I have been living with neuropathy pain for over 9 years and have tried numerous medications, I feel your pain, I am so sorry to hear your having trouble finding something that works for you.
I take topamax (200mg)bid , at one time I was prescribed it along with neurotin 3600 mg before bedtime, unfortunately I also had differante adverse reactions and could no longer take it. They have tried almost everything in the book for my second nerve pain management care, but haven't been able to find anything to fill it. But trust me there are quite a bit out there I can attest to that. So as of now I am on just the Topamax and my pain med. But I never give up hope. A cheery disposition and the love and support of family is what keeps me going. Good luck I hope they find out what works for you.
It took me about a month to get used to Gabapentin & the grogginess- but I can attest to the fact that for me- I no longer feel any side effect of grogginess- even after an increase of daily dosage. It's now been 2 years on it and (well, given my brain/spine surgery in 9/15, I don't think it wise to even know what neuropathic/nerve pain it could be further relieving...infact, the increase came after that brutal surgery). I'm not always a fan of the "give it a couple months" that doctors say. But, I'm glad I have this one a shot! It does not effect me in the sleepiness, grogginess, lethargy, etc. department any more . Dry mouth...I'm in other meds. that can easily be the culprit. But even with that, I've found ways to combat that. Not every med. is for everybody. All I can say is that the grogginess of Gabapentin/Neurontin certain went away. :)
Thanks for the feedback. I have had about 3 or 4 decent nights on 600 mg neurontin at 11 pm and nothing else (ie no ibuprophen). I sleep about 2 hours before waking up but instead of going downstairs to peddle i can do a stretch or 2 and then back to bed.
to think the grogginess went away - wouldn't THAT be awesome!
Grreatful does the 3600 mg replace partially or completely an opiod pain reliever?
No it does not the doctors had me on 200mg topiramate bid, 3600 Gabapentin before bedtime along with my opiod pain every 4 hours.
With all of this I am still unable to exercise I have a different nerve damage then you. Mine was caused from a hernia repair. So it effects my groin down my leg, so since the Gabapentin didn't work we have tried many different types and haven't found a new one. They say surgery will cause more damage then cure. But I am still hopeful and will keep looking. I also take Naproxen. And Ibuprofen on really bad days.