Thanks for responding. I've been having double over pain, blood in urine, they found fluid in posterior pelvic area. also have nodules on left lung and three in abdomen, as well as i discovered one on the left side of neck and left side groin. Severe weight loss, no appetite, severe flank pain, severe fatigue, gastro problems, my joints and bones hurt, and I lock up. i have swelling in my left hand constantly and have had several palsys in my face, etc. Tachycardia and short of breathe. I have alot going on. My labs are off the charts in some areas and negative in others. I've developed osteopenia and my lymph % and neutro% are abnormal, as well as cortisol, ALT, Calcium, Vitamin D, Glucose, Mono%, MPV, Neut#, Eos#, Total Bilirubin, Postassium, High Occult blood in urine, high RBC in urine, HCT, Ketones in Urine high, Bilirubin in urine, hgb, rdw,albumin, EBV titers in the thousands, borderline positive (twice) ANA , Band Neutrophils high, Lymphocytes low, basophils high, creatinine blood high, carbon dioxide low, trace protein in urine multiple times. I'm a mess! This left upper quadrant pain in bad. My heart has been in the 160's and 170's. I shake like I have parkinsons. I'M THE MYSTERY DIAGNOSIS. I'm suffering so bad. The Endrocrinologist says negative on his end, the Rheumotolist says nah on her end even though they have abnormal tests! I've been misdiagnosed too many times and I literally feel like I'm dying and I LOOK IT!! I keep losing weight even though I've been eating, God someone help me. The doctors are idiots were I live. They say yeah you are very sick, but we need to figure out the source since as you read I have so many abnormalities going on. Now I'm being told it may be autonomic, plus there is the pulmonologist that says I have COPD and the nodule on my left lung. HE WANTS TO WAIT AND WATCH IT TO SEE IF IT GROWS, since there is very little growth since the last CT, but does say it could be cancer there are slow cancers, now with all this other stuff and lumps/nodules going on what is one to think or do. Sorry, I feel all alone and I feel dread and doom. I'm not crazy although I feel like it some days. I sleep all the time, so tired and weak. I am malnurished, but then one of the specialist says the tests don't show that BUT YET I LOOK LIKE SOMEONE WHO HAS AIDS, CANCER OR I HATE TO USE THIS ANALOGY, A CONCENTRATRION CAMP. I just pray and I'm fighting the best I can; I am a strong women. This is affecting my family, everything. I'm not use to this forum and not sure what I'm doing, but I'm trying to get a doc to give me some insight.
Thanks again for responding, you were the only one so far. I'm a prisoner in my home and the pain and suffering is unbearable. I loose control of by bowels sometimes and I don't pee much. If you know how I can ask a doctor on here, could you please try to explain how to do that. Believe or not I'm pretty smart, although my memory is going a little.
Sincerely
Shannon
What other symptoms are you having?? Is there any pain?? Most cysts are 95% benign...so there is alot of hope there. There is another forum here for cysts..go there the ladies have so much knowledge and should be able to help you. ~~~~Joanne