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Avatar universal

Chronic kidney stones?????

Hi all, I'm hoping someone here can answer my question. A little background, I've had kidney stones for the last 14 years since the age of 18. I used to have one or two a year with 2 3 year periods of no stones. However since last november I've passed stones monthly with an increase in the last 3 months. Im now passing stones at least on a weekly basis and at last count had at least 7 in my left kidney. Basically they're now forming as fast as they're passing and I'm in almost daily pain for the last 3 months. My urologist has referred me to a pain management dr and my appt is still 2 weeks away. My question is has anyone here seen a pain management dr for pain related to kidney stones? If so can you shed any light on what to expect? Ive never been to this type of dr before so i don't really know what he can  or will do for me and can't find much info online about this particular kind of situation. I have 3 children that I'm trying to take care, 2 of whom are under 18 mos and really hoping this dr can help me function better day to day. Thanks in advance to anyone who can answer my questions
6 Responses
3149845 tn?1506631371
Hi, a pain management doctor will assess your injury and recommend you to other specialists for diagnoses. All the results come back to him and he will monitor and advise what pain treatment should be taken. Hes like your primary care doctor but for the specific injury that you have.
I have been dealing with chronic kidney stone pain for 20 yrs now and I'm at my wits end, It seems no doctor can help me and no doctor wants to help me, I've beg both my kidney doctor and my pcp to help with the non stop pain and I just get the run around. I feel helpless, some days I feel like I'm going out of my mind, wondering if any Doctor give a damn to help me so that I can live somewhat of a normal life again. My Urologist went as far as to say to me " you need to just learn to live with it" What? I told that same statements he said to me to my PCP and when my Pcp took over the care and I've gone in and told him his treatment isn't working, It was put to me; it's this or nothing. All I could think was welcome to hell. I feel so helpless and wonder why the are not doing more for patents with chronic kidney pain and kidney injury
7721494 tn?1431631564
I think we are taking specialization a bit too far. I've never known a urologist unwilling and unable to treat the pain of kidney stones.

And you have no other chronic pain condition?

Things are getting out of hand when a licensed physician is afraid to prescribe pain medication for a condition known to cause severe pain.

When are people in this country going to wake up and demand that the "war on drugs" which is a war on pain patients, be ceased, that the DEA be disbanded as a corrupt and inept bureaucracy.
Avatar universal
Hi. May I ask what else has been done? What about Lithotripsies? What about your diet, a high protein intake can contribute to kidney stones. I can't imagine pain meds is the solution. Have you seen a different Urologist, for a second opinion?
Avatar universal
Hi, this is the second urologist I've had. The first ran some tests and told me my stones were likely a genetic issue and told me to cut out all caffeine and stay hydrated to help minimize stone formation. My current urologist has no other insight. Ive had one lithotripsy in the past that I'm still paying off. I can't afford another, I'm uninsured and currently unemployed and the procedure would cost around 8k which i just don't have. Most of my stones are passable and the largest ones haven't tried to pass as of yet. When they do I'm going to have to figure out a way to pay for the lithotripsy so I'm exploring my options. For now though its just a matter of waiting to pass these and hoping they stop forming so quickly. Trust me if there was another option id be happy to look into it. My father has the same problem although he's *only* passed 5 stones this past year and he hasn't found any more answers than i have.
Avatar universal
Thanks for responding. No i don't have any other pain conditions. Just stones and kidney infections as a result of the stones. I take antibiotics about 2 weeks out of every month to keep the constant infections at bay which i can't imagine is good. Im assuming he refferred me to the pain mgmt dr because he's afraid of prescribing pain meds on such a regular basis. I can understand it but its still not easy for me because I'm uninsured and can't really afford to add another dr to the mix.  I can understand him being leary i suppose but I've had 2 ct scans and 1 X-ray in the last 2 1/2 mos all showing multiple stones in one or both kidneys and in the ureters. So its a documented issue, i wouldn't think anyone would look at him like he's prescribing unnecessarily.
Avatar universal
Thanks for replying. My urologist doesn't have any idea why I'm forming stones so rapidly so I'm not sure who he might refer me to as for looking for an underlying cause. Although if he does and one is found i'll be beyond relieved and thankful. The near constant pain is really taking a toll on both me and my kids.
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st. louis, MO
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