Recurrent Perintoneal Cysts after ovary removal

[MrsT]

I posted back in Jan about some abdominal swelling &discomfort I was having after my ovaries removed on 12/16 for a 10.5 cm cyst. (had hysterectomy in  1999)  I went for a follow-up on 1/30 & my gyn said my discomfort and swelling was probably gas and that I should start wearing support panties & it should help. So I started chewing Gas-X bought support underwear.  The following Friday 2/7 I went back for my surgical follow up and he found a mass.  Was immediately admitted to the hospital and had a CT scan which showed a large cyst.  It was drained on 2/10 & I was sent home.  A week later I felt the same discomfort, called the MD and he said to get an ultrasound done & it showed a mass of fluid AGAIN after only 10 days!!! This time it was only 5 cm. It was drained a week later & when I went to see him this past Friday - he told me that if it recurrs I will need to see either a general or GI surgeon whom he will recommend.  Well - guess what - I have the same discomfort & bloating.  Am I losing my mind?!?  Could it really be back?  Has anyone heard of this?  I am going for an ultrasound on 3/14 - maybe they'll find nothing? Then I'll know I've lost it.  I return to work on 3/15 - need to - I'm going nuts sitting at home.  Please help if you can!

[pearland]

I was scared until I found this website.  I am 55,and I thought all my female problems were over when I had my ovaries removed in 2000.  My children are your age.  I have one that thinks if I lose weight all of this will go away.  NOT! It has just been a few weeks since the aspiration and the pressure on my bladder and bowels is coming back.  I hope to find a gyn with experience in this area.  I live near the Houston Medical Cntr so there are plenty of good doctors around here. You are doing the right thing keeping up with your health issues. Hang in there!

[pearland]

I went to the GI doc to get my report from the cyst aspiration. The fluid was benign. I had an ovarian cyst.  Now I need to find a good gyn to follow up because he said it may re-occur.  Ya THINK! After reading all of your stories I am better informed about the future.

[stam72]

I am elated to find you all! I'm 33 have been having such similar problems!  And I thought I was going insane until I saw this sight!  I had a hyst for uterine cells hyperplastic in 04, then oopherectomy due to a 10cm cyst in 05, then a needle aspiration through my butt cheek 6 mos after that, now a new cyst and back to the gyn oncologist after another 6 mos!  3 cysts in less than a year on my left with pelvic pressure and pain and people telling me I'm bringing it all on myself like I'm a hypochondriac.  I lost my mom to cancer two years ago and I pay attention, I don't want to be sick, I'm not sick....I'm trying to fix a problem!  Thank you for creating this website.  I am frustrated with being sent to an oncologist who sees the worst and like myself wonders what I'm doing there but my gyn won't take chances with it. The first cyst was muc aden, the 2nd cyst epithelial cells , this one, don't know yet.

[delly evans]

I am pleased that i am not alone or a nut case
I am 42 and have years and years of ovarian troubles
had some large cysts  anything from 12cm  and  very regular
i had a hystrectomy when i was 35 and left the ovaries in tack but have since had them removed one by one
i have had 7 laparotomys and loads drained by ultrasound
in the last two weeks i have had major surgery striping the pelvic area AGAIN............
and they found four cyts   attacted to bowel bladder appendix etc
I know when they are back yes bowel pressure and a general unwell feeling
its only been two weeks and i have this feeling it will be back again ......
thanks for your time
delwyn evans   new zealand

[pearland]

I have had pain in my rt side, pain when my bladder was full, and pain when I had gas or prior to a bowel movement.  I was told by the surgeon and my internal medicine doctor that it was adhesions, but no one ordered a ct scan.  I have had pain since 2002.  In march I thought I was getting diverticulits again so I went to a gastro doctor and he ordered the ct scan.  That is when I found out about the lympocele. I went to a gyn and she concurred it was a lympocele, but when I had it drained last week the radiologist said it was an ovarian cyst from the remnant lining.  I am waiting to hear from doctor on the report. The surgeon who operated on me last said my adhesions are so bad that he had to spend two hrs just getting to my colon. That is why I think he damaged a lympnode during surgery and it is not an ovarian cyst.  I am please that after four years my pain is gone although the radiologist said the cyst may come back. There is no history of ovarian cancer in my family.I learned one thing from all of this.....when you aren't satisfied with the diagnosis....get a second opinion! or third! or whatever it takes!

[suzsen]

Pearland, am I glad to hear from you!  Did your lymphocele just suddenly show up years after the surgery?

I was told by a radiologist today that he thought I had a lymphocele or maybe an inclusion cyst, its at the top of my vaginal cuff where my cervix & uterus were removed during a partial hysto 4 years ago.  I KNOW it wasn't there until recently, as I have had ultrasounds every year due to family history of ovarian cancer, and they didn't see anything.  

Suddenly, about 3 weeks ago, I began having pain during sex, rectal pressure, gas pains, then it switched over to bladder pressure and difficulty urinating.  

First UltraSound thought it was a 4 cm cyst on right ovary, but that was followed by CT that said both ovaries were normal, the mass is 5 cm and located between the ovaries at the top of the vagina. Went for another ultrasound, it confirmed the CT, said it's a septated cyst.  The radiologist told me this is harmless and I should just leave it there unless it caused pain or other symptoms (I don't think so, buddy).  It hurt like heck when he had the US wand pushing anywhere near it.

What do I do now?  Is this for my gyn, or a general surgeon?  Can it be drained, or does it have to be removed?  Can it get infected? Rupture?  Will it go away by itself? And why would it suddenly appear 4 years after surgery?

I just thank heavens it's not malignant!