My gyn/onc said I had only microscopic disease after surgery. If you remember, I had interval debulking due to how extensive the tumors were, and I was told the first 3 chemo rounds worked so well he was happy with what he saw when he opened me up.
I have had only 1 CT scan for diagnostic purposes (well 1 for abd/pelvis and 1 for neck/chest), as they did not do one pre-op. Surprised me a bit too.
I'm hoping these last 3 rounds really clean things up, but I'm a bit concerned about the 8 weeks between round 3 and 4 while I had and recovered from surgery. With grade 3, it just seemed too long.
hi PF_PVD,
can you just mention how was your surgery,was it optimal or sub-optimal ?
what was your status pre-surgery , did you do any ct or pet-ct to know the status of the tumor and the effectiveness of the initial doses of chemotherapy before surgery ?
Thanks for your thoughts and comments. I am having some rough days after my #5 carbo/taxol the day before Thanksgiving. I was hoping to delay the usual nausea so I could eat some more turkey leftovers, but no such luck. I hope everyone else is still enjoying their leftovers. I have posted that after my initial CA-125 drop I then went to 42 after surgery (and 3 tx) and then to 47.7 after tx#4. My medical team went a bit quiet on that news, as I believe they were wanting that number closer to normal. I choose to wait until I see the results after #6 on Dec 13 and my gyn-onc on Dec 18. As to the neck node, there is some confusion in that my gyn-onc thought it had been biopsied and his surgeon's notes make some allusion to the biopsy which I know never happened. Huh?
hi PF_PVD,
i don't know that i should really post any comments here as this is the patient-doctor forum, but i have posted because you are really doing very good as i have never seen such improvements for a stage 4 ovac patient, and ca-125 drooping straight from 2400+ to 74 in just one dose(this is really a very good prognostic factor), i just have one good news to give to you as o personally know one stage 4 ovca patient whose condition was some what similar to you and he was dx on feb 1998 and is still alive with no recurrences till date . HOPE U ALSO DO WELL AS HER. A.K.Goodman is a fantastic lady to put your any querries , and i was also impressed with her quick responses, KEEP GOOING AND GET WELL SOON:=).THANKS EVERY ONE ON THIS CANCER FORUM.
Thank you. I am a little bit down after surgery, but coming back now. I think I've finally moved out of "denial" and things are all a bit too real to me now. I much preferred the "actor in a movie" feeling I enjoyed the first few months. I have been so emotional since my surgery.
They did not bioposy my supraclavicular node and that is also what I know pushed me to stage 4. I asked my oncologist about this today but he didn't have an answer. I will ask the surgeon next week along with why he didn't remove any lymph nodes at all during my surgery when my original CT scan showed a number of enlarged paraaortic at dx.
I had my post-surgery CA-125 today, and I will wait the weekend for the results of that. I am anxious to resume my chemotherapy.
hi ,
your development during the treatment is really amazing you are doing exceptionally well so do keep the same spirits and fight back with the same, i hope they must have done a biopsy of your Supracavial lymph node because this is what can make you stand either on this side of the court(3rd stage) or the other side(4th).your CA-125 normalization is also a great news.
Thank you for your response and reassurance. I count myself as fortunate to have "lucked" into a good medical team. I had only recently moved to the area and had no local doctor. I called dozens of offices but couldn't get an appointment for at least 6 weeks, and in frustration I turned to my health insurance nurseline. They got me a quick appointment, and I ended up with a PCP I really like. an oncologist and treatment center in the same office and an automatic referral to an gny/onc for a second opinion, and apparently very good care.
I will talk further to my gnc/onc about the lymph node.
Hi There
You have had perfect care. I completely agree with the plan of therapy.
It may be reasonable to remove the enlarged supraclavicular node. You should ask your doctor about that
best wishes