Hello there. #1 get a copy of your ultra sound reports. A solid cyst is different than just a cyst, and this to, me is worrisome. What is the size of the cyst? A CA125, for me, my doctor or Labcorp has the results in less than 24 hours. Based on your CA125 results and the actual size of this cyst and the persistant pain, may warrant a second oppinion, maybe with an oncologist/gyn. Even though most cyst are benign, I would not mess around with this.
Best Wishes to you, and please keep us updated.
Thank you for your reply. It is good to know the turnaround time for the CA 125. Although I have a history of cysts, the doctor advised me that this mass is not a cyst and that it is "pretty solid."
The clinic system I go to has online records available to patients and I will request access the next time I go to the main clinic (pts. have to request access in person).
I was not told the size of the mass. The good news is that my GYN wants to have the ovary/mass taken out right away and sent off to pathology. I am waiting a call from their surgery scheduler. I called over there an hour ago to check the status and the GYN did not create the order yet. I was told she is out the rest of the week, however can create orders from home. Once the order is put together, the scheduler will call me with a date. Even though my GYN is out this week (and I think next week too), she said I could get the surgery done by her partner.
Thanks again for your help, Jane.
Update: The office called and I have an appt. with my GYN's partner tomorrow @ 9:30 AM. No date yet, although I imagine I will be given one after I see her. I was told by the office that I am seeing her so she can do the surgery ASAP.
Now not to scare you, but I would ask,the size of the cyst. And what your CA125 marker is? I understand your history of cyst. We know this is a solid mass. If the cyst is over 5-6 cm, you may want to consider having a gyn/oncologist do your surgery. You truly only have one chance in getting this right. The gyn/oncologist is much more trained, "if" this is cancerous (and I am not saying this is) to properly perform your surgery correctly. It makes me a wee bit nervous that they themselves are putting your surgery in a more urgency matter. I am sorry where are you located?
I agree with Jane....if cancer is at all suspected, PLEASE, have your surgery done by a gyn/oncologist. They have 3 years additional training and are the experts. When surgery is done by a gyn/oncologist, they have proven that the surivial rate is better.
Like Jane said, most ovarian cysts and masses are benign.
The CA125 will not and does not diagnosis ovarian cancer. It is best used as a tumor marker in someone that has already been diagnosed. There are many reasons why it could be false positive and it is not effective at all for early stage ovarian cancer.
Let us know how the visit goes....and remember it is you and your body, ask questions and be assertive!!!!
Thank you both for your replies. I found out today that the clinic only processes the CA 125 tests on Thursdays and I will most likely get the results on Friday. I met with the GYN and she told me that, my mass is about 3 cm and that it was considered a "solid mass" because it is not "see-through" on the ultrasound. I was told that they think it's more likely to be benign due to my age (34) and I forget what else (sorry, Vicodin causing brain fog, along with with the brain fog that is already there).
I was also told by the surgeon that many things can cause the CA 125 numbers to be somewhat elevated; however if they were elevated enough to be of concern, then she would refer me to a GYN/ONC.
If the numbers are within range or only slightly elevated, then she is going to proceed with the surgery on 11 Jul. I see her to sign consent papers on Friday and will probably get the results of the CA 125 test then. Should I call over there late tomorrow and ask for them?
I am in East Central Illinois. I was told there are a couple of really good GYN/ONCs in Peoria (the ones in town are not in my insurance network).
Thanks again for your help!
Well the good thing is that mass is relatively small. But don't ever let a doctor say, that is probably isn't cancer (which again, I am sure it's not) because you are only 34. Sadly we have lost alot of young ladies much younger than yourself to this horrible disease. I hate when a doctor makes this statement and wants to dismiss cancer solely due to someone's age. Age shouldn't come into play any longer, as cancer does not discrimate based on age.
As a women with Ovarian Cancer, I tend to lean more towards having the surgery by an gyn/oncologist, it's safer and if you are going to have someone do your surgery, that needs to look for potential cancer, it's best to have someone like this be able to look for it. Just my oppinion.
Again, good luck.
Thank you all again for your support. My CA 125 results came back within normal range; my number is 16. While not 100% foolproof, the combination of my test results with my ultrasound and other test results are enough data for my doctor to decide that it is OK to perform the surgery herself.
Thanks again for the valuable insight and support!
I also suggest you go to a Gyn/Oncologist. You want someone who works with these types of issues every day. They are more qualified to access your risk. Don't get to worked up over they CA 125 it is not that accurate.
Be proactive and get a second opinion soon. If it turns out to be malignant, you want to be in the most qualified hands. You don't want someone rummaging around your insides deciding what to leave and what to take.
Keep in mind you have age on your side.
Thank you all for your support.
I just found out yesterday that, after my surgery, that my pathology came back 100% benign!!! I wanted to jump for joy!!!
Thank you all again.
Oh Congrats, I am so glad all came out in your favor!!
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