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Recurring ovarian mature teratomas after immature teratome 5 years prior
Sorry for my previous misplaced entry(new to this site)
My daughter had a mixed immature and mature teratoma (18 cm) removed 5 years ago. Her right ovary was removed at the time and she never had chemo. Since the initial operation she has been monitored closely with MRI's, CT scans, AFP and there has not been subsequent evidence of malignancy.
Since the initial operation she has had 6 surgeries to remove non malignant teratomas on the left ovary to preserve the ovary and her fertility (last operation this past week). There is gliamatosis peritonei in other associated areas (omentum, peritoneal sac, etc. which does not seem to present a problem.
As the primary concern is now her fertility, as the teratomas dont stop growing on her remaining ovary, is she doomed to have yearly operations or are there any other options to explore? Shes 20 years old.
Thanks,
Jeff
My daughter had a mixed immature and mature teratoma (18 cm) removed 5 years ago. Her right ovary was removed at the time and she never had chemo. Since the initial operation she has been monitored closely with MRI's, CT scans, AFP and there has not been subsequent evidence of malignancy.
Since the initial operation she has had 6 surgeries to remove non malignant teratomas on the left ovary to preserve the ovary and her fertility (last operation this past week). There is gliamatosis peritonei in other associated areas (omentum, peritoneal sac, etc. which does not seem to present a problem.
As the primary concern is now her fertility, as the teratomas dont stop growing on her remaining ovary, is she doomed to have yearly operations or are there any other options to explore? Shes 20 years old.
Thanks,
Jeff
Hi,
The last teratoma grew at the rate of 1CM per month, The last surgery was 1 week ago (8cm growth) , the previous surgery last June. There was partial malignancy in May 03 (immature and mature teratoma mix/ germ cell 18 CM) which was last sign of malignancy. Thjere have been at least I surgery per year since. We have explored egg freezing with Dr. Oktay in NYC. There are peritoneal and omental glial growths all over her insides thought to be gliamatosis peritonei....a rare condition.
Thoughts? Thanks.
Jeff
The last teratoma grew at the rate of 1CM per month, The last surgery was 1 week ago (8cm growth) , the previous surgery last June. There was partial malignancy in May 03 (immature and mature teratoma mix/ germ cell 18 CM) which was last sign of malignancy. Thjere have been at least I surgery per year since. We have explored egg freezing with Dr. Oktay in NYC. There are peritoneal and omental glial growths all over her insides thought to be gliamatosis peritonei....a rare condition.
Thoughts? Thanks.
Jeff
MEDICAL PROFESSIONAL
Hi There,
This is a tough problem. In general, for a young woman with no history of malignancy, small dermoids can be watched. they take years to grow large enough to cause symptoms. In your daughter's case, there is a concern that she will develop another malignancy. I would also be very cautious about leaving new growths inside.
You are right, there is diminishing fertility with a smaller ovary.
I would suggest a visit to a reproductive endocrinologist. it may be that it is worth considering egg retrieval and freezing of eggs now in case your daughter ultimately loses her ovary. Egg freezing is still experimental but it is worth having a good discussion about this with an expert at the cutting edge of this technology.
best wishes
This is a tough problem. In general, for a young woman with no history of malignancy, small dermoids can be watched. they take years to grow large enough to cause symptoms. In your daughter's case, there is a concern that she will develop another malignancy. I would also be very cautious about leaving new growths inside.
You are right, there is diminishing fertility with a smaller ovary.
I would suggest a visit to a reproductive endocrinologist. it may be that it is worth considering egg retrieval and freezing of eggs now in case your daughter ultimately loses her ovary. Egg freezing is still experimental but it is worth having a good discussion about this with an expert at the cutting edge of this technology.
best wishes
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