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Ovarian Cysts Community
6.07k Members
463897 tn?1468017350

Introducing a new Co-Community Leader

Hi,

Please join me in welcoming Fungirl1011 as your new Co-Community Leader for the Ovarian Cyst Community working alongside Marie Michelle.  Fungirl1011 has experience, background and knowledge as it relates to  Ovarian Cysts, and we look forward to working with her as your community continues to improve and grow!

Best,

Cheryl
MH Community Mgr
13 Responses
Avatar universal
i am thrilled with the news she truely deserves it a very special person that has that magic touch ,if i could send her a bouquet of flowers i would this forum is very lucky to have fungirl and marie michelle, its people like them that make it so special well done ladies x
1293472 tn?1274555109
absolutely well done to you, you inspire people with your wealth of knowledge and continued support. What would we do without you. Carry on with the good work debsx
Avatar universal
That's fantastic, I read a lot of posts and she's right up there giving fab advice and reassurance :-)
Avatar universal
well done fungirl, you've always been so helpful to me, you answered all my posts, sometimes you were the only one who did - thank you!
225036 tn?1294513000
Thanks for such the warm welcome ladies!!  I am SO excited to advise and support each and everyone of you!!  I have made some great friends here and look forward to meeting many more.  

I have had a TON of experience with cysts.  I started getting cysts when I was 14 or 15 years old.  I was actually hospitalized overnight when I was 14 or 15 (I can't remember that far back LOL) due to a ruptured cyst (they told my mom that my ovary was enlarged and it would be just fine after I had my first child.  BIG HARRY LIE!!).  From that time on, I have had terrible periods.  Very painful, heavy and clotty.  Of course back then we didn't know anything was wrong.  When I was 25, I had a hysterectomy (ovaries left in) due to very heavy bleeding.  When I came to, he told me my uterus looked like a cobbled stone road (stage 1or 2 endometriosis) After that, I was good for a few years.  When I was 29 (in October) I went to the ER with horrible back pain.  When they did the transvaginal ultrasound, they found that I had a 12cm cyst on my left ovary and was admitted to the hospital and had the cyst removed the next day.  About 5 months later, I had that oh too familiar back pain, only this time I was getting HORRIBLE pains in my calf too.  In may, a week before preschool graduation (I was a teacher then) I had laprascopic surgery for a 15cm cyst.  I left the hospital on a Wednesday (same day) and could not sleep or breath lying down.  I called the Dr the next day and told him I was feeling very sick so he gave me suppositories for the sick feeling.  By that night, I was throwing up even a little piece of ice.  The next day, I called the Dr back again and was told that I was fine as long as I was not running a fever.  Well, about an hour later I had a 103 temp and was throwing up green.  By this time it was 3:30 and the doctor's office didn't call me back until 4:30 and told me if I could get to the hospital (half hour away) by 5 the doctor would see me.  I got there at 5:55 and he had CHECKED OUT!!  I had to sit in the ER for 6 hours (3 ambulances came in) before being seen.  Since my doctor left, they had to start from the beginning.  I had a TVUS done and then they said I needed a CT scan.  They wanted me to drink 2 bottles of dye, but I threw the first drink up.  I had to have a tube put up my nose and down into my stomach.  By this time it is about 3am.  Also by this time I was so out of it and don't remember much.  To make a very long story shorter, I ended up having another major surgery on that Sunday due to my ureter tube being ripped out of my bladder (the doctor didn't check everything after the ovary was out) and my abdomen was full of urine.  All of my abdominal organs were floating in urine.  I was in the hospital for 1 week and looked like a drug addict due to all of the brusing on my arms from all of the blood that had to be drawn.  It took me about 5 months to recover from that ordeal.  The following May, I had surgery to remove my other ovary and another 9cm cyst (dermoid).  Thank goodness, that one went very well.  Once again, I was doing well after that surgery but it didn't last very long.  I had to have  3 other abdominal surgeries due to other problems.  In July of 2008, I finally found a doctor who believed me and my pcp and did a transvaginal ultrasound and found that I have Ovarian Remnant Syndrome on my left side (due to the bad surgery mentioned above).  She removed the cyst and through all would be good. NOT the case.  The following June everything familiar started happening again.  My pcp did an FSH test (I had been off of HRT for about 4 months) and found that I had normal levels of hormones for a woman who has working ovaries!!!  I lived in pain for 8 months and finally had a CT scan done only to be told nothing was there.  I knew different.  Finally in March of this year, I had a TVUS done and low and behold, I have another cyst on the left side.  I say my gynecologist in April and was scheduled for surgery this June (June 8th).  In the two weeks from my TVUS to the doctors appointment my cyst had grown 3cm.  

I'm sorry this is SO long, but I wanted you all to know about me.  I look forward to learning all about you all too.  I love you ladies!  
Avatar universal
wow what can i say you definatly have the experiance you should write a book and here was me moaning over one dermoid ,you have been trew so much you must me super woman i did often wondered how you always knew what to advise , you are amasing you deserve to win the lotto .
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