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Pain management Advocacy, and informational center??
I have been reading, and studying about all different kinds of pains, and pain therapies BUT one major thing is that us chronic pain patients are treated like junkies almost every single day of our lives, I have been inspired by all the horror stories to educate the Public about what we go through on a daily basis. And what our pain has cost us in life. I feel so bad for the people who are treated unfairly. I know that if i didnt have my meds I wouldnt be able to Hold my nephew, or my daughter, And that is an amazing experience that i would never want to miss out on. I have my life back due to these meds.I Think we need to start a public group educating them about what its like to be a CP Patient.. Probably just rambling for nothing but its important.. Any supporters out there?
It would be fantastic to be able to educate the public about this. I don't think people mean to be ignorant. Why would they know if they don't know anyone in this situation? Even members of my family don't "get" it.
I'm encouraging my daughter at some point to do a paper in college about this. I think pain patients are generally looked at in two ways: junkies or hypochrondriacs/fraud. It contributes (for me anyway) to my isolation and not sharing what's going on with me and why I'm not at a lot of functions I normally would be.
I'd love to participate in someway if I can.
I'm encouraging my daughter at some point to do a paper in college about this. I think pain patients are generally looked at in two ways: junkies or hypochrondriacs/fraud. It contributes (for me anyway) to my isolation and not sharing what's going on with me and why I'm not at a lot of functions I normally would be.
I'd love to participate in someway if I can.
I will be researching How to start a website tomorrow morning and will post when and how we can do this Thanks for the support guys! Its really cool to have!
Dear Sarajmt,
That's actually exactly what I meant. I can barely move around, much less get out of the house most days, and this is with all my strong pain meds.
So, does anyone out there know how to set up a website? If we just sit back and let these other people who abuse these medicines that we actually must have to live even a half-way functional life then that's all anyone, including the DEA, and all the other powers that be will know from and hear about.
Great idea Sarajmt!!
Big Hug,
Suda
That's actually exactly what I meant. I can barely move around, much less get out of the house most days, and this is with all my strong pain meds.
So, does anyone out there know how to set up a website? If we just sit back and let these other people who abuse these medicines that we actually must have to live even a half-way functional life then that's all anyone, including the DEA, and all the other powers that be will know from and hear about.
Great idea Sarajmt!!
Big Hug,
Suda
I'm all in for a campaign. The sad truth is most of us don't travel well. And the consequences of chronic pain have devastated out war chests!! Mobility is a problem. So a write in or internet campaign would be great for me! Anyone know how to set up a website?
Dear GSWsurvivor,
I totally get what you are saying. It is dispicable (sp) that people like us, and tons more are treated like we are junkies!
But, where is our protest to be held? Where do we sign up? Other people do it for other things and this is something that can and does totally alter a person's entire life.
So, who do we write to? Do you think it would be our Congressmen, Senators, Mayors? Just to whom do we start a complaint campaign?
I live in Houston and the DEA has chosen Houston, among about three or four other cities to make an example of because we seem to have very, very many of these "pay cash & tell me what to prescribe clinics" in our city.
But here we go! Just when you thought your closest friends and family members were getting a bit of an understanding about the fact that we really must take these strong pain meds each and every day.....along comes more "pay as you pop pills" clinics and DEA busts on the front page of the newspapers. Hence, even though you go to a reputable physician, pay with insurance, and must follow the pain agreement you signed, all of the sudden the phone begins ringing and all the trying to explain goes out the window, totally.
Still, does anyone out there know to whom it may concern? And, if I get names I will certainly begin a writing campaign immediately, or at least as soon as my pain meds kick in and allow me to function a bit! Ha!
Take care of yourself.
Big Hug,
Suda
I totally get what you are saying. It is dispicable (sp) that people like us, and tons more are treated like we are junkies!
But, where is our protest to be held? Where do we sign up? Other people do it for other things and this is something that can and does totally alter a person's entire life.
So, who do we write to? Do you think it would be our Congressmen, Senators, Mayors? Just to whom do we start a complaint campaign?
I live in Houston and the DEA has chosen Houston, among about three or four other cities to make an example of because we seem to have very, very many of these "pay cash & tell me what to prescribe clinics" in our city.
But here we go! Just when you thought your closest friends and family members were getting a bit of an understanding about the fact that we really must take these strong pain meds each and every day.....along comes more "pay as you pop pills" clinics and DEA busts on the front page of the newspapers. Hence, even though you go to a reputable physician, pay with insurance, and must follow the pain agreement you signed, all of the sudden the phone begins ringing and all the trying to explain goes out the window, totally.
Still, does anyone out there know to whom it may concern? And, if I get names I will certainly begin a writing campaign immediately, or at least as soon as my pain meds kick in and allow me to function a bit! Ha!
Take care of yourself.
Big Hug,
Suda
Sorry my PS didn't show up on my post. SOOOO :)
PS I totally agree about the need for a group such as that. In it needs to be the fact that THEY MUST FOLLOW THE RULES so that it will protect ALL of us CP Patients.
1. They MUST get their meds from ONLY their PM Dr. NO OTHER ONE!!
2. They MUST take their meds as prescribed!
3. They MUST NOT take any other meds from ANY OTHER person , ie: Friend, Family Member etc.
4. FOLLOW EVERY RULE THAT YOUR PM CLINIC HAS!!!!
It's just a suggestion of part of what needs to be included in their education so it will keep everybody safe!!!
Thanks again for posting it.....Sherry
PS I totally agree about the need for a group such as that. In it needs to be the fact that THEY MUST FOLLOW THE RULES so that it will protect ALL of us CP Patients.
1. They MUST get their meds from ONLY their PM Dr. NO OTHER ONE!!
2. They MUST take their meds as prescribed!
3. They MUST NOT take any other meds from ANY OTHER person , ie: Friend, Family Member etc.
4. FOLLOW EVERY RULE THAT YOUR PM CLINIC HAS!!!!
It's just a suggestion of part of what needs to be included in their education so it will keep everybody safe!!!
Thanks again for posting it.....Sherry
Hi,
What an appropriate post. You need to Check out Sara's post entitled "And this is why we legitimate Pain Patients have a hard time". These two posts go hand in hand!!
Sherry
What an appropriate post. You need to Check out Sara's post entitled "And this is why we legitimate Pain Patients have a hard time". These two posts go hand in hand!!
Sherry
It also doesn't help that people are selling their drugs for a personal gain! What is this world coming to?
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