You have had perfect care. I completely agree with the plan of therapy.
It may be reasonable to remove the enlarged supraclavicular node. You should ask your doctor about that
Thank you for your response and reassurance. I count myself as fortunate to have "lucked" into a good medical team. I had only recently moved to the area and had no local doctor. I called dozens of offices but couldn't get an appointment for at least 6 weeks, and in frustration I turned to my health insurance nurseline. They got me a quick appointment, and I ended up with a PCP I really like. an oncologist and treatment center in the same office and an automatic referral to an gny/onc for a second opinion, and apparently very good care.
I will talk further to my gnc/onc about the lymph node.
your development during the treatment is really amazing you are doing exceptionally well so do keep the same spirits and fight back with the same, i hope they must have done a biopsy of your Supracavial lymph node because this is what can make you stand either on this side of the court(3rd stage) or the other side(4th).your CA-125 normalization is also a great news.
Thank you. I am a little bit down after surgery, but coming back now. I think I've finally moved out of "denial" and things are all a bit too real to me now. I much preferred the "actor in a movie" feeling I enjoyed the first few months. I have been so emotional since my surgery.
They did not bioposy my supraclavicular node and that is also what I know pushed me to stage 4. I asked my oncologist about this today but he didn't have an answer. I will ask the surgeon next week along with why he didn't remove any lymph nodes at all during my surgery when my original CT scan showed a number of enlarged paraaortic at dx.
I had my post-surgery CA-125 today, and I will wait the weekend for the results of that. I am anxious to resume my chemotherapy.
i don't know that i should really post any comments here as this is the patient-doctor forum, but i have posted because you are really doing very good as i have never seen such improvements for a stage 4 ovac patient, and ca-125 drooping straight from 2400+ to 74 in just one dose(this is really a very good prognostic factor), i just have one good news to give to you as o personally know one stage 4 ovca patient whose condition was some what similar to you and he was dx on feb 1998 and is still alive with no recurrences till date . HOPE U ALSO DO WELL AS HER. A.K.Goodman is a fantastic lady to put your any querries , and i was also impressed with her quick responses, KEEP GOOING AND GET WELL SOON:=).THANKS EVERY ONE ON THIS CANCER FORUM.
Thanks for your thoughts and comments. I am having some rough days after my #5 carbo/taxol the day before Thanksgiving. I was hoping to delay the usual nausea so I could eat some more turkey leftovers, but no such luck. I hope everyone else is still enjoying their leftovers. I have posted that after my initial CA-125 drop I then went to 42 after surgery (and 3 tx) and then to 47.7 after tx#4. My medical team went a bit quiet on that news, as I believe they were wanting that number closer to normal. I choose to wait until I see the results after #6 on Dec 13 and my gyn-onc on Dec 18. As to the neck node, there is some confusion in that my gyn-onc thought it had been biopsied and his surgeon's notes make some allusion to the biopsy which I know never happened. Huh?
can you just mention how was your surgery,was it optimal or sub-optimal ?
what was your status pre-surgery , did you do any ct or pet-ct to know the status of the tumor and the effectiveness of the initial doses of chemotherapy before surgery ?
My gyn/onc said I had only microscopic disease after surgery. If you remember, I had interval debulking due to how extensive the tumors were, and I was told the first 3 chemo rounds worked so well he was happy with what he saw when he opened me up.
I have had only 1 CT scan for diagnostic purposes (well 1 for abd/pelvis and 1 for neck/chest), as they did not do one pre-op. Surprised me a bit too.
I'm hoping these last 3 rounds really clean things up, but I'm a bit concerned about the 8 weeks between round 3 and 4 while I had and recovered from surgery. With grade 3, it just seemed too long.