not so much a question as a whine. I have loin pain hematuria syndrome. One of those things that are horrifically painful and few medical professionals believe in.
Anyway, I'm currently starting my journey with pain management. Had one appointment, but we won't get started on anything until appointment 3 or 4. My nephrologist wrote me a script for vicodin 5/500 90 pills for 30 days. Uh, I've had this problems so long, that is nothing. I don't want to take percs or stronger because coming down off of them is awful. Last summer I was on 100mcg fentanyl patches, weaned to 50 then cold turkey ripped it off.....that was horrible. Shortly after that I had my diagnosis and had a kidney moved....that helped on one side, ended up getting pregnant 6 weeks later, my OB kept me on oxycodone during my pregnancy because I had totally resolved all the pain issues I had. That kept the pain down, but my baby was born 14 weeks prematurely due to my kidney problems (he's doing wonderfully now) I am nursing, the neonatologists weren't concerned about the narcotics because such a small amount gets through the breastmilk. So I've worked myself down from 10mg of oxy every 4 hours to the 5mg of hydro every 4 hours, Thing is, when I get into a pain cycle, this does nothing, so I take 10mg of hydro every 4 or 5 hours and grit it out.
Today I took my last hydro. I still have some clonidine left over from last year's fentanyl adventure, so I've taken that. my legs feel jumpy. I'm taking toradol (non narc) for the pain.
I'm scared that I'm going to go through withdrawals like I did on fentanyl last summer. Please tell me it won't be that bad.....I can't refill my script until 10/4. I am home alone with my baby and two older kids. I really can't just lay in bed until dh gets home.
We are talking of fitting me with an intrathecal dilaudid pump. Anyone use one of those. I'd love to get the same level of pain control I had with the fentanyl without the risks (I got a defective patch last summer....saw the defect before I put it on) Scared to death of methadone, tried it during my pregnancy, but cause huge swelling and didn't absorb well in my system since I only have a 4 ounce stomach, the pills worked better than the liquid.
Guess I just wanted to whine.....