You are all so sweet. Thank you so much. This means so much more than you can understand. Bless you all.
I am so sorry to hear this......for you and your daughter. My daughter is almost 17 and I can't imagine how hard this is on both of you. You are in my prayers for peace for both of you and for your surgery to go well so that you can beat this!
take care and stay strong
Lynn
Jeez, I was reading all your posts and you have been through so much. I can feel your frustrations about everything, and being sick and not taken seriously. I am so sorry you went through all that. I will pray for you and whatever the outcome that you will get the best care from here on out!
Just wanted to say I am praying for you that things will not be bad. I am glad you found out at last. I went through the gyn thing for a year, and he still didn;t diagnose meat 2 days before my cancer was found at 3c. I hope you get thru surgery with flying colors and on the road to recovery. Thinking of you, Donna
Colleen thank you so much for your thoughts. You are absolutely right that is best to let our kids know what is going on their parents. My daughter and I are very close because we have been through so much together.
Marie thank you for your prayers and for telling me about your aunt. It helps to know that people have made it through this with flying colors.
Helen...thank you so much for answering my post. I was hoping so much that there were people out there doing well after a brain metastasis. 5 years and 2 months is absolutely incredible and inspirational. I knew I was having nuero problems, but I never thought from OVCA because I had a head injury 7 years ago (lovely husband) which damaged part of my frontal and parietal lobes. 6months recovery and change in job. It left me with poor memory so I have to write everything down. When they did the MRI they saw lesions on the thalamus and medulla oblongota. They were also saying there is some edema. The doctor and radiologist felt strongly metastasis....needless to say I was overwhelmed.
First of course I am going to have my hysterectomy and staging if it is indeed OVCA. Like you said..I will worry about that first.They plan on a stereotaxic biopsy and a lumbar to check for tumor makers. I was told after surgery they will give me some decadron to try to help with some of the edema.
I really appreciate your help and look forward to talking to you. Kimmie
I've had ovarian cancer for 5 years and 2 months. After a year and a half I had eye, etc. neurological problems. I had brain surgery in Nov 2004 and Dec 2005. My neurosurgeon said it came from the lung or the breast. It was then found that I had some cancer in a breast lymph node.
It is so rare that it goes to the brain but does happen as you see in my case and also Christy on this forum (newlifegal). My husband's chiropractor just had surgery for a benign mass in her brain and she has cysts. We do not know.
I will tell you if you get a really good neurosurgeon that an operation on the brain is not painful. I came out of telling my sister that she needs to work on her posture. But it does slow you down and numb you out from thinking clearly for a few months. And it all depends on where it is in the brain. I was lucky that the places I had it were operable.
I am sending you love and prayers that your hysterectomy goes well on Thursday. One thing at a time. Please don't think about your brain now. And when that time comes, I'll be here to help. Helen
P.S. When found in the brain everyone thought I just had a few months to live.
I am so sorry. You are having to deal with so much. Thursday is a long time away when you have so many unanswered questions. I, too, have a 17 year old daughter. I will pray for you and dear daughter. I hope they find that all is going to be fine. Whatever happens you can fight it big and be okay. You are not alone. I will tell you that my aunt had a mass in her brain metastasized from lung cancer. She was treated with radiation and is FINE. That was 8 years ago. Love and prayers, Marie
I have read your post over and over and wanted to respond but not quite sure what to say.
I can't offer advice since I have not gone through what you are about to go through, but I want you to know that I will keep you in my prayers, my heart and my thoughts. Please, please let us know how you are doing after your surgery.
I am sorry about your daughter. I can imagine how rough that must have been for both of you. I can tell you that I think, as rough as it is, our children have a right and a need to know what is going on with their parents. It is so hard though.
I just want you to know that I am thinking of you,
Colleen