Oh Rachael... I'm so very sorry. I'll never forget hearing my Dr telling me that my cancer was back - I was in shock to say the least. My CA125 never budged either - it was holding steady at 18 and had been for months. I'd had several scans showing NED and my gyne/onc actually didn't believe the results. Told me "I'd be shocked if this were cancer - it's probably scar tissue". In a month it grew over 2cm - definately not scar tissue! I recurred within six months of finishing chemo, so they deemed me platinum resistant. I go next week to find out what chemo they are switching me to - the taxol/carbo is not working very well (have had two rounds). Why are they not doing taxol/carbo again? Good luck with the doxil - it seems harder the second time around, mentally, for sure.
Rachael I am so sorry this had to happen to you. Daughter started back to work this week, thought she could handle full days but she can't, cut herself back to half days. Her CA125 was 5.6. We are both drinking the Medicine Man tea, we are keeping track of of everything in a daily diary. We want to help however we can. Will tell her about this and insist she get Pelvic exams every 3 months. I still do about 4 hours of research every day. Am getting so I can tell the scams from the really good stuff. The tea by the way has controled my diabetus. Will keep you in my prayers.
can not offer any advice,just my prayers and good wishes for your biopsey.Dawn
I know how scarry this would be. Please keep the faith and hope. We are all praying for a cure for you soon.
Thanks to all of you for your prayers. I am off to my biopsy now. Rachael
I was at MD for about 18 months and they are the best at what they do. However, having said that my dr. released me and sent me home w/o any further treatment options and I came home to a gyn/onc that I hated but had options 18 months since I've been home I'm doing better than ever. Always explore options and get as many opinions as you possibly can don't worry if you **** off a dr. it's your life your saving! Good Luck to you!
Can you tell us what options did you take?
I'm running out of options myself.
Hello. What chemos have you used so far? Dr. Goodman has a list of varied possible options which can be found on the medical side of this forum. You can go to the archives and it will be there. I hope this helps.
Thank you, Jatoo!
Here is a list of what I've taken so far:
1. Cisplatin + Taxol
2. Taxol alone
5. Avastin (once every 2 wks) + Endoxan(cyclophosphamide) daily. Good results with this combination. Making my liver metastasis disappear. Unfortunately, tiny cancer cells (Avastin only works with tumors greater than 0.078 inch and Endoxan didn't make up for it) attached themselves to the outside of my intestines preventing them from moving easily to digest food. Hence the bowel obstruction.
6. Now, Gemcitabine + Carboplatin (once every 3wks/21days, only taken in combination) to try to deal with the bowel obstruction. Second cycle only 3 days ago. Slightly decreased of the CA125 from 148 to 140. Feeling better. Almost two months now since hospitalization.
7. In the case that doesn't work, what should I do?
If you are platinum resistant, why are you on taxol/carbol again for recurrance? Did I misunderstand? Rachael
No, I'd been seeing a gyne/onc at one hospital who put me back on it, even though I questioned him about being platinum resistant. He disagreed with me and I sought a second opinion at another hospital. Because I had already started my treatments, my new Dr said we'll do two, then stop to see where we're at. I've done my two and am going back to see this new Dr on Tuesday (who, by the way, said he'd put money on the fact that I'm platinum resistant!) So, in essence, I've put myself through 2 treatments of taxol/carbo for nothing! I feel really good about this new Dr and am anxious to see what he has to say on Tuesday. Good luck to you,
Your experience with the Chemo's sounds similiar to mine. I honestly have put out a lot of my MD Experience from my brain, supression is a wonderful thing. Anyway, I have contacted my nurse to asker her about the cocktails I have done... b/c a couple were complete long shots that worked for time spans of 6 mo to a year. I will post once she gets me the information. I think one reason I don't know exactly which one was given when is b/c I have had most of them at least 2X with different combos, so I'm confused. Sorry.
The Hormone I'm on now is Megace and as I said seems to be doing the trick.