help, avastin, fistula and external tumors

[melenzbee83]

Hi,
sorry i havent been on here for awhile. I am saddened about the loss of many amazing women who were very supportive in my journey. I know anyone's journey with this disease is extremely extremely painful but i seem to have these "extra" complications going on making each day  aliving hell and someone once strong has become saddened and weak. 2010 i had avastin with carbo and calex however in july 2010 i became extremely ill when my  adhesions appeared vertically down my stomach along the scar line bustered through from iside out and my bowel also raptured. i had to ahve emergency surgery and now have an illostomy.  everyone told me i was going to die. 4 months in hospital unable to walk and im still here. however, i also have a fistula from a wound in my side, and holes in my bowel to a hole at the top of my vagina. i know doesnt sound pleasant. I contantly have to wear pads.
so i have an external wound, 2 tumors now on the outside on my scar line ( so painful) fistula, illostomy. its all TOO much. Is there anyone else that has had these complications? they now know it was from the avastin! DAMN AVASTIN! I need help and understaning, im 27 i cry every day, im in total agony!

Mel x

[Jane39]

I asked about you not that long ago.  Seems like alot of women on this forum drop off and we lose touch, but you stay in our thoughts and prayers.  I am so sorry to hear of this pain you are dealing with.  This disease *****, plain and simple, and I am sorry.  Sounds like you are such a fighter, I wish there was something more comforting I could say.

Wishing you some relief.  Hugs and Prayers.


Jane

[TrudieC]

Just dropped by after too long and saw this post.  I am so sorry you are suffering so.  All I can offer are virtual hugs and the knowledge that you are in my thoughts and prayers.  Insist they better manage your pain.  ((Hugs))

[Mary 53]

Oh Mel, I echo Pam and Dian's posts... I am not on this forum very frequently as of late, but I do drop by and when I have dropped by this past year, your name was one of the first names to look for to see if I could find an update.

It's good that you wrote to the forum... you made such an impact on the forum when you initially posted here. My heart is breaking for you, though, and I am so very sorry that you're having to go through this. I'm glad Pam asked about the external tumors, and yes, what about the pain? I do hope that the medical community that is taking care of you will be able to find a path of treatment for you that will give you some relief and some hope.

Please stay in touch. We care about you...

Sending hugs and love from Minnesota,

Mary

[dian07]

Mel; since I read your post, I am unable to stop thinking about you.  It is impossible to understand how and why this could be happening to you, or anyone else for that matter.  Life is so unfair and without explanation .
It's hard to believe, as I sit here on a rainy spring day with my little grand-daughter napping safely on my bed......there you are.....half a world away in such pain and agony.
I wish I could do something about all of this......but, all I can do is acknowledge you and your courage, and your suffering, and your understandable despair.
You are, and will be forever, in my heart.
My wish for you is to be pain free and enveloped in Peace.
dian

[nyc lady]

I was thinking about you just yesterday.  Wow, I wish I could offer words of wisdom....but I can't.....can't they remove the external tumors?  ARen't they do anything to treat the pain?

Mel, I am so sorry that this all happening.

Sending lots of positive thoughts to you.
Pam