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Pain Management Community
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358486 tn?1294776388

FIBROMYALGIA PAIN MANAGMENT?

IS ANYONE UNDER GOING PAIN MANAGEMENT FOR FIBROMYALGIA?
11 Responses
Avatar universal
Probably better to post under the Fibromyalgia forum.
Avatar universal
I totally disagree with High Noon.  Considering that this is the Pain Management Forum, I dont find that Brandy F should be limited to the Fibro forum.  Pain is pain.  I happen to have Fibro, nerve damage, chronic intractable pelvic pain, that is so severe that I finally broke down after 10 years of suffering and was referred  to a pain management specialist ( one that knew of neuropathic pain instead of only orthopedic pain) and a pain psych(there is a grieving process that occurs when you have to live with the fact that you may never be pain free, whole, or the person you used to be).
  The pain of Fibromyalgia can be so severe it has been likened to late stage cancer pain.  This pain is so severe that pain left untreated can in and of itself, become a disease, Intractable Pain.  It messes up your blood work and other functional systems just from the pain itself. In my case, 15 years of constant, non remitting pain, not even for a second, has turned into intractable pain.  Yes I would see a pain management specialist if you are in moderate to severe pain due to Fibro.
Fibromyalgia is a real disease, not a  hypochondriac's disease du jour.  Ignorance and lack of compassion are not prerequisites for using the pain management forum in fact the exact opposite is true.  Fibro has been around for centuries, just because the doc's cant cure it, doesnt mean it doesnt exist.  I have found that people like High Noon are just uneducated about this debilitating disease, otherwise one would not be so condescending and dismissive of your suffering.  If you have Fibro, you have every right to post in the pain management forum.  It may not be cancer, but it is worse because there is no end in sight, just constant severe disabling suffering.
High Noon, thanks for the compassion, I am sure you are the only one qualified to determine which diseases should or should not have enough pain to be allowed into the pain management forum.  How arrogant!  I hope that High Noon will develop some compassion instead of telling people where they can post or not.  High Noon are you a moderator? If so you are very ill informed about Fibro and nerve pain.  Maybe you have orthopedic pain and cannot even imagine what kind of suffering Brandy F is going through, mabe that is why you told her to post under Fibro. I believe her question was quite relevant to the pain management forum, I guess that is because I am educated on the disease.
Would you have told her to post under the cancer forum if she asked if any cancer patients were undergoing pain management?  I doubt it.

Brandy F, you have every right to ask this question under this forum.  YES many Fibro patients are forced to have to see pain management docs. Please feel free to post again under pain management if that is your question.  Some pain management docs really do understand how debilitatingly painful, and they do help with the quality of life.  High Noon why dont you look up chronic intractable pain, see what it says , and then tell me that she doesnt have the right to post here.
Brandy, please go see a pain management specialist, the meds do help.  As a fibro patient you are aware that we dont sleep correctly, or get real sleep because the pain wakes us up through out the night, without us even knowing it.  The pain effects every muscle, every ligament and tendon, and every movement we make hurts.  I used to be uneducated and believed that Fibro was just psychosomatic, until I became educated and know better now.
It is hurtful to those of us with Fibro to have our disease discounted, in this case discounted to the point where we are told we shouldnt post under a pain management forum.  

