I am so sorry your going thru so much! You really are dealing with alot of different problems each causing significant amount of pain.
I know it is very scary seeing a new Docotr but you have to try and find one more suited to your needs. The Methadone obviously is not for you and is causing more symptoms than relief.
I can send you some referral links so you can check in your area for a better PM Doctor if you like.
Please don't just sit back and take the treatment your getting, there is much better out there:)
I am truly sorry for the pain and suffering you must endure on a daily basis. You are a very strong person for even being able to come here and ask for help. I applaud your efforts to seek assistance from this message-board.
I suffer from both PKD and chronic kidney-stones (of the cystine variety). I have a verified case of Cystinuria... lucky me. So, not only an incurable PKD case, but an incurable Cystinuria case. I feel your pain in that area, but unfortunately cannot relate to the other things of which you spoke.
I'm not from Atlanta, but I have a close friend that lives there (in Dunwoody), and he gave me the name of HIS pain-management doctor:
Dr. Arnold Weil (in Marietta, GA): (770) 421-1420
My friend has been with him for several years now, and says that he's top-notch and not just a prescription-writer (he'll actually take time to review your case and work with you).
Good luck to you.
Thank you for your supports. Waitin to hear from another PM drs. It is driving me crazy. I want off of the methadone cocktail med. I have so much to do. It is hard for me to function with snowy impaired vision. The meds claims it causes nightmares. Im realistic type person but when i go to sleep some dreams feel so real that i jerk or jump out my dream and fight panic attacks every night. I can handle anxiety attacks which is like hiccups to me. I only get panic attacks when under stress. But these horrible episodes makin me feel where I hate to go to sleep. There were times where i feel that im havin a stroke or anginia attack while sleepin.. Ive been in bed so exhausted and feelin so guilty for my family having to worry and to help me. I didnt have any problems going out in public. For the past few months, instead of helping my loving MIL she is helpin me. Last night my intestines were crampin up like i was havin dihearea it wouldve been nice to being able to go. But still have comspation/bowel problems.
El em: The dr you mention is too far for my hubby to take me.
Thank you Sandra and EL; for your support and info.