencing is Ovarian Remnant Syndrome. Further, I believe these are very large cysts that are on a stalk and are the result of taking Vagifem and some gone badly surgery in the past. Next week I will be seeing a Gynocologist/Oncologist and hope he can get to the bottom of this medical mystery. In the meantime, I am in excruciating pain and cannot sit, walk, or drive in a car.
So my friends, thank you for all your support and positive energy and turn in again next week and maybe I will have another segment of how the cysts turns. Best of luck to both of you and thanks again.
I am more convinced then every that what I am experiencing is Ovarian Remnant Syndrome. Further, I believe these are very large cysts that are on a stalk and are the result of taking Vagifem and some gone badly surgery in the past. Next week I will be seeing a Gynocologist/Oncologist and hope he can get to the bottom of this medical mystery. In the meantime, I am in excruciating pain and cannot sit, walk, or drive in a car.
So my friends, thank you for all your support and positive energy and turn in again next week and maybe I will have another segment of how the cysts turns. Best of luck to both of you and thanks again.
Nothing has shown up on any of the tests I have taken. I think part of the problem is that this is very hard to diagnose when specialists are, understandably, looking in the direction that they are familiar with. The process of ellimination starts with their usual protocols and tests. Once ruling out the obvious (e.g. gastro involvement for the gastroenterologist, or thryoid for the endocrinologist, etc. etc.) the likelihood is that the patient is dismissed without looking farther and moved to the next doctor. It feels like a a "runaround" but I think finding a really good diagnostician is the hardest part of the search.
Putting it all together takes time and research based on serious examination of the patients past medical history and current symptoms and time seems to be the enemy. The on average time with actual examinattion and speaking with the patient is fifteen minutes. Perusing the written medical reports and patient input may be pretty quick too. Putting it all together coupled with the obvious speciality, is science and expertise wrapped into good deductive reasoning and a vast background of knowledge and experience.Which is why patients need to be their own advocates, and why these forums are so very important. Hopefully the Urologist I will see today will get me closer to a correct diagnosis. An MRI will probably be nest, an a referal to a GYN/Oncologist will be needed too. I truly believe ORS is the condition but it will require a complicated medical solution (surgery more then likely and a team of really crack doctors who have seen and operated on this before)...thanks for your good wishes and for responding with a comment. Good luck to you as well.
Putting it all together takes time and research based on serious examination of the patients past medical history and current symptoms and time seems to be the enemy. The on average time with actual examinattion and speaking with the patient is fifteen minutes. Perusing the written medical reports and patient input may be pretty quick too. Putting it all together coupled with the obvious speciality, is science and expertise wrapped into good deductive reasoning and a vast background of knowledge and experience.Which is why patients need to be their own advocates, and why these forums are so very important. Hopefully the Urologist I will see today will get me closer to a correct diagnosis. An MRI will probably be nest, an a referal to a GYN/Oncologist will be needed too. I truly believe ORS is the condition but it will require a complicated medical solution (surgery more then likely and a team of really crack doctors who have seen and operated on this before)...thanks for your good wishes and for responding with a comment. Good luck to you as well.
Welcome to the Forum Ronee,
So did the mass not show up on the ultrasound? Sounds like you are getting a run-around! That stinks but do trust your insticts and press on! MV
So did the mass not show up on the ultrasound? Sounds like you are getting a run-around! That stinks but do trust your insticts and press on! MV
Thank you so much for the efficient and speedy reply. I hesitated to go on this site but so glad that I did. My heart full appreciation for your input and being there.It is wonderful to know I am on the right track. Further, it is especially good to have a possible identification of this medical condition. Since there is an identifiable name for this- ORS, I am thrilled to think there is a body of information that can help in the diagnoses and remedy for this condition.
Welcome to the site. There is something called Ovarian Remnant Syndrome (ORS) where microscopic bits of ovarian tissue are left behind and cysts grow on them. I would highly recommend that you seek a 2nd opinion from a gyn/onc not because of cancer but because they are specialists and have seen it all. Although 99& of ovarian cysts, masses, and tumors are benign, you are very wise in seeking medical attention. These cysts can also cause severe gi problems too. You are in my thoughts and prayers. Godspeed
~Tascha
~Tascha
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