A good pain management doc will determine based on your history and dx's what the best course of treatment will be for you.  Some Fibro patients benefit from Interstim, it didnt relieve pain for me just spasms.  Most severe Fibro cases are given a long acting pain drug like MS Contin which is time released so you get coverage all day without the severe pain, they may also try tricyclic antidepressants which aid in making the pain meds work more efficiently.  I also have break through meds for times when the time released drugs dont cover the pain, breakthrough meds are usually like Lortab, Endocet, (acute pain relievers) like the ones given to people following surgery or have a broken leg.  Chronic unrelenting pain requires the underlying time released meds and breakthrough meds.  If you have any questions or want to talk more please contact me directly.
High Noon is just another of those that if they cant see it , it must not exist.  If High Noon is a Christian I am going to laugh myself silly, as you cant see God so he must not exist according to that train of thought.
I look perfectly normal, but my life is far from normal.  I wake every morning at 4am in pain and there is not a second in my day that I am not in pain, even with meds.  The meds do help take the edge off of the pain so that you can focus on tasks at hand and not be entirely occupied by the pain.  You still feel the pain, it doesnt ever go away completely, it just makes your quality of life better.  Research has shown that only 4% of patients using pain meds get addicted to them.  They are probably the ones that are the "drug seekers" that make life more difficult for those of us with real pain.  
Brandy, I wish you all the best with trying to gain some control over this disease, asking a question in this forum is a good start.  Just because I am the only one who answered doesnt mean that there are not many other Fibro patients that need pain meds or a pain management specialist.  I would also recommend a pain psych too, mine became an advocate for me and coordinated my care with the 7 specialists I see.  I have had chronic, debilitating pain for 15 years and waited 10 before trying pain meds.  I didnt want to be on these drugs but there was no choice. My pain has become intractable and has affected 3 organs ,I have had 5 abdominal/pelvic surgeries and several organs removed.  I also suffer from Interstitial Cystitis, Vulvodynia, and IBS, which are all trademarks of a Fibro sufferer.
My entire family died by the time I was 19 from cancer due to pesticide poisoning.  60 minutes did a piece on it about 15 years ago naming my valley "cancer valley" with 5x's the national rate for kindergarden cancer.  If you ever read about intractable pain, get help now dont wait the 10 years I did, because I didnt want to take pain meds, you will see how horrific it really is.  Most people with Intractable Pain either kill themselves or die from heart failure, or pneumonia.  My pain has messed my blood work up so bad I am at a very high risk for stroke or heart attack ,I am a 40 year old woman.  My triglicerides are 1240, should be under 200, cholesterol 296 way high, vitamin b 126( should be over 300 at very least or neurological symptoms emerge).  I have always eaten well, was an athelete, and would never guess my cholesterol is so high, it isnt from my diet, I can guarantee you, also my glucose fasting is 51 which is hypoglycemia.  Not a fun time either.  The only reason I am here is because of my children.  I wont die on them like my whole family died, my mom was 42.  I will fight any way I can to stay alive even if it means taking pain meds.  Fibro is a tough one and not to be dismissed lightly.  High Noon, stoner reference? At least you have one thing right, cannabis does help with pain, anxiety, and is distacting from the pain.  
Brandy, please go get help from a pain management specialist, before it is too late. Feel free to comment in any relevant forum to your disease, even if you get told your disease is not relevant to pain management, it is.  Dont let ignorant people tell you otherwise.
Kindest, Warmest Wishes to you- Lanaiwahine
356518 tn?1322263642
100% correct
PLEASE LISTEN TO LANAIWAHIE
Avatar universal
I would say go on as many forums that fit your symptoms! Although Lanaiwahie was a little harsh, it does seem that high noon tries to give his personal opinion to others more than anything else. I have found that there is much to be learned by others of many different problems. As far as pain management, everyone is different, regardless of the "diagnosis". It is important to go to different types of doctors to seek the help you need. I go to pain mgmt and physical therapy, which has not helped. However, I know that it does help many. Good luck! Let us know how things go!
Avatar universal
I just wanted to say I have fibro and no narcotics really helped with the pain.  My doctor put me on Gabapentin.  It is different as it works on the nerves blocking pain receptors..I think?  Anyhow I take 3 a day and I am pain free most days.  Of course if I over do it I will have pain but I am able to do way more than ever before. This med is not a narcotic and you get NO HIGH from it.  It is one however that you must take daily as it works only when a certain level is consistant.

Just thought maybe you may be interested.
Avatar universal
I TAKE THE HIGHEST OF A STRONGER ONE SIMLARY TO GABINPENTIN None of them take it off properly and other strong pain killers.Iam waiting to go to the pain clinic and for trigger injections. Do y know if they work. From Dorothy.
501792 tn?1261111106
High noon was probably only trying to help in the way they knew how, hoping they would get more information in the Fibro forum. I think a simple sentace would have sufice instead of a brow beating.  
Chronic Pain is mis-understood by many even those who are using it.  It honestly sounded like a verbal lashing for a simple mistake. We want understand from others about pain management were going to have to show understanding to others.  Just a thought.

As for chronic pain interfering with blood work ups, I have never heard this. Maybe I will be able to find some research on it as they would then have proof that someone suffering is being honest and not manipulating for narcotics which is why we all have such a hard time geting pain relief. It would certainly be a groundbreaking discovery. What I do know about the effects of chronic pain other than the emotional aspects is that they are finding it can cause some brain damage and effect the decision making aspect of the persons thouht process.  They believethis to be true because of how many areas of the brain are active daily in a CP sufferer versus someone who does not experience daily pain. It is kind of like an overload of senation your brain has to process on top of the usually brain activity.  That is why medications to keep pain under control are very important when it comes to Chronic types of pain.

