Although there are things you do need to know now I would not be looking ahead to awfully far if I were you. There is so much to know, but it really is best if you learn it in stages. It becomes overwhelming.
I am confused about something. Did her onc say she had about a 50/50 shot at making it two years? I don't think Drs should guess to far out like that because so much could happen in that time. Who knows? They may come up with a new operation, new drugs, new something that will keep us alive just a little longer.
Right now you should know that the combo she will be on will have side effects that are very similar to having the flu. A BAD flu. If she gets a neulasta shot the day after chemo (or day of, if you have to drive a long way) than she may have some bone pain as well. It usually settles in around the hip bones for most people.
Stay on top of the pain meds and nausea meds. Those are both things that are easier to prevent than to cure. She should take them every 4-6 hours whether she thinks she needs them or not. She should make sure she has prescriptions for at least two different nausea meds and I would recommend 3. Zofran, Phenergan suppositories and Phenergan pills. (Emend is good, but it can cost between $60. and $200. for those 3 pills and that is WITH insurance. The Zofran comes in a pill but she will get an IV of it before chemo also. I would try to get them to give her Aloxi as it works for 5 days but I think they get a big discount for having all of their patients on zofran. The phenergan suppositories work very quickly and is the exception to the "easier to prevent than treat" rule. However, they make me sleepy and put me out so I don't want to have to take them. Have her take the pain meds whether she wants them or not.
As for food, it is sort of like when you are pregnant and nauseous. Whatever she thinks she can eat she should eat it. Sometimes meat is hard to handl though. I found the smell of ground beef was something akin to road kill and bacon smelled and tasted like a burning tire factory. Small meals more often are better than large meals. Protein is very important though. My nutritionist said I had to have 75g a day and that is a humongous amount of food. A serving of salmon has 33g, but I am not eating 4 pcs of salmon a day. Sometimes she will be able to eat, but the smell of food cooking might make her nauseous so on her good weeks she should cook up extra stuff so she can pop stuff in the wave. Also, frozen fruit was a life saver for me. I freeze a lot of fresh fruit anyway and I had peaches, blueberries, blackberries, strawberries, pear slices, & grapes. When she is feeling a little feverish they will be welcome especially if she doesn' t want to smell anything. Cold food is best for awhile after chemo anyway. Sorry to prattle on, but I consider myself the resident expert of heaving. When I was on another drug I was in the hospital every week. It was a chemo drug you do every week.
She should sleep a lot. Have her take a xanax if she isn't sleepy. It really helps to avoid some of the more unpleasant side affects if she has any and it really does make you feel better. Most of all she shouldn't rush herself to get "well". She will have about 1-2 good weeks between chemos so she will have time to do stuff. Oh, I bought a wig but now I only wear it for my husband. It is long and blond and not like my own hair so it is fun, but way to hot. I like hats. It is funny how with hair I didn't look good with hats, but without hair I look stunning, even if I do say so myself. LOL
This is the MOST important thing. When the chemo nurses start saying [email protected]
like, "we don't see that here", "we have found that xyz doesn't work well", "that has nothing to do with your cancer", "we find that xyz is generally well tolerated...", "none of our other patients complain of that" etc., don't worry, just come here and you will find out the truth!!!! They can and they will make her feel stupid and like she is the only one having a problem with whatever. It is NOT true. They don't do it because they are mean, they do it because they don't want us to worry about stuff, but they don't get it...we worry more when they try to make us feel nuts.
Good luck and have your mom come on here. I think it would be good for her.