finding inoperable cysts in liver. CA125 remains low following ovc chemo..???

[dian07]

Diagnosed 1C ovc in April'05; complete abdominal hysterectomy in April; chemo started in May; six treatments Taxol and Carboplatin; finished in Sept. only to find after CT this past Tues. there are problems with the liver that nobody wants to touch and cannot say what it is.
"Irregular outline  omplex cystic multiseptated 4.5x5x4.0cm in AP transverse, and craniocaudal diameters originating at the bifurcation of the main portal vein into R and L radicles extending outward to the adjacent R lobe of the liver with malignancy and liver metastasis from known ovc until proven otherwise". My onc surgeon won't touch this; bleeding is a real possible cause of death so a biopsy is not a good idea nor is surgery.
I was advised to get U/S to monitor changes.
In other words, wait and see; NOT MY STRONG POINT!
What confuses me is that the CA125 has dropped from 125 prior to surgery to less than 6 for over three months now; actually 4.5 now; this is what is confusing my oncologist as well.
I am talking to myself saying what I would say to a girl friend but it's not sinking in; be patient, don't borrow trouble, remember how important the ca125 is and that is good, this in the liver  is a "carcinoma until proven otherwise".  I don't want this to be my last T-day or Christmas.
Now I feel like a cry-baby but I think I am saying what so many feel; it is okay to admit we are scared.
I am the luckiest person I know; always have been.
Thanks for listening and thanks for your help.

Thanks, guys;
Dian07
















is is what is confusing my oncologist as wel

[soniek]

i agree xray...i believe sometimes,just the pure fear of the "unknown:,can be almost as worse as the actuall dx..dont these docs reaize how worried we get,and that they should have our results to us like..last week..lol

[xrayu2]

I want to add that I agree with soniek, I have loads of info at work about things going on with myself and yet there is still worry and concern over my unknown situation.  I didn't want to sound insensitive to your fear, but wanted to let you know about benign issues that could be going on.  I see the fear in patients as we go to do their scans, not knowing what will crop up next even when they've gone long periods without recurrence.

[soniek]

hi..i just wanted to tell you,i dont have much experience with this,but i wanted to tell you,ITS OK TO BE SCARED,its ok to worry.this is your body,and even when everyone tells you not to worry,there not you,and there not going through the emotions you are going throough..you will be in my thoughts,and i will say a extra prayer for you,and  i hope it all works out for you...best of luck to you,and god bless you...sonie

[xrayu2]

Could it just be hemangiomas in the liver?  I do CT and we often see areas in the liver that look scary but are really not. I work in a cancer center and it is the worst fear of our patients when something like this shows.  Our docs recall pts to repeat just the abdomen portion of the scan-you drink the barium there and you still get the injection, but pictures are taken at different timed intervals to wait for the liver to catch all the contrast.. Hemangiomas will fill with contrast because they are simply blood vessel tumors (per say) they are not malignant.  If your tumor markers are low then I wouldnot think that you are haveing a recurrence.  Good luck and keep me posted.