Something's wrong with this picture!
Dec. '08 I experience my 1st kidney stone attack from hell! Went to my hometown ER, (which most of my Dr's are out of area) as the pain was so bad, and I didn't know what it was at the time. After the DX., and pain let up some, I was discharged home with "motrin" and told to use my pain meds that I have on hand for my back as needed for the kidney stone flare up. ***I have been on opioid pain control-Fentyl patch-75mgs. every 48 hrs., oxy. 40mgs twice day and Fentanyl transmucusal (sucker) prn for breakthrough pain for app. 12 yrs. I see my pain control Dr. monthly. Haven't been hospitalized in 12 yrs., only been to the ER one other time-when I was rearended, and again told "use your pain meds, you have plenty!"
Well, motrin is like candy (excuse the sloppy talk) to someone who uses Fentanyl for pain. What a joke! Motrin doesn't even help my headache! Don't they get it?
Back to my story...went to different hospital-out of area for Lithrotripsy in attempt to break up large stone. Told to stop taking all my pain meds. Came out of surgery in SEVERE pain. Moaning, crying and couldn't even communicate the pain was so bad. The response was: we can't give you anything more b/c we're afraid you'l stop breathing! I'm thinking...I'm going to stop breathing, IF YOU DON'T GIVE ME SOMETHING FOR PAIN-DANG IT! Left hospital at 8-9 level of pain-hospital didn't care, at least I was breathing! Dr. perscribed Darvocet for pain! Yippee, a friend for my Motrin! Month later back to hospital for exact repeat for another Lipot. as the 1st didn't do a thing. This time when I was discharged, I told them to keep the Darvocet, I still had leftovers! Repeat from 1st surgery!
Dr. decided to watch stone, as it was in difficult spot of kidney and not causing pain. Would X-Ray again in 6 months. Fine. June 22nd. Woke up to SEVERE pain on left side this time. WOOPEE! I knew what this was. ****. Double ****. Back to ER-admitted, I'm now a wuss. I was in the ER for 1 HOUR b/f I even saw a Dr. No ****! Oh, they knew I was there-they HEARD me! They also knew my history-did they assume I was another 'drug seeker' or did they think I could wait? I have no clue, BUT...when they did get their sorry butts around to seeing if I was "still breathing" ha ha-A cute little IV was started, and a poke of Dilaudid was given, enough to kill an ant, but it didn't touch my pain. I guess some Dr., just don't have a clue when it comes to managing patient's who are on opioid's for chronic pain, and come through the ER for an acute purpose. Don't they understand tolerance/dependence/etc? Don't they know that we need MORE meds than the average JOE BLOW to manage pain because of the maintence medication taken daily. We need over and above not under and below. And you never take their maintence meds away, give them your little cocktail, and expect that to do the trick. What about withdrawal? Oh my Lord. You have no idea what I went through those 4 days. For 48 hrs straight I sat up in that bed and cried, my body stiff as a board-when I could get a word out-yelled for help. Got none. After 2 days they started me on "Tramadel?" No PCA-they came in every 3 hrs. and gave me 2 of Dilaudid. That's it folks. And never gave me my maintence meds the whole time I was there. How's that for a true story?
It gets worse. 2 1/2 wks later I returned to have the stent removed, and it was a repeat from hell. I can't even put into words, the pain I went through b/c of a hospital's lack of understanding in this area. An anesthesiologist even walked by my bed, in recovery as I sat up holding my stomach crying-the nurse asking him about giving me more for pain, adding "she had alot in surgery, and has a Fentanyl patch on, and I'm afraid of respiratory distress" He shook his head in the no direction and walked away. I insisted that they let me go home, and made it clear that my pain was at a 7-8-9 whatever they wanted to write down. But, there was no use staying there. I left clenching my stomach in pain. (as soon as I got in my car, I grabbed one of my emergency Fentanyl suckers, and voyla!) No, it really didn't help, as I was too far behind.
I have made a complaint to the hospital, although I don't expect it to go very far, as nothing does these days. As far as my Dr is concerned-it's really not so much his fault, as I never really discussed in detail my chronic pain issues with him from the get go. I figured that the kidney stone problem would be a one time deal and cleared up. Well it wasn't. I did go into his office-unannounced first thing Mon AM, not expecting him to see me, but he did. He gave me app 10 min of his time-I spoke quickly-but enough to get in whether we could work together or not on this issue. Whether he was comfortable managing my pain on this level. And, it won't be on the level it was b/f-I hope I made that clear enough. But, oh my Lord-what a nightmare. How can the medical world be so lost/misconstrued in this area. It's nuts.