reoccurance of borderline/ low malignancy potential in bowel ;-(

[Heffmeister]

Sadly I am back here in little over a year with a reoccurance of my borderline mucinous tumor 1C. I under went proper staging (with a second opinion on the pathology ) and a complete hysterectomy in June last year aged 32 and yet an MRI and CT scan have showed growths in my bowel. I also have a  painful swollen area low down on my left side which they are not sure what it is yet- reports from scan just say "thickened tissue". The scans were prompted by the pain and my ca 125 was rising gently (didn't know previously if this was a marker for me or not).

My consultant plans open surgery and removing it all in a few weeks which will mean a full length midline incision and bowel resections. He won't do chemo/radio if it is all still borderline. I feel quite terrified and sorry for myself as borderlines are supposed to have such a "good" prognosis. My tumor ruptured which is why I presume I have been unlucky. I feel scared for my two little girls who do not understand why I have to go into hospital again.

Anyone else in a similair situation or have any words of wisdom??




This discussion is related to Other borderline ladies around? .

[Heffmeister]

Thanks Charlie, nice to hear from another borderline lady and particularly one in the UK. I'm having this surgery done in Cheltenham which is almost 2 hours away from home. Not great for visitors but there is no choice as local hospital don't seem to have expertise to deal with me now. I got the date today it's going to be done on the 11th August.

I'll have a look at Ovacome, thanks for the tip. Now off to eat cake as I need to gain weight for the surgery!

[charlie107]

Hi there

I am so terribly sorry to read your post. You poor thing, you have been so unlucky.Of course you are terrified , you would not be human if you weren't.

I also had a BOT removed in 2010 and we corresponded then. I haven't had a recurrence , but did have an extremely traumatic  second operation. However I do want to send you lots of cyberhugs.

I can only imagine how you must be feeling, especially with your little ones. However you are obviously an extremely strong young lady and you will get through this.

I have a couple of suggestions.

You are obviously in the UK , as I am . I spoke to the Ruth, the support nurse in Ovacome, an OC charity, who was absolutely fantastic and extremely knowledgeable . She offered to put me in touch with other borderline ladies, so I would highly recommend that you consider giving her a call.You can also post on the Ovacome forum and may well get responses from ladies in similar situations.

One word of advice I always remember is to use every resource available to you to try to get through this, family , friends etc etc. If you do get very low emotionally do please get help, either prescribed or use the many on line resources like computerised CBT. I have found this to be extremely useful.

Do take care and let us know how it all goes.

Charlie xxx