566158 tn?1216560869

A concerned friend...

I've been up this morning researching a close friends symptoms. I've been worried about her for a while and the Dr's don't seem to know what's goin on. She has Celiac, which she manages through diet.  However, over the past six months she has started to have severe muscle pain in her arms and legs and sometimes her limbs swell and turn red when they hurt really bad, and she gets really hot when this happens. Do you all have any ideas about what I may be able to research for this or what could be causing this?
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Avatar universal
I have rsd- your friends symptoms sound like mine...please have her see a good pain management doctor..she can contact her primary care doctor, or a regional medical center will have a pain management clinic where she can get help. Please tell her there are others out here who know and understand what she is going though. Unfortunately for me, I wasn't diagnosed until very recently, even though i've had symptons for a year and a half, so at this point mine is probably irreversible. I hope and pray hers isn't rsd, let her know she is welcome to join us here. She is very lucky to have a good friend like you! God bless...Tresa47
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566158 tn?1216560869
Thankyou all for all you help! I have forward all this information to her. Thanks again!
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168348 tn?1379357075
If there is any chance you have RSD please get to a Dr. to get into physical therapy ASAP because if true RSD is left untreated and progresses too long, it can be irreversible.  My daughter had 2 bouts of RSD (one in pinky and her elbow) and it was diagnosed by her rheumatologist and her orthopedist and both rounds of P/T proved helpful with the use of narcotic meds under close supervision (short term) to break the chain of the pain stemming from the sympathetic nerves to her brain.  She had swelling, discoloration, mottled skin, and loss of range of motion.

My daughters very rare cause was from a case of mild spondyloarthropy which manifested into RSD .. there is a very small blurb on the bottom of the ARthritis Foundations website!

Also be aware of many RSD sites out there not too good .... please use the one Sandee recommended or others you feel are bonified sites.

BTW, my daughter is RSD FREE!
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356518 tn?1322263642

Causalgia, also known as Chronic Regional Pain Syndrome, is another term for Reflex Sympathetic Dystrophy Syndrome, a chronic condition characterized by severe burning pain, pathological changes in bone and skin, excessive sweating, tissue swelling, and extreme sensitivity to touch. The syndrome is a nerve disorder that occurs at the site of an injury (most often to the arms or legs). RSDS is diagnosed primarily through observation of the symptoms. Some physicians use thermography to detect changes in body temperature that are common in RSDS. X-rays may also show changes in the bone.

Complex Regional Pain Syndrome
Pain is the main symptom of CRPSThe main symptom of chronic regional pain syndrome (CRPS) is a severe, continuous, burning pain in some, or all, of a limb, such as one of your arms, legs, hands, or feet.

The pain that you experience in CRPS is triggered by an injury, and it is a lot worse than you would normally expect. For example, although you may have only suffered a minor sprain to your ankle, the pain can feel like a severe burn.

If you have CRPS, the skin of the affected limb can become extremely sensitive, and even the slightest touch, bump, or change in temperature, can provoke a feeling of intense pain.

In more severe cases of CRPS, the muscles in a limb may begin to wither (atrophy) because the person is unwilling to make use of their limb due to the associated pain.

Other symptomsAs well as pain, other symptoms of CRPS are outlined below.

Alternating changes in skin temperature - sometimes your skin may feel sweaty, while at other times it may feel cold and clammy.

Changes in skin colour - your skin tone may range from pale and colourless to pink, or it may have a blue tinge and appear blotchy, or streaky.

Changes in skin texture - your skin may appear shiny and thin.

Changes in the way that your hair and nails grow - your hair and nails can grow unusually slowly, or unusually quickly.

Swelling, pain and stiffness in affected joints.

An increasing difficulty in moving the affected body part.

peripheral edema

Here are a few things I have found for you, I will keep looking:)
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Avatar universal
Has she tried Probiotics, ACV or Aloe Vera drinks?? I don't have Celiac, but do consume these on a regular basis....if you don't like the taste of Aloe, add some powdered flavoring... In the meantime, here's another site with similar issues:
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535089 tn?1400673519
If you find out let Mollyrae know. I deal with this on a daily basis since December and it is getting worse. Drs. can't diagnose.  Help me too!
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356518 tn?1322263642
I don't know but I will see what I can find out for you, it is great that she has such a great friend that looks out for her:)
I ill get back to you as soon as I can. I am sorry I have been so busy and haven't had much time online.
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