I am age 37, Female within BMI range. I exercise and eat relatively well. Diagnosed with a left adnexal mass 10x8x8, type unknown even though thoroughly investigated. Doctors unable to diagnose. The following issues were present prior to discovery of Mass.
1) PCOS diagnose since 20 (hiritusm, acne, severe hair loss)
2) Hypertension diagnosed aged 25 - on Micardis Plus
3) High cholesterol regardless of diet and exercise
4) Pre-Diabetic - on Metformin
5) Signs of Osteoarthritis - on hold till mass is dealt with.
6) Gluten problems (bloating and bowel issues)
7) Acid Reflux
9) 3 calcified/herniated disks lower back and one herniated disk in neck
10) No family history of cancer.
11) Vision problems seeing at night
Sept 2014 - Slight cramps and severe bleeding from vagina lasting up to 2 hours. Hospital visit included Ultrasound where Left Adnexal Mass discovered. CT Scan reported ovarian and cervical neoplasm and 3 small fibroids. No Pain or irregular vaginal bleeding prior to this.
Subsequent Ultrasound and MRI indicated the mass does not come from Left Ovary. Mass touches Ovary, may be touching OR attached to uterus and is touching Right Ovary. Source of mass suggested Fallopian Tubes. I have been ovulating as per normal. MRI and Ultrasound impressions are Malignant in characteristic. Additional piece of mass found in lower pelvis area.
Blood Work - Normal
Nov 2nd - Severe pain in pelvic area causing multiple blackouts within a period of 30 minutes. Menstruation starts 30 minutes later. This never happened before.
Apart from this is sometimes have slight nerve pain on my side of abdomen and running down my left leg.
Doctors are bewildered as I do not present with cancer symptoms. No weight loss, no fatigue, no loss of appetite etc. Generally feel the same. Analysis suggests malignancy in character due to presence of blood vessels mixed with tissue and shape of mass. Multiple specialist have reviewed my reports and including analysis by 2 hospitals including the Tumor Board. Still unable to say what cause this and what it is. I have been told that my case is uncommon and rare.
Doctors suggest removal of both ovaries and fallopian tubes and aim to save uterus. Suggested to freeze eggs/embryos. I would like to have kids some day.
ONE REPORT of the 4 states: Wide Differential Diagnosis - ovarian epithelial malignancy, low grade sarcomatous lesion, tubal malignancy.
Another Report - Suggested Fallopian Tube Malignancy.
Freezing eggs cost 10,000 CAD. Is there anything I can do to find out if this is definitely cancer? Biopsy too risky and afraid it will cause "cancer" to spread.
I fear I suffer from an undiagnosed autoimmune disorder which has maybe cause some sort of organ growth? Is this possible?
Any comments would be helpful.