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Ovarian Cancer Community
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340734 tn?1256586262

Tamoxifen didn't work for me

For those that knew I started Tamoxifen 8 weeks ago, it didn't work for me.  Today at my doctor's appt, I was told my number (CA125) went from 72 (8 weeks ago) to 161.  Still not a significant number, but I'll be starting Taxol weekly for the next 6 months.  (Hopefully) this will put the disease in check for me.  Only time will tell.  Now, I will be putting that chemo tracker to use, but I've been told that weekly Taxol is not so bad.

And, seriously thinking about having a port put in, but still not sure.  Will wait to see if my veins will survive a poke once a week for the next few weeks before I decide.

For those that are on Tamoxifen, I'm truly happy it works for you.  At least, I know that it works for some.

Take care.  Angie
3 Responses
415684 tn?1257329318
I am so sorry Angie.  I have been on tamoxifen since 7/07.  # went down to normal (20) by 12/07, but is up to 77 as of a couple weeks ago.  I heard that it will only work up to 2 years .. we'll see.  I wish you well with your taxol tx.  Taxol was not too bad for me.  Keeping you in my prayers, Judy
560402 tn?1235508894
Get that port put in!!!   It really is the way to go, Chemo is really hard on the veins and the port makes things go so much easier.  Also get a power port put in.  That way you can use it for CT scans too.  The procedure is easy and it doesn't hurt.
Susan
Avatar universal
I have an arm port and have had it in for 3 years.  The first time I had one I had it taken out as soon as I was NED (I guess I wasn't being realistic).  It really is the way to go--- and ditto for Susan's comment about a power port.  They didn't have them when I had mine put in.

And the tamoxifen only gave me 6 extra months before I needed chemo again.  The arimidex didn't work at all, and neither did evista.  I really hope the weekly taxol will knock the stupid cancer back into submission/remission.

Good luck
Jeanne
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