Need advice

[Nonay]

I am in the process of trying to get a diagnoses for this. I have had 2 previous surgeries for herniated disc. I have been on disabilty for 10 years now , with the dianosis of degererative disc disorder , scoliosis , ostioarthritis , restless leg syndome , IBS , have issues with cramps and muscles spasms, bladder control issues , a relentless throbbing in the base of my scull , blood pressure fluctuations , and now my PCP suspects fibromyalgia . But in doing my reasearch I came upon a site on the web about adhevise arachnoiditis. This seemes , to me at least , to be a much better fit for what I am experiencing. I was wondering if an MRI done at lowerfield strength magnet would be able to show this ? As I had one done just 2 months ago.

[Ghilly]

I was diagnosed with adhesive arachnoiditis five years ago, and the symptoms that you have certainly do fit the profile.   Perhaps the problem with them not diagnosing it is not that it's not showing up, but many doctors refuse to say "the "A" word" in a diagnosis because it implicates their fellow doctors.  From everything I have been told, doctors will go to great lengths to not have to admit that someone has AA, and that those who ARE willing to diagnose it come under suspicion, and those who actually go to court as expert witnesses for people who decide to attempt to seek compensation from the doctor who was responsible are ostracized from medical "polite society" and are considered "rebels".  Most doctors prefer the nebulous diagnosis of "chronic back pain" or, in the case of people who have had surgery, "failed back surgery syndrome".  It's so much more comfortable for them to be able to blame it on fate.

As Young At Heart has said, I pray that this is NOT your diagnosis, as this is a horrible disease to live with.  

Ghilly

[young at heart]

AFTER READING SOME OF YOUR SYMPTOMS THEY ARE COMPATIBLE WITH ADHESIVE ARACHNOIDITIS,BUT WITH AA YOU WOULD HAVE SYMPTOMS AT THAT POINT AND LOWER.

A STANDARD MRI WILL PICK UP ADHESIVE ARACHNOIDITIS, A T3 OR A T 1.5 MRI WILL DETECT THIS.

IF YOU HAVE CONCERNS OF AA ASK THE RADIOLOGIST TO TAKE ANOTHER LOOK AT THE MRI OR THE ORDERING PHYSICIAN,PREFERABLY A NEUROLOGIST OR A NEUROSURGEON.

AA IS VERY VISABLE ON A MRI.

THIS IS NOT A DISEASE YOU WANT,I PRAY ITS SOMETHING ELSE.

I HAVE AA AND ITS NOT AN EASY LIFE.