Send best wished for your surgery Monday! Keep us posted how it goes, and if you do find the symptoms disappear!!
I can so relate on the mental havoc - I am way to conscious of everything, now. 9 weeks post-op, and wheels are still turning. I noticed some digestive problems starting to re-appear, so am now trying to analyze what's going on there :P
My surgery is scheduled for Monday. They're also removing my appendix, since I guess there is some correlation between ovaries and appendices for mucinous cysts. I've started having some dull pain in the general area of my right ovary...I went ahead and scheduled another ultrasound with my primary gyn, mainly to see if there's been any change since it was found. (It's only been 2 weeks, but my husband thought it was a good idea.)
It's crazy how having something "wrong" creates havoc on your mind. I had bad gas pains earlier, and start thinking there must be something else wrong. Other stuff I'm currently blaming on this cyst: my broken-out face, bloating and 5-lb weight gain, and irritability/feeling 'hormonal'. I'm going to be disappointed if that all doesn't go away with the cyst! :-)
I had a robotic lap to remove my uterus. Your recovery should be MUCH easier with that!
Well, I'm very happy. Had my appt today, and the dr is going to do a robotic laparoscopy, and only going to take the ovary if it is LMP. I was prepared for/expecting a laparotomy with complete hysterectomy, so that was great news. I'm supposed to have it done in the next 2 weeks...will post afterwards how it goes. :-)
Thanks! I didn't think I would have a hard time with this, this time around, since last time I had the pregnancy complication and this time it would be 'no big deal' in comparison. But I'm still thinking about it all the time, and my main concern this time is if they have to remove the ovary, it's my last one and I'll have to do HRT for probably 15 years! If I do, it is what it is and I'll deal with it, but I hardly ever take medication for anything (even childbirth, lol) unless I'm really sick, so of course that idea is not exactly appealing.
Also, my gyn office called me today to make sure I had made the appt with the gyn onc. So either they are just really on the ball following up with me, or my dr is really concerned and wants me to see the specialist ASAP.
I've never had the ca125 test...I wonder if they'll do that this time or if the US alone is enough to warrant surgery, then they'll just test the tissue.
Well, I might as well get some sleep and stop thinking about it. I'll update when I have my appt...
Hi jbesmom,
So sorry you have a recurrence of a complex cyst!
I am 36 years, and 7 weeks post op for removal of a 14cm Stage IIB LMP tumor. I too was not able to have laparoscopic surgery - had vertical laparotomy. I had my right ovary, tube, omentum, 30 lymph nodes and some pelvic tissue samples removed. I am also fortunate to have a wonderful gyn/onc who I feel very confident with. Pre-op, my CA125 was 105. Last week, my CA125 was 8! Yay! It was reassuring. My onc is also taking my slides to a tumor review board meeting at the end of this month, where additional pathologists and oncologist will review. I won't hear anything from it, unless for some reason others disagree or have other concerns.
I too do not have fam history of ovarian, breast or colorectal cancers. I have no biological children, but was on birth control pills for many years.
I agree the recovery, especially the first few days, was the most miserable I've ever experienced. Having your abdomen sliced open vertically has such an impact. At week 7, I still am limited when an muscles are involved. I am tender yet internally, and I feel strain when I reach too far, list too much, etc.
As much as I never want to experience that again, if I were in your situation, I would opt for surgery. I have talked with several woman over the past several weeks who have had recurring LMP tumors, and some who later developed aggressive ovarian or other cancers. Not trying to come off negative, but a couple women were pretty quick to warn me to mot take this lightly and be very aware of my body going forward. I know some doctors seem to dismiss LMP as cancer, or as a concern. My gyn/onc has stressed the seriousness of it while also reiterating it is a very slow growing form of cancer with excellent prognosis when all suspect cells are surgically removed. He told me, it was his opinion, had I been 10 years older, it is likely I would have an aggressive later stage ovarian cancer.
So, anyway, if it was me, I would definitely have it removed, especially since there is no way to diagnose with certainly without surgery. I still have my left ovary, and recurrence is definitely a concern of mine. I know there will be some anxiety during my 3 month gyn/onc visits.
Best wishes to you!! Let us know how everything goes.