clear cell carcinoma

[shaline15]

Hi, I am a 37 year old with clear cell carcinoma Ovarian cancer.  I was in complete remission at the end of my chemo but after 5 months have gone out of remission.  Does anyone know of anyone with clear cell that has managed to get in remission for the 2nd time.

[BLinn90]

Hi,
I'm another one with clear cell, dang it!  I had surgery last April, did the 6 rounds of chemo over the summer and just got a higher CA 125 reading.  From 29 after the chemo to 42.  I had a PET/CT scan today - so we'll see...  This is certainly an Ugly disease!

I was diagnosed at stage 1A too - but it's still scary stuff.

My ins company vetoed the PET scan, the stingy b*&^($ - but I finally won!  I called them - refused to talk to their contractor & got the person who oversees the contractor (make no mistake - their job is to save the insurance company as much money as they can & if you die in the process that's ok)  

The Insurance person wanted my doctor to do a Peer to Peer and "justify" asking for the PET scan.  I feel that the Ins contractor couldnt possibly have a genuine Peer of one of the best GYN/ONC at Johns Hopkins!  My doctor declined, since he had done it once before to no avail (the Ins CONTRACTOR knows MORE than my own doctor about my needs?!?!!! -- sorry getting ticked off again!

Anyway - they gave in!  I explained to 3 different people - laying it on pretty thick - but truthfully - explaining that my life was on the line here & they over-rode the *&^%^ contractor!  

Good luck to you...
B

[Jane39]

What stage were you diagnosed at?  I was diagnosed at stage 1A, clear cell in 3/2006, had 6 rounds of chemo.  Even though I was a stage 1A, it was recommended that I do the preventative chemo just due to the fact that it was a clear cell. Just started another round of my 3-6 month check ups, am assuming all will be fine, won't have my PET/CT SCAN until April.  I am always nervous every time I go and have my check ups, I guess it will always be that way.

Wishing you the best~~~

[hopeshell]

I am bumping this up for you.  I can't answer your question but there may be someone who can.  I think the board has been less active these past few days.  I'll be praying for you.