Endo pain and Lupron

[B5000]

Hello. I was wondering if anyone has had a good experience with lupron to treat the pain for severe endometriosis?
My pain is so bad that I spend 90% of my time in bed or lying on the couch. I know that lupron can have horrible side effects, but I don't think the quality of my life could be much worse.
Please, I'd love to hear anything positive or negitive about experiences with this drug. I really hope to hear that it's helped somebody.
Thanks!

[LivingInHope]

Since you sound like you are disabled by this severe endometriosis, why not apply for SSI (or Social Security disability if you have the work units) and see if you qualify?  With SSI, you would then be qualified for Medic-Aid insurance.

[B5000]

I decided to get the shot. I got it thursday and the next morning I woke up in the worst pain ever! I can feel every adhesion in my body... It's awful! Other than that I haven't experienced anything else yet. My dr. told me it would cause it to flare up and get worse for the first month so I expected the pain. Not having insurance is keeping me from getting a hysterectomy and I hope the lupron can hold me over til I can get the help I need. I was able to get the shot for free from needymeds and I'm greatful for that. I'm really worried that the endo has become so bad that even surgery might not give me the relief I seek. I've had endo since I was 14 and I'm 31. My last visit to the ER when they did the ultra sound the ER DR said he could see the lesions and that he's never seen them on an ultra sound before and that I needed to get treatment asap.
@geegee143 - how long did it take before the lupron started to help, and how long did it help?
I have endo everywhere it's all over my back abdominal wall, I have several chocolate cysts, and it's sticking my organs together. I did BC for years and no periods, but it stopped helping.

[geegee143]

I did 3 courses of lupron and expected all crazy SEs.  I had NONE.
I would be in a bathtub of cold water when I was a teen since noone ever treated me since it was 'lady problems'...anyways I take BC without break to suppress the period at all which has been working for me and was easier than taking the shots to my dr. which is how it's done where i live.  I had my endo confirmed but unfortunately it was what my doc called a powder burn type where there was nothing they could burn or remove - it was just EVERYWHERE...

So while it worked like a charm, until I'm kicked off BC I'll do that and go to this again if menopause isn't far off.  I was 37 when I did this treatment.  I've had endo since my very first period @ 13.

Good luck - take all cautions seriously but know that it is possible to have none.

[LivingInHope]

Depo-lupron was something a gyn surgeon tried to push on me after an emergency laporotomy where severe endometriosis was discovered.  

But two family members did research and were strongly convinced this was not a good idea.  Not only was the drug designed to treat men for something (think it was cancer), but it had plenty of side effects.  Additionally, the saftey of taking it long term was not established, so it would only buy a few months of possible benefit.

The following year, just days before my complete hysterectomy, I succombed to the ER trying again to push Depo-lupron on me- I was desperate enough to try it for one injection, provided it would not interfere with the hysterectomy going forward.  The needle was the longest I'd ever had stuck in me in my entire life.  It felt something like a tetanus shot after that.  I can't tell you if it did any good or not, having gotten the complete hysterectomy just days later.  

May I ask you what decade of life you are in?  

[Dr. Kokil Mathur]

Hi!
Lupron has given mixed results where endometriosis is considered. In some cases it has resulted in a great relief from pain and reduction of lesions. However, in some cases it has caused serious side effects like cysts in breasts, tumors, irregular heart beats, vaginal bleeding, dizziness etc. You can only know if it is beneficial or harmful if you take it. So please discuss with your treating doctor. Take care!