Ovarian Cancer is hard to diagnose for the simple reason the Ovaries are inside the body. The CA 125 can go up for other things than Cancer. I am glad they are doing the CA 125 they did not do it on me until I had Ovarian Cancer. It would be nice if it were a better predictor. It depends on the woman. For me it is accurate for other women it is not a good indicator. No one can say whether you have Ovarian Cancer unless they actually do a biopsy of your Ovary.
I had two years of heavy bleeding. I bled constantly over 20 days a month with only a day or two in between. Sometimes the blood was orange. I had an endometrial ablation where they freeze off the lining of the Uterus. I still kept bleeding for six months. My doctor said she had never had this procedure not work.
Then I stopped bleeding all together. When I stopped bleeding I started throwing up all the time. I could not eat because I was full. I started dropping weight. This went on for two years. I carried a pan with me everywhere because I threw up so much. I even threw up at the doctors. I got so limited of what I could eat that at the end I was only eating avocados.
The eating became an issue in April 2010 and November I started having diaphragm spasms. I could not breath and it hurt horribly. I even had a heart work up the first time because I thought I was having a heart attack. This went on for two years. The spasms which had been once every six months, then monthly, and finally weekly were hard to live with.
I was in a drug study and had to have endometrial biopsies. I had had them with no trouble. Then the Gynecologist tried to do one and I thought I would die the pain was so bad. I few days later I just could not eat at all and was so sick. I thought since I was in the Clinical trial they would find if I had Cancer (not Ovarian).
I went to my Family Doctor in May 2012 and said something is really wrong. I said I do not know what. She did a bunch of tests including a transvaginal ultra sound. They had done several in 2009 and a CT Scan in 2010 which showed nothing.
I was in the ER in December 2011 because I was throwing up non stop. They sent me to a Gastro Doctor in January 2012. He did no tests and said I did not need any tests I had Irritable Bowel Syndrome.I had a blocked bowel which he would have found if he did any tests.
The ultra sound in May 2012 showed I was full of Cancer. My Doctors staff even had me labeled as a hypochondriac. Now Doctors listen to me.
What I wish I had done was pushed them harder to find what was wrong. I even thought I had Cancer back in 2011 because of the pain and the vomiting. My rectum was blocked so food could not go through.
Hopefully you do not have Cancer. The lesson I have learned is we know our bodies and we know when something just is not right. Doctors expect us to tell them when we are having issues. Here in the States Doctors only look at their own specialties so you have to figure out what kind of doctor to see. I also have Multiple Sclerosis and the doctors blame all my symptoms on MS. Especially the diaphragm spasms. I have Cancer on my diaphragm so that is why I have the spasms. If you look up Ovarian Cancer on the internet Not being able to eat, looking pregnant (I did), and diaphragm pain is all listed.
I am good friends with my doctors because they admitted they missed and feel badly about it. Now if I call they see me right away because they know I do not call the doctor unless it is important. They now know I am not a hypochondriac but stoic.
aww i'm so sorry you had to go through this. Thank you so much for replying to me hunni. Ive told my doctors that i get constipated and even somtimes food goes right through me. I can only eat small amount. But i do suffer from endometrioses which as i said to my husband that never showed up on the scan. After i had my marina out the nurse said i think you have pid which i know the marina can do this i was put on antibiotics, wand the nurse said if you have got it it will show up on the scan even that never. i have now been put on more antibiotics. the pain is so bad it goes down my legs and in my hip bones. I feel like they are looking at me like they looked at you. I cant make love with my husband because when i do i bleed and have colts come away to. As you said we know our bodies, as i said to my mum if the bloods come back fine and i still have pain then what .
I hope you get some relief.
can I ask you some questions. did your neck really hurt and the glands in your groin and neck hurt and swell. I have now been put on another lot of antibiotics for a water infection, as I had enzymes and protein and blood in my urine. I also have enlarged red blood cell and a high white cell count. I feel ruff my joints hurt and neck really hurts I cant sleep cause its so painful. I have got to have another blood test crp wcc
My lymph nodes did hurt especially at the groin. They though I had hernias. When do you get your CA 125?
my ca 125 test came back ok but flagged up my liver twice. My nodes in my neck are up and my neck really hurts. in my groin i cant stand for long as it hurts to much. i have lumps under my arms as well as my boods lumpy i also have red spider veins now in my boobs which i leek thick yellow stuff from them. i have been back to my docs about my tummy but all they said was everything was ok but my white cell count is high, and my red cells are larger i feel so ill. i'm now back up my docs on monday about my boobs. my lower back hurts just got to wait for my crp test now it all seems to be taking so much time.
It sounds truly complicated with so many areas having issues. I would not even know which specialist to go to in your case. I hope they find out what is going on soon. Keep pushing for an answer.