Aa
Preparing for Whole Brain Radiation
Good morning, all. This is just an update to let you know that we will be starting the next phase of treatment on the 16th. I'll be receiving a total of 15 radiation treatments over the course of 3 weeks at Mayo. It will be M-F and we hope to be able to fly home for the weekends.
Physically, my left sided neuropathy is worsening but only in a sensory way. I still have strength so am able to walk and be somewhat independent. The Gamma Knife is a slow process so I will have to learn to be patient!
I'm still following all your posts but may not be posting much myself. I'm praying that this treatment will not be as grueling as the chemo and I've been led to believe that it won't be too bad. My hair will be gone once again but that's very minor in my opinion.
Thank you all for your continued care and support. You have no idea how much it means to me!
Christa
Physically, my left sided neuropathy is worsening but only in a sensory way. I still have strength so am able to walk and be somewhat independent. The Gamma Knife is a slow process so I will have to learn to be patient!
I'm still following all your posts but may not be posting much myself. I'm praying that this treatment will not be as grueling as the chemo and I've been led to believe that it won't be too bad. My hair will be gone once again but that's very minor in my opinion.
Thank you all for your continued care and support. You have no idea how much it means to me!
Christa
What a coincidence that you were born in Omaha which is where I live now. I lived and worked as an ICU registered nurse for the Mayo system for many years so I am very familiar with the place. It had always been my favorite place to work. I don't think too many other places measure up, but then I have that bias!
Hubby is a pilot and we will fly up. We have a used car to tool around in so we are pretty much set to go. Thanks for the reminder about the sunburn. Since the hair is going, I'll have to pay special attention to that area.
We are taking the laptop so if possible, I'll try to keep you all posted. Again, thanks a bunch for all the support!
Christa
Hubby is a pilot and we will fly up. We have a used car to tool around in so we are pretty much set to go. Thanks for the reminder about the sunburn. Since the hair is going, I'll have to pay special attention to that area.
We are taking the laptop so if possible, I'll try to keep you all posted. Again, thanks a bunch for all the support!
Christa
Hey Christa,
Do keep us posted! One of my friends is going through radiation just now for breat cancer recurrance and she said the same thing about the fatigue. She's not crazy about the artificial sunburn either but is grateful they caught it so early. Have you been to Rochester before? I was just down there for the first time in August when my son had kidney surgery. They are awesome at Mayo! Tell your DH they even had
PCs with internet access in the waiting room!
I've lived in Minnesota since I was six months old but was actually born in Omaha. I went there a couple of years ago, was glad to finally see it, It's very much like the twin cities being in the river valley, wonderfully green with gentle hills. Are you driving up? MV
Do keep us posted! One of my friends is going through radiation just now for breat cancer recurrance and she said the same thing about the fatigue. She's not crazy about the artificial sunburn either but is grateful they caught it so early. Have you been to Rochester before? I was just down there for the first time in August when my son had kidney surgery. They are awesome at Mayo! Tell your DH they even had
PCs with internet access in the waiting room!
I've lived in Minnesota since I was six months old but was actually born in Omaha. I went there a couple of years ago, was glad to finally see it, It's very much like the twin cities being in the river valley, wonderfully green with gentle hills. Are you driving up? MV
Hi Christa,
My husband and I were in Faribault for a wedding last weekend and we drove up Highway 3 to Northfield to buy apples at my favorite orchard. I thought of you several times. It is still a beautiful town....growing, but still very pretty.
Best of luck to you of course. You know that you are in my thoughts and prayers.
I have heard of the "Pac-man" imagery, too. We do a lot of imagery work with the kids in Day Treatment. It does seem to help.
Take care, Christa.
Mary
My husband and I were in Faribault for a wedding last weekend and we drove up Highway 3 to Northfield to buy apples at my favorite orchard. I thought of you several times. It is still a beautiful town....growing, but still very pretty.
Best of luck to you of course. You know that you are in my thoughts and prayers.
I have heard of the "Pac-man" imagery, too. We do a lot of imagery work with the kids in Day Treatment. It does seem to help.
Take care, Christa.
Mary
You are awesome with your generous offer! Since we really don't know what to expect out of this, I will have my hubby put your phone number in his mobile and I might just give you a phone update on how things are going. We MN girls need to stick together, right?
Schedule wise, we will be in Rochester through the first part of November, traveling back home to Omaha on the weekends, if possible. I was told recently that fatigue is the first line biggest side effect of the radiation. But if that is all I have to contend with at this time, I say yea! Anything is better than what I experienced with Taxol/Carbo.
So maybe we will talk soon. A thousands thanks to you for your kindnesses and support!
Christa
Schedule wise, we will be in Rochester through the first part of November, traveling back home to Omaha on the weekends, if possible. I was told recently that fatigue is the first line biggest side effect of the radiation. But if that is all I have to contend with at this time, I say yea! Anything is better than what I experienced with Taxol/Carbo.
So maybe we will talk soon. A thousands thanks to you for your kindnesses and support!
Christa
Wishing you all the very best for this procedure. Your courage and postitive attitude are an inspiration for us all. Hope you and raven get together - with Mary as well? Take care, lots of love to you, Ursula. xx
http://www.thesurvivormovie.com/
Please know that my thoughts and prayers are with you....
Love Katie
Please know that my thoughts and prayers are with you....
Love Katie
Hi Crista,
So would you welcome a visitor next week? You already know I am a Minnesota Gal and would be way willing to drive down to meet you. I will be in class until Dec. after that. I am near MPLS so even if a visit is not appealing let me know if there is any other way I or Mary53 can help, we are your Minnesota Cysters. I am easily reachable at 612 618-7051 (cell) or 612 866-4002 (home. Just call even if you need an ear Girl! What a long hard road ahead, you need your friends! Cindy & Paul of the site, let this one slide! MV
So would you welcome a visitor next week? You already know I am a Minnesota Gal and would be way willing to drive down to meet you. I will be in class until Dec. after that. I am near MPLS so even if a visit is not appealing let me know if there is any other way I or Mary53 can help, we are your Minnesota Cysters. I am easily reachable at 612 618-7051 (cell) or 612 866-4002 (home. Just call even if you need an ear Girl! What a long hard road ahead, you need your friends! Cindy & Paul of the site, let this one slide! MV
To laugh is to risk appearing the fool.
To weep is to risk appearing sentimental.
To reach out for another is to risk involvement.
To expose feelings is to risk exposing our true self.
To place your ideas, your dreams, before the crowd is to risk loss.
To love is to risk not being loved in return.
To live is to risk dying.
To hope is to risk despair.
To try at all is to risk failure.
But to risk, we must, because the greatest hazard in life is to risk nothing.
The Man, the Woman who risks nothing does nothing -- has nothing -- is nothing.
To weep is to risk appearing sentimental.
To reach out for another is to risk involvement.
To expose feelings is to risk exposing our true self.
To place your ideas, your dreams, before the crowd is to risk loss.
To love is to risk not being loved in return.
To live is to risk dying.
To hope is to risk despair.
To try at all is to risk failure.
But to risk, we must, because the greatest hazard in life is to risk nothing.
The Man, the Woman who risks nothing does nothing -- has nothing -- is nothing.
Hey there....I think we are all thinking of you often and no doubt many, many prayers are being offered up in your behalf. I know you are in my thoughts non-stop....my entire family is aware of your plight and your courage and un-breakable spirit...we all wish you the best.
Peace.
dian
Peace.
dian
Thanks, ladies. I will carry your good wishes and thoughts in my heart as I continue down this road. All my best to each of you!
Christa
Christa
Christa... I really want to wish you the best of luck as you start this new phase of your treatment. I have the upmost confidence that you will come out on top. Stay strong and think positive - we will all be here thinking of you.
Take care,
Becky
Take care,
Becky
You are in my prayers, and I know you will do great. Each time some of your hair falls out, try to think of it as radiation that is working. Its side effect is making your hair come out but that means it is working on those alien cells too, which are actually weaker then normal cells, killing them good. Try to do imagery and actually imagine your white cells taking over and destroying the bad ones. I even heard once of someone thinking about it sort of like pac man. Do you remember that game? Sorry if all this sounds weird but I do have a reason for saying it, over 25 years ago, my mother was diagnosed with Pancreatic CA which doesn't have a good prognosis. I was devastated and came across that imagery stuff, I had her do it, even though she was against it and felt silly at first. I dont know if it was that or the radiation but she lived another 25 years, she died four months ago of her diabetes complications at the ripe old age of 83!!! Anyway, sorry to ramble. Good luck!! Merytre
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