Sorry if this was mentioned already, I really couldnt get through the whole initial post after highnoons.  
Avatar universal
I AM ALSO GO TO A PAIN MANAGEMENT DR FOR MY FIBRO ALONG WITH A LONG LIST OF OTHER ISSUES THAT CAUSE ME TO HAVE CHRONIC PAIN EVERY MINUTE OF EVERY DAY & NIGHT WITH HARDLY ANY RELIEF. I AM ON MS CONTIN
& I HAVE OXYCODONE IR FOR MY BREAKTHROUGH PAIN & I ALSO HAVE FLEXERIL THAT I CAN TAKE TO HELP RELAX MY MUSCLES. I HAVE BEEN IN CHRONIC PAIN FOR OVER 8 YEARS & ACCORDING TO MY DR'S IT WILL ONLY GET WORSE BUT I TRY EVERYTHING I CAN TO AT LEAST TRY & MAKE MY PAIN MANAGEABLE BUT I CAN'T DO HARDLY ANYTHING THAT I USED TO BE ABLE TO & I MISS SO MUCH WORK THAT I AM CLOSE TO LOSING MY JOB. AT PAIN MANAGEMENT I SOMETIMES GET ACUPUNTURE OR LIDOCAINE INJECTIONS THAT HELP FOR A LITTLE WHILE & I GET MASSAGES & UNDERGO PHYSICAL THERAPY FOR PAIN MANAGEMENT ALSO. I HAVE TRIED TAKING THE GABAPENTIN BUT IT DIDN'T WORK FOR ME & I ALSO TRIED TAKING LYRICA BUT THAT DIDN'T HELP ME EITHER & IT HAS A VERY BAD SIDE EFFECT OF EXTREME WEIGHT GAIN & THE LAST THING MY JOINTS NEED IS TO CARRY ALONG EXTRA WEIGHT, BUT YOU NEVER KNOW WHAT WILL WORK FOR YOU. A PAIN MANAGEMENT DR WILL BE THE BEST PERSON TO FIND THE RIGHT MEDICATION FOR YOU. GOOD LUCK!!
Avatar universal
I AM ALSO GO TO A PAIN MANAGEMENT DR FOR MY FIBRO ALONG WITH A LONG LIST OF OTHER ISSUES THAT CAUSE ME TO HAVE CHRONIC PAIN EVERY MINUTE OF EVERY DAY & NIGHT WITH HARDLY ANY RELIEF. I AM ON MS CONTIN
& I HAVE OXYCODONE IR FOR MY BREAKTHROUGH PAIN & I ALSO HAVE FLEXERIL THAT I CAN TAKE TO HELP RELAX MY MUSCLES. I HAVE BEEN IN CHRONIC PAIN FOR OVER 8 YEARS & ACCORDING TO MY DR'S IT WILL ONLY GET WORSE BUT I TRY EVERYTHING I CAN TO AT LEAST TRY & MAKE MY PAIN MANAGEABLE BUT I CAN'T DO HARDLY ANYTHING THAT I USED TO BE ABLE TO & I MISS SO MUCH WORK THAT I AM CLOSE TO LOSING MY JOB. AT PAIN MANAGEMENT I SOMETIMES GET ACUPUNTURE OR LIDOCAINE INJECTIONS THAT HELP FOR A LITTLE WHILE & I GET MASSAGES & UNDERGO PHYSICAL THERAPY FOR PAIN MANAGEMENT ALSO. I HAVE TRIED TAKING THE GABAPENTIN BUT IT DIDN'T WORK FOR ME & I ALSO TRIED TAKING LYRICA BUT THAT DIDN'T HELP ME EITHER & IT HAS A VERY BAD SIDE EFFECT OF EXTREME WEIGHT GAIN & THE LAST THING MY JOINTS NEED IS TO CARRY ALONG EXTRA WEIGHT, BUT YOU NEVER KNOW WHAT WILL WORK FOR YOU. A PAIN MANAGEMENT DR WILL BE THE BEST PERSON TO FIND THE RIGHT MEDICATION FOR YOU. GOOD LUCK!!
Avatar universal
Geez  LANAIWAHIE  you are being a bit defensive, It is true that Fibro, IBS ect have no definitive tests for Dx, so in fact the pain cannot be traced to a measurable source. Only an individual knows the pain they are in, and nobody has to "prove" how much pain they are in. The only issue is if your Dr. believes you, and is willing to prescribe meds. Why get so defensive?  I would also be careful comparing any pain to end stage cancer, teh suffering is immense, and the loss of dignity that goes with it is heartwrenching. Good Luck
Avatar universal
Geez  LANAIWAHIE  you are being a bit defensive, It is true that Fibro, IBS ect have no definitive tests for Dx, so in fact the pain cannot be traced to a measurable source. Only an individual knows the pain they are in, and nobody has to "prove" how much pain they are in. The only issue is if your Dr. believes you, and is willing to prescribe meds. Why get so defensive?  I would also be careful comparing any pain to end stage cancer, teh suffering is immense, and the loss of dignity that goes with it is heartwrenching. Good Luck
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