I am sorry for the late response.Are you seeing an Ob Gyn doctor? You could have any number of problems causing your pain. I would definitely have an ultrasound done. Do you have fibroids or was there and scar tissue when the IUD was removed?
As I said there could be a host of problems causing your pain. I do believe they are gynecological in nature from your symptoms.
I would see an obgyn specialist.
Have you applied for state medical help? This may help your medical bill burden and get you in to see a specialist.
It still could be endometriosis even though you've tried birth control. I am 28, and a chronic pain patient, in a pain clinic on high doses of narcs. I was diagnosed 7 months ago by a laparoscopy. Endo can cause severe lower back pain, hip pain, sciatica pain, leg pain, pelvic pain, abdominal pain. Before my lap I tried several different forms of birth control and none of them alleviated my pain at all. My ob/gyn told me that BC hardly ever helps endo pain. You need to ask your ob/gyn about a diagnostic laparoscopy. It's same day surgery, only takes about an hour, and it is the only way to diagnose endo., and at the same time they could remove any implants, or scar tissue which could lessen your pain. No one listened to me either, it took three years of hounding multiple doctors before I got my diagnosis. Be persistent.
I have heard that removing tissue via laparoscopy is only a temporary fix and can create scar tissue that makes the endometriosis worse when it does come back. Have you heard that?
Have you tried the Mirena IUD or know of anyone who has?
There were no problems when I had the IUD removed, and no pain during or directly after the removal. I have been seeing a midwife because she is more affordable than a GYN. I make just enough money not to qualify for any state or government assistance. I could buy health insurance but this is a pre-existing condition and wouldn't be covered for 12 months. I'm stuck.
I went to a gynecologist recently, because my midwife was unable to offer me advice about which birth control pill to try next because Yaz did not agree with me. At that time, the doctor told me that continuing with physical therapy was my only option and did not believe that my pain could be related to anything gynecological. I know that it has to be. The challenge is finding a OB/GYN that will listen and believe me.
Thank you for your reply and your advice. I am definitely going to have an ultrasound next. I also have a referral to pain management which I am going to make use of very soon.
I personally didn't try mirena, I tried nuvaring, depo-provera, and several different kinds of pills. A dx. lap is the only sure way to diagnose endo. In most cases an ultrasound is completely normal, even if the woman has a raging case of it. A laparoscopy is only a temporary fix, and if you have any endo scar tissue depending on where and how deep it is, sometimes it cannot be removed. They remove what scar tissue they can, and any visible endo implants. There will still be microscopic endo tissue left behind, and your hormones will feed this tissue causing it to become bigger, and spread. When it spreads some endo implants will die off leaving behind scar tissue. Depending on how much micro. tissue is left behind after the lap. determines how long it takes for the endo to run rampant and cause pain again. The only permanent fix is a complete hysterectomy (everything), or a hormone called Lupron. They give it in shots, and it basically shuts down your ovaries, and sends you into menopause. If your planning on kids in the future this is a good option. It will keep the endo from destroying your fertility, and once you stop using it, you can get pregnant.
Be persistent, I was sick and in pain for three years getting progressively worse, and seeing multiple doctors before they found out what was wrong. I saw my ob/gyn several dozen times, and called every two weeks for a year before he finally did the surgery. The symptoms are as follows:
back, hip, abdominal, sciatica, or pelvic pain
irritable bowel like symptoms
diarrhea during period
pain when you pee or have a BM
blood in stool or urine during period
irregular bleeding or spotting between periods
passing blood clots during period
Those are the general symptoms, you could have more depending on where the endo implants are. Endometriosis can go ANYWHERE in the abdominal cavity. It can also implant on your sciatic nerve, or other nerves.
Thank you so much for all of the information and for taking the time to try to help me. I'm so glad that I found this forum because the people here seem to care about me more than my doctors do!
I have every one of those symptoms, which have been getting progressively worse for years and they worsen each month before and during my period. I only have sciatica if I'm menstruating.
I used the nuva ring for a year. I had 7 UTIs in those 12 months. I have a retroverted uterus so that changes the position of my cervix (which I have only recently found out), and I always thought that the nuva ring was not in the correct position in my vagina. It seemed like it was putting pressure on my urethra. At that time my only doctor was planned parenthood and they denied repeatedly that the nuva ring could be the cause for 12 whole months. They then refused to treat me anymore unless I went to a urologist. I don't have the frequency of UTIs anymore but I feel like I'm more succeptable to them because of that. Perhaps they could be caused by endometriosis.
I have also had alarmingly large blood clots for the last couple of years. They last throughout my entire period. My midwife and the gynecologist I saw did not seem to think that was a cause for concern. Apparantly it is!