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Avatar universal

Diabetic with neuropathy addicted to pain meds

I have sever neuropathy in my feet, legs and hands. I started going to pain management for it about 4 years ago. I was already taking 3200mg of Neurotin, 120 mg of Cymbalta a day on top of 3 mg of klondipin, zofran as needed, requip for RLS s needed, but the Neurotin wasn't cutting it. I was put on 10/325 hydros, 3 a day. That was increased over the year up to 6 a day. Then they added Exalgo ER, which is a mix of morphine.

The hydros got up to 10 a day, then I told my doc they weren't working and more so they switched me to oxycodone. After a couple months those were making me sick do I went back to the hydros for a few months. Back to 10 a day but I would take 6-7 at a time to get the happy feeling and would run out and have to buy from other sources. After a few months of this I had my doc switch me again. This time it was extended release morphine and 4 mg of dilaudid 4x a day which I took as I should for 4 months.

Last Tuesday I had them switch me back to hydro and exalgo. I had took 10 at a time and then an hour later 6 more. I am having the horrible withdrawals from dilaudid and trying to get control of the hydros. My doc have me a patch, Clonidine, to help and it does some. I've been through the vomiting, diarrhea, but still having horrible withdrawals from hydros. My husband gives me one every six hours no more than 4 a day.

I will always be on pain meds because of my medical condition. Has anyone experienced this where they will always be on pain meds but can't control them????
6 Responses
Avatar universal
Hello. Look up Thomas recipe its natural to help with the withdrawal symptoms. Hang in there. Alot of people on here has massive amount of experience on pretty much every drug known to man   lol. They will be around to help with all detox symptoms. Praying for you! !!
9880688 tn?1414119247
Hi and Welcome

I think what is happening to you is what happens to most of us.  I'm supposed to be on pain meds but I got so tired of what was happening...not taking the prescribed amount, feeling sick to my stomach, etc that I just decided I can't do this anymore.  I don't feel good anymore and I wasn't being any good to anyone especially my husband who needs me to be the best caretaker possible.  So I took the jump.  I suspect that all the pill jumping is what is hurting you the worst.  

Eventually everyone ends up being addicted instead of dependent.  What happens is the brain and the opiate receptors start telling us that we are in even more pain than we are actually in so we'll give more drugs to those receptors.  We have people in here with way worse medical issues than you have who are now dealing opiate free and all of them say that their pain is much less than it was before.  In my case I'm only 69 days in but the pain is already less than it was when I was taking the oxy's.  

I really don't want to give you what will only be a panacea for what you are feeling right now because I'm afraid if I do you won't address the real issue.  You need to talk to your doctor....tell him truthfully what is going on and see if there is another way to help you.  If nothing else they have got to quit jumping you all over the place on the pain meds...that is doing you more harm than good.

If you do decide at some point that you want to try a life opiate-free and see if you can manage your pain opiate free please come here.  We will be more than happy to help and support you.  In fact I think you should come back for the next several days and talk to some of our long-timers who are dealing opiate free now.  

Some of them have stories that make me cry and make me feel like such a wimp complaining about the issues I have...and now they are dealing opiate free.  

Please talk to your doctor okay?  Be truthful about everything...they need to fix the problem...you should not be feeling the way you do...not if they are managing your medications and your pain properly.

Take care and post again~
Avatar universal
Thank y'all so much. Yesterday I only took two hydros. One in the afternoon and one late evening when the neuropathy hurts the worst. I'm shooting for just one for the evening only if I feel excruciating pain. My withdrawal symptoms are getting better.

I know there are people with much worse medical conditions. I envy and praise God for their accomplishments. I have talked to my doctor and he put me on the Clonidine patch. It helps with the withdrawals tremendesly. I do want to be opiate free! After reading so many success stories, I have decided to try the neurological patch inplaced in my back for pain.

I love this forum. It has really helped ALOT!!!
Avatar universal
I have neuropathy in my right calf down, left foot & both hands. Mine is better without the medication. I do use a lidoderm patch for my right foot.
I think my meds were making my pain worse.
9880688 tn?1414119247
That's so awesome.  Great news that they have something that might actually work for you.  If you are having symptoms right now that are hard to deal with please post and let us know.  We have a list of different things that can help with symptoms...can't get rid of them but we can make them easier for you.

7721494 tn?1431631564
Yes, some chronic pain patients develop addictive behaviors.

There are many ways to handle this -- hydrocodone seems to be your drug of choice. You may choose to stay away from HC.

Bumping the long acting medication and dropping the breakthrough dose is another way of dealing with this.

Finally, switching to either methadone or suboxone is another choice.

Talk with your doctor about the problems you experience with HC.